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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Aibu to feel I can't cope with dh illness

799 replies

cakedup · 30/03/2024 15:53

I am menopausal so happy to consider this as a factor. Also ds is having mh problems which has been very upsetting.

Been with dp for 5 years, live apart, love him very much. In last couple of years he was diagnosed with a condition which has had a huge impact on his life. I'm living in constant fear that he'll die (possibility of happening anytime and he is unlikely to have longer than 10 years).

Very difficult to manage as not living with him. He stayed with me during covid which caused big problems in our relationship so don't think we can ever live together. But he shouldn't really be living alone, he is not coping. Doctors say he does remarkably well considering the pain and discomfort he is in, he is a very strong character, not a man flu type of person at all. But in a way he makes things worse for himself, many times he has been advised to go to hospital but doesn't.

I stay at his house twice a week. I hate his house, he is a hoarder and it's filthy. I am confined to one room + bathroom. Because of his medical condition I try my best to accommodate him being calm and happy as agitation can bring on symptoms. This means putting my needs aside a lot of the time.

When I'm at home, I have the phone line open to him from 8am - midnight, making sure he is OK, not having seizures etc. I feel I get very little privacy because of this. He is there in the background when I am on work calls, talking to my son, eating lunch etc etc

I used to love my work but no longer do because a lot of the public facing stuff which i loved I can no longer do due to dp having low immunity. I have not spoken or seen friends in over a year and had very little contact with family, theres just been no time. Not helped by the fact that dp constantly criticises both my work and friends, and specifically my mum as they have fallen out (her fault afaic).

He is understandably fed up with his illness and lashes out at me sometimes. For example when he was with his gp and wanted to ask me a question, i didnt get back to him for 12 minutes (i was in a work meeting) so he shouted at me.

Otherwise when able to be, he is very caring and loving. He will do things to make me happy. But feel like most of everything is on his terms. For example if i want to leave his house by 10pm on sunday night so that i travel home for an hour, get a few things done and get to bed at a decent time. But often he doesn't want me to leave so I stay till midnight. He is dominant as it is, wanting things his way and now because of his illness its hard to say no.

He has told me this is no way for him to live, he was extremely able before illness and now has little quality of life. Even talked about assisted dying. It is heartbreaking seeing him like this.

OP posts:
Thread gallery
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IncognitoMam · 31/03/2024 11:41

Ramalangadingdong · 31/03/2024 11:38

I wonder if he would pay to have his place deep cleaned and then for a cleaner to come in to maintain it. At least then it would be a nice environment for you and there would be other spaces in the house for you to retreat to, which might make the experience a teeny bit more pleasant.

I am like you, op, very sensitive to the suffering of loved ones, sometimes to the detriment of my own well being. I once heard a radio programme which described this as an actual condition. A woman described driving across the country just to help someone which would sound like madness to “normal” people. It is very hard when you are like this. People tell you to do things that are nigh well impossible - like walking away from someone you love who is suffering. I can’t do it. I read on MN all the time about people who are able to do that and wish that I was one of them.

it would be good if people had suggestions that would really help people like us rather than just telling us we have low self worth (we don’t).

Have you RTFT?

And no. I don't think he would get his house cleaned. Op knows it.

Ramalangadingdong · 31/03/2024 11:42

IncognitoMam · 31/03/2024 11:38

You're not listening to anyone. It's not worth talking to you. You have blinkers on. I imagine any close friends and family must find you very frustrating.

Edited

If all this is true how does it help op in her immediate circumstance? Is she expected to read this, identify with it and change in the time it takes to read a thread on MN?

DamnUserName21 · 31/03/2024 11:42

cakedup · 31/03/2024 11:35

I don't really. I feel heartbroken he is going through this and so I feel sacrificing some of myself to help him is the least I can do.

I should say he supports me too. He is good with phonecalls and maths (my two weak points) so helps me out with that kind of thing.

However, sometimes he over helps to the point its not necessary. For example, when I was having issues in my bathroom he liased with my landlord. Yes, it got the job done, sooner and extra work on top. But the number of phone calls and him relaying information to me and the time it took out of my work time...I think I would have preferred the normal route where it took a bit longer and got the basic job done.

