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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

WIBU to take this much from DD’s benefits?

494 replies

BlueLines81 · 24/09/2023 11:34

My DD is 19 and has a disability, she is not able to work and won’t be able to for the foreseeable. She receives PIP.

As she’s no longer in education, I was not entitled to claim benefits for her from the end of august this year. My tax credits went down quite considerably, and lost CB too, and all of my housing benefit. All together I am about £190 per week worse off. Which isn’t great as I am a single parent and also have a health condition (I receive low rate mobility PIP), and I had to give my job up in July as I couldn’t manage it anymore, so that’s another £1000ish per month down.

I am self employed and doing bits and pieces where I can, to give you an idea I’ve managed about 12 hours of work this month.

I did an online calculator in august and it looked like I would be better off on UC, and also needed to start a UC claim for DD, so I claimed for us both on the same day. We had an appointment at the jobcentre for DD’s claim a couple of weeks ago, and the advisor suggested that I become her appointee and I could have her UC paid into my account, if we felt DD didn’t have the capacity to manage it herself. I asked DD what she thought and she said she’d rather it was paid into my account. I am getting fit notes for both of us from the doctor and and hopefully we will both be entitled to the LCWRA elements.

The idea of being an adult and having to pay bills terrifies DD, mentally she is more like a 12 year old in a lot of ways. I have spoken to her about it and said the options are that either we work out exactly what her share of rent and bills etc would be and she just gives me the money for those, and she can arrange her own food shopping etc, and pay for herself if she wants to come on holidays etc. Or I keep the amount that I’ve lost in benefits for her, she can have whatever is leftover (which I think will still mean she’s better off than she is now with just her PIP). And then she can carry on essentially being a child for as long as she wants (I don’t mean this negatively, she regularly gets very tearful that she’s not a child anymore). She liked the sound of that option better. She just doesn’t want to have to think about finances at all.

But AIBU to take this much money from her? I don’t know the exact figures of what I’ll have lost until we get our first UC statements in a few days, but will probably be at least £150 per week. I know this a lot more than a lot of people take from adult children, which is why I feel bad, but then maybe they have a partner or are just financially in a better situation than I am. Realistically she’s going to be living at home for many more years to come.

OP posts:
honestyisnotthebestpolicy · 24/09/2023 16:33

BlueLines81 · 24/09/2023 16:09

@Lastchancechica the DVLA are aware of her health conditions and she’s permitted to drive. As I said, I can’t see her passing, so I wouldn’t worry too much. It’s a motobility car so all the insurance and repair costs etc are covered by the scheme.

It's a hell of a waste of money, is all it is. £284 a month for a car that she can't even drive and is unlikely going to be able to drive. I'm sorry OP but this has been a poor decision on your part as her appointee.

Ikeepmybumcheekshidden · 24/09/2023 16:34

@ambitchious You'd be pissed off that a disabled young girl was taking driving lessons if you were a tax payer??? WTAF. The ableism on this thread is ASTONISHING

Ikeepmybumcheekshidden · 24/09/2023 16:35

marniemae · 24/09/2023 15:30

You don't even have to spend your own money on driving lessons they are paid for. Honestly it does not pay to work unless you are on more than 25k in the UK

OP's DD is DISABLED ffs........

nochangeever · 24/09/2023 16:35

Thanks all.

My mum’s mobility has got a lot worse since she got DLA 15-20 years ago. She has arthritis and the GP has said she will need a knee op in the next couple of years.

But it was such a battle getting her the DLA then PIP that I’m scared to rock the boat and apply for higher rate, in case she loses the PIP entirely.

BlueLines81 · 24/09/2023 16:36

@honestyisnotthebestpolicy if she doesn’t pass then I would advise her not to get another car when this one is up for renewal. I wouldn’t say it’s been a waste of her money as if nothing else, it enabled her to get the free driving lessons and give it a go. She takes her lessons in her own car.

OP posts:
Ikeepmybumcheekshidden · 24/09/2023 16:39

@Booksandwine80 Wow you reallllly hate disabled people don't you? Reported

honestyisnotthebestpolicy · 24/09/2023 16:40

BlueLines81 · 24/09/2023 16:36

@honestyisnotthebestpolicy if she doesn’t pass then I would advise her not to get another car when this one is up for renewal. I wouldn’t say it’s been a waste of her money as if nothing else, it enabled her to get the free driving lessons and give it a go. She takes her lessons in her own car.

But you are now paying for lessons as the free ones have ended. You could have done that first before committing so much, you may have gauged early on that it wasn't for her. As it is she is £10k down on her PIP money over the 3 years and unlikely to even pass the test.

Lavenderflower · 24/09/2023 16:40

I think the may be reasonable for now, however, I think it is important to encourage her to become independent as she can be. My mum started transferring money to my account when I was in secondary school. I had to buy my lunch and pass. This taught me skills of responsibility and budgeting from an early age. This paid of when I went uni etc. Perhaps, you can do something similar so that she can manage in the future.

Booksandwine80 · 24/09/2023 16:45

This reply has been deleted

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Cola2023 · 24/09/2023 16:45

MySugarBabyLove · 24/09/2023 15:57

OP it sounds as if you are infantilising your DD. You’ve decided she isn’t able, so you’ve become her appointee to make all decisions on her behalf.

