So worried about my baby, can any mums helps

[Mangochutneey]

I have joined mumsnet specifically to ask about this as I am now feeling desperate. My baby had his one year vaccines this time last week, four injections in total including the MMR. The following day he had a high temperature of over 40, called 111 when nothing brought it down and they said to take to a and e. We did this and they said he was fine and temperature was high but probably the vaccine. Sent home. He has been an entirely different baby since that day. Temperature over 40 continued on and off for first 4 days, that has now stopped.

But my baby is looking vacant, not engaging, staring into space, not playing. We went to the supermarket yesterday and two separate people commented that ‘if looks could kill,’… he looks angry. This is not like him. The biggest worry I have is sleep… he slept 14.5 hours last night and is now having a nap again already after waking up at 9:30am? He did the same yesterday and also had a 2.5 hour nap in the afternoon as well. That’s almost 18 hours of sleep a day?

I am very pro vaccines and we are paying for the chicken pox one soon but this has really scared me. Why is he sleeping so much so long after? Why has his temperament changed?

The fact that you don’t know why the dose is the same and compared it to calpol is precisely why people like you shouldn’t be making decisions like this.

For me, the most concerning aspect is the altered mental status you have described:

“But my baby is looking vacant, not engaging, staring into space, not playing. We went to the supermarket yesterday and two separate people commented that ‘if looks could kill,’… he looks angry.”

I would actually go to A&E and make sure you emphasise this symptom and the high temp. In my experience, Drs will take this seriously.

She’s referencing a febrile seizure. They are not harmful unless complex febrile seizures and even then they’re normally not. These happen when the body rapidly increases in temperature, they don’t happen continuously after the fever has past. It’s literally the rapid rise which is why things like calpol don’t work, they don’t kick in fast enough.

@Mangochutneey You should start keeping a diary and note unusual behaviours over the next couple of weeks, plus time of the day and circumstances so you can see if there are any regularities or triggers. I have two friends whose DCs suffered from seizures or what looked like potential seizures as babies/toddlers and this was advised to them. You can then show the diary to the GP and then be referred to a paediatrician or other specialist. If the issues disappear within the next few weeks then it's nothing sinister. If not, you will be better informed as will the doctors.

Thing is with small children, this could be virtually anything, a side effect of the vaccine, feeling poorly (maybe he was developing something just before he had the jab and it's a mixture of different things), maybe these are seizures, who knows. Equally it could be something completely different, like a reaction to food if they develop an intolerance - paediatrician told me this and it blew my mind as I'd have never thought to link this, but it's not uncommon in young DCs.

I would keep him off nursery this week.

I hope your LO is back to his happy self soon xx

I agree I sourced it badly. It’s like information has been erased or something. I don’t trust what the government say about it now because of (a) the reckless way they acted at the time and (b) the NHS isn’t fit for purpose and would have no clue how many children suffered inflammation of the heart from it. It’s common sense anyway looking at how Covid tends to affect children

If he remains extra sleepy I would ask for his blood sugar levels to be checked.

It wasn’t just a poor source, you then followed up with a statement that there’s no up to date advice. Completely untrue. That’s followed up on numerous other statements about blood tests and private doctors. You aren’t making sensible decisions and shouldn’t be advising others.

@AnneValentine there isn’t enough data in your source to call it advice.

I’m advising the OP to insist on tests if her baby’s eyes roll back again. The first and most basic thing a decent doctor should do is bloods.

Who are you to say she shouldn’t be advising others? Font of all knowledge are you? 🙄

It is literally the updated version of what you posted, which also contains no up to date data. Amazing.

And no that isn’t what you advised, you said bloods could be done to confirm seizure activity which is not correct. Blood tests can confirm specific types of seizures in some patients but are not the gold standard for concerns regarding seizures. When I pushed back you said a private doctor would have. Which is again not true.

No I’m not, not even close, but I clearly know more than this one. And still haven’t thought I should advice the op to do anything other than see the doctor and follow their advice. You know, the person who is literally qualified to give advice.