He has taking over your life and you let him - out of love, guilt/pity at his illness, self-sacrifice, who knows?!

Supporting you with phone calls and maths? Sounds bare minimum. And you'd manage with a different support network or independently if he wasn't in the picture...

Talking to your landlord? That's just domineering and interfering behaviour, not support.

IncognitoMam · 31/03/2024 11:45

Ramalangadingdong · 31/03/2024 11:42

If all this is true how does it help op in her immediate circumstance? Is she expected to read this, identify with it and change in the time it takes to read a thread on MN?

This isn't OP'S first thread about him. It's ongoing. Hopefully it'll sink in soon?

Idontgiveashitanymore · 31/03/2024 11:49

He needs carers , get him a social worker , or someone in a healthcare area of expertise.
it’s not your job to be there all the time .

murphys · 31/03/2024 11:52

cakedup · 31/03/2024 11:24

They are all young adults, and he has a good relationship with them, speaks to them every day. They have no idea of the extent of his illness and he doesn't want to worry them as he they have their own stuff going on.

Doesn't this strike you as a little odd though OP? He's so ill he needs your full time monitoring, yet he talks to his kids everyday (does he really?) yet they don't know of the seriousness of his condition.

All I hope is that you can take something from this thread, just to make you have a think about everything and perhaps take on some suggestions from the thread.

If you were happy with this situation you would not have posted. So now you have said it out loud (typed but same concept) perhaps you will be able to be more open to the fact they things may not quite be as they seem. And that you are able to take back some control of your own life. For you and for your ds. He also needs you. Maybe more but he's being being so overshadowed.

nolongersurprised · 31/03/2024 11:54

IncognitoMam · 31/03/2024 11:45

This isn't OP'S first thread about him. It's ongoing. Hopefully it'll sink in soon?

She needs to feel important to him. She would have little left in her life now without him and spending 16 hours/day on the phone to him. As a PP said, they’re in a weird, pathological little bubble together. He is mentally unwell. She is enmeshed

redboxer321 · 31/03/2024 11:55

IncognitoMam · 31/03/2024 11:45

This isn't OP'S first thread about him. It's ongoing. Hopefully it'll sink in soon?

I'm actually struggling to believe it's true. The fact that the OP has posted before and undoubtedly got the same advice makes it more unbelievable.
Also, he starts off as a DH then becomes a DP before a description of a man who is clearly neither of these things.

Mercurysinretrograde · 31/03/2024 11:55

OP this business of the dr calling everyday sounds hard to believe. What is the name of his illness? Can you go to his next medical appointment? Have you checked his dr’s name to make sure the dr exists?

IncognitoMam · 31/03/2024 11:59

redboxer321 · 31/03/2024 11:55

I'm actually struggling to believe it's true. The fact that the OP has posted before and undoubtedly got the same advice makes it more unbelievable.
Also, he starts off as a DH then becomes a DP before a description of a man who is clearly neither of these things.

Yes I know. I had a neighbour who would make up all sorts of crap. It was astonishing. Hopefully it isn't true. The GP thing is nuts unless he's royalty 😂

ARichtGoodDram · 31/03/2024 12:02

There’s no way a GP is calling every day.

My DD’s GP has very heavy involvement as she’s on a very unusual mix of medications (a combo was found almost accidentally that seems to be working for her) and she’s having almost constant testing and checking and even then the GP phones once a week. Twice on dose change weeks at most.

BangingOn · 31/03/2024 12:11

I really wish this wasn’t real but looking at the OP’s posting history is seems it is.

The part about spending 20 minutes every day writing up his daily diary of symptoms is particularly sinister. Keeping you busy and reminding you every single day of just how ill he is, or how ill he tells you he is.

OP I feel like you know this isn’t right and I hope you find the strength to end the relationship and start putting your life back together. Your poor DS having to watch this utter dysfunction.

cakedup · 31/03/2024 12:14

redboxer321 · 31/03/2024 11:55

I'm actually struggling to believe it's true. The fact that the OP has posted before and undoubtedly got the same advice makes it more unbelievable.
Also, he starts off as a DH then becomes a DP before a description of a man who is clearly neither of these things.

Sorry DH was merely a typo.