Setting sun eyes?.......I'd get the eye rolling looked into again..... hope all good OP X

when you take photographs do they look ok ?

like you baby was doing eye rolling after jabs. was dismissed as overanxious 1st time parents. fortunately we had a wee bit of a birth issue and still got periodic check ups. Cons listened, made right noises left student in room while they went for equipment. baby did eye rolling with student in room, who could say it in medical jargon whipped into a dark room and diagnosed with suspected cateracts. within weeks seen by childrens hospital and opetated on. had we not been diagnosed then the baby may have been left with dancing eyes. checked and eyes were perfect leaving after birth no we are not related

Get Hydrocephalus ruled out......speaking from experience x

Oh for goodness sake. There is literally nothing in this post to suggest this. Nothing.

Some of these symptoms sound similar to contracting meningitis, is this something you have looked into? (I'm not a doctor by any means, it's just something I've read a lot about, and there doesnt need to be a rash for it to be present). Not to worry you it's just if ever you're worried about your child, don't ever feel like you are being a bother, or over the top. It is ALWAYS better to cause a scene and be wrong, than to be quieted when you were right and be too late.

I did space mine out as some of my friends’ babies were having similar reactions to your baby when gave them all in one go. I remember having similar worries though and my kid had that stare in the nothing for a few seconds. I brought it up several times and he got eeg, regular doctor visits etc(suspected seizures)- fortunately was nothing and was eventually outgrew them but took a couple of years.

I’m not arguing with you about that. The data from the government isn’t there.

It’s the first thing that happens in hospital with suspected seizure, a blood test.

Hi 👋🏻

The staring into space sounds like something my toddler does when she's getting tired. It sounds like he's been more tired because of the vaccinations, so I'm guessing that's why. From what I recall, one of the vaccines causes fever a week or so after the vaccinations. Also, the mouth thing? They get loads more teeth over the next year, teething can be relentless, I'd definitely be thinking along those lines!

@AnneValentine OK. Merely giving my advice having first hand experience and reading posts. OP can chose to ignore.....

To test for possible underlying causes, not to confirm if a seizure has actually taken place. An EEG is carried out to assess for seizure activity. And this happens when a person has shown clear signs of a seizure and / or is unwell. Not a perfectly health child with chapped lips who’s teething.

You mentioned setting sun eyes - not what’s been described - and a condition that again bares no relation to anything described here. Your experience is that a child was diagnosed with two conditions that did t reflect the symptoms associated with them?

The eye rolling thing is giving me a flashback to a child in my family. He had something called infantile spasms, which can show as tiny little subtle movements. His were eye rolls, and then they would progress to head drops. Some children have bigger movements, along the lines of a moro reflex, arms splay outwards and they jerk upwards or bring their knees up to their chest.

He also stopped smiling, laughing, sitting up by himself and cried an awful lot.

You can see the eye roll/head drop in the first bit of this video:

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There's a lot of scary stuff out there about it, but not all cases end up as severe as you will read about. A lot of children respond well to treatment and grow up fine. If you are at all worried, bypass the GP and head straight to your nearest childrens A&E and say you think it might be infantile spasms. It is a medical emergency because the spasms cause brain damage. It needs a EEG to diagnose.

A lot of GPs haven't heard of it because it is exceedingly rare. It took 2 months for the child in my family to be diagnosed despite numerous GP visits. It was eventually only diagnosed because we reached out to a friend of a friend who is a paediatric specialist in hospital. We were told it was him being a lazy boy, colic, reflux and the moro reflex.

"People like her", ie the person undergoing the treatment or their responsible adult, are the only feasible ones to make "decisions like this." As we don't yet live in a totalitarian state where the government can mandate inoculation. And yes, I'm sure you would rather they could, but despite being pro-vaccine, I am glad they cannot. As they cannot, maybe it's better to explain things to people with a little patience and dignity rather than gnashing your teeth because they are allowed to choose for themselves and their families, and thereby alienating them.

But I suspect it's the last thing on your mind, because people like you usually only care about showing how rational you are by putting down others.

Exactly what I was thinking too. Especially the sleepiness