It is so difficult being in this situation. Re my previous covid thread, I did actually try to split up with him a few times. Even though I loved him I knew it wasn't healthy. But he made it impossible. I can't describe it. And now the longer it's gone on, the more difficult it is. And now with him being so sick...it would feel utterly heartless to split up with him.

OP posts:
nolongersurprised · 31/03/2024 12:15

I wonder what would happen if the OP’s DS (I know he is technically an adult) wanted her to go away with him for a few days. Maybe to look into course or a break or to catch up with other family members who live a distance away.

Would it be possible for her to not spend 16 hours/day with an open phone line to her DP? Would her absence “agitate” him and thus exacerbate his symptoms, meaning she’d have to stay?

Riceball · 31/03/2024 12:15

If you really can’t bear to lose the relationship, how about trying to put a few small boundaries in place? Going out to work a few times a week because your boss is ‘insisting’. Spending more time out of the house on ‘errands’ with your son so you can’t be available. After all, it’s not anyone’s fault if a shopping trip takes longer than planned. Or that you ‘forgot’ your phone. When you gradually stretch it, you will realise he doesn’t actually need you to make yourself available constantly. Imagine how nice it would be if you could have a weekend away with your son in the future.

TheHorneSection · 31/03/2024 12:17

It doesn’t strike you as remotely convenient that you tried to break up with him before, and now he’s got some mystery illness which means you need to spend all day every day in contact with him…?

cakedup · 31/03/2024 12:18

Codlingmoths · 31/03/2024 11:15

I really hope the op is reading. And even if she doesn’t think ok I’m dumping him, she thinks ok I will sign back up to work at schools, I will cancel the evening ‘open line’, and I will leave his at 10pm. Even those is a huge change. I think that will help you see the light more op. You should take your son on a weekend away.

I'll mention a weekend away, I'd love that. Not sure what i could actually afford though. However, it's difficult because firstly he has diagnosed OCD which makes day to day practicalities difficult. Secondly, he is still a teenage ds (turning 19 very soon) and hanging out with mum isn't really his idea of fun.

OP posts:
cakedup · 31/03/2024 12:20

TheHorneSection · 31/03/2024 12:17

It doesn’t strike you as remotely convenient that you tried to break up with him before, and now he’s got some mystery illness which means you need to spend all day every day in contact with him…?

It's not mystery. I witness his symptoms, looked at medical paperwork, overheard conversations with consultants etc

OP posts:
IncognitoMam · 31/03/2024 12:20

cakedup · 31/03/2024 12:18

I'll mention a weekend away, I'd love that. Not sure what i could actually afford though. However, it's difficult because firstly he has diagnosed OCD which makes day to day practicalities difficult. Secondly, he is still a teenage ds (turning 19 very soon) and hanging out with mum isn't really his idea of fun.

My son came away on a national holiday with me at 19. The older ladies loved him. Cheap holiday too. Ask ds you may be surprised?

Iwrotethelyricstoaxlf · 31/03/2024 12:21

cakedup · 31/03/2024 12:20

It's not mystery. I witness his symptoms, looked at medical paperwork, overheard conversations with consultants etc

What is the illness?

Im guessing there’ll be some support resources other mums betters could sign post you to.

IncognitoMam · 31/03/2024 12:21

Although dp won't like it and I bet he has a bad turn before you go.

Iwrotethelyricstoaxlf · 31/03/2024 12:22

cakedup · 31/03/2024 12:20

It's not mystery. I witness his symptoms, looked at medical paperwork, overheard conversations with consultants etc

All of these things can be faked.

dancingsands · 31/03/2024 12:22

exerciseshmexercise · 30/03/2024 17:08

Why is he cutting you off from your friends and family due to his low immunity but still going to the cinema and the theatre?

This

IncognitoMam · 31/03/2024 12:23

cakedup · 31/03/2024 12:14

Sorry DH was merely a typo.

It is so difficult being in this situation. Re my previous covid thread, I did actually try to split up with him a few times. Even though I loved him I knew it wasn't healthy. But he made it impossible. I can't describe it. And now the longer it's gone on, the more difficult it is. And now with him being so sick...it would feel utterly heartless to split up with him.

You know you have to. For your own sanity. You didn't cause it. You don't make the mess, chain smoke or drink heavily. You're being manipulated.

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