I have a disability, and the number of people I know who have the same disability as me and whose parents essentially babied them to the point they have no living skills as adults is incredibly sad. I remember having a conversation with my mum about this once, and she said that it would have been easy to just do everything for me rather than risk me struggling to do things for myself or to worry that I might get hurt e.g. using kitchen knives/going out independently etc (I am registered blind, have a guide dog, live alone with a job and have now adult children).

She needs to start managing her own money, and that needs to start with the benefits being paid to her, and her then setting up some standing orders for bills to you like rent, food, etc.

Even if you do this on a trial run, you absolutely need to do it. You’re not doing her any favours by babying her to this extent.

If you’re prepared to let her have driving lessons then there is 0 reason why she can’t start learning to be a responsible adult.

And if she genuinely has the mental age of a twelve year old then you need to stop indulging her wanting to drive and tell her it’s not going to happen.

You can’t have it both ways and neither can she. If she’s mature enough to learn to drive then she needs to realise that with maturity comes responsibility, and learning to adult.

If she isn’t mature enough to be responsible for money then the driving lessons need to stop now.

I am horrified that anyone would allow someone to drive a car to enable them to feel like an adult rather than giving them the ability to actually be an adult by making adult decisions.

This is blunt but I agree with you.

I have bipolar II, GAD, OCD and hemiplegic migraines. Never been on benefits.

Work full time in a high stress but fairly high paying job. I started off doing the low paid jobs most young people do - waitress, bar work and call centre.

I own a house now.

Life IS harder being disabled but I'm glad my parents pushed me to succeed. It's given me financial freedom.

On the car point - I got a medical provisional that gets reviewed every 3 years. I have no idea how someone who is too tired to control a car alone or understand roads can be considered safe to drive, unless this wasn't disclosed.

TravellingSpoon · 24/09/2023 16:46

Knittedfairies · 24/09/2023 11:44

Her benefits are for her to pay her living costs, so I think you're going about it the right way. I know you said she'll be living with you for many more years, but do look into supported living accommodation in your area to secure her future.

If you do this, be vert careful and take a lot of time about the decision. There are a lot of supported living settings out there that are all fur coat, no knickers.

However from what you have said, it sounds like your DD may be able to live independently in the future, with some support, so that is an aim for both of you.

My DS' PIP gets paid to me, and I give him an allowance in his own account. He isnt able to manage money but can participate in shopping and the transaction of buying something, with support. He also attends several youth clubs and other events so can use the money for fees/tuck shops with support.

nochangeever · 24/09/2023 16:47

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I have a relative who sells on Etsy. It’s painstaking, backbreaking work.

I feel bad for her because she values her work very little, she is very talented.

BlueLines81 · 24/09/2023 16:48

@Lavenderflower she has had her PIP paid to her for the last 2 years so she has more money than a lot of people her age, and this has helped her to budget. She buys her own clothes, toiletries, presents for other people, and social activities she does through this.

OP posts:
Lastchancechica · 24/09/2023 16:50

What social activities is she involved in?

TravellingSpoon · 24/09/2023 16:50

Sorry, meant to add that this means he can be involved in budgeting and its helping him to understand money - for example he recognises coins and knows that he needs 'three round gold ones' for his Friday disco. He will definitely not be able to live independently, but I think its important to give as much independence as possible, at a level that is right for him.

Ask yourself honestly if your thoughts around your DD's ability to handle money being clouded by your own financial situation.

elkiedee · 24/09/2023 16:50

Booksandwine80 · 24/09/2023 15:59

Well it makes me angry. I have had a very close family member declined for any type of benefit help, despite suffering from cancer and physically unable to work. They are now in awful debt and still unable to return to work due to after effects of treatment. They have physically evident signs of illness/disability but despite this are expected to return to work. How is it fair?

That's an awful situation. Has your family member sought benefit advice and/or help appealing this decision? What do her doctors say and would they be able to support such an appeal. Has the situation changed in any way that would mean that they should look again, for example if her health/prospects have become worse.

That decision is unfair, but the op and her daughter are not taking the money off your relative.

Booksandwine80 · 24/09/2023 16:50

BlueLines81 · 24/09/2023 16:48

@Lavenderflower she has had her PIP paid to her for the last 2 years so she has more money than a lot of people her age, and this has helped her to budget. She buys her own clothes, toiletries, presents for other people, and social activities she does through this.

Presents for other people and social activities….you’re really not helping us to feel sorry for her😩are you really that tone deaf?

BlueLines81 · 24/09/2023 16:51

@nochangeever i wouldn’t say DD’s Etsy work is painstaking or backbreaking 🤣. She designed some keyrings, ordered them in bulk from China, and then listed them for sale (with my help). So now they are listed, she has to print a label and put it in a Jiffy bag for me to take to the post office, once in a while.

OP posts:
Booksandwine80 · 24/09/2023 16:52

elkiedee · 24/09/2023 16:50

That's an awful situation. Has your family member sought benefit advice and/or help appealing this decision? What do her doctors say and would they be able to support such an appeal. Has the situation changed in any way that would mean that they should look again, for example if her health/prospects have become worse.

That decision is unfair, but the op and her daughter are not taking the money off your relative.

They have tried every avenue. It makes me sick that she is having to use a food bank and switch off her boiler to make ends meet.

BlueLines81 · 24/09/2023 16:52

@Booksandwine80 are you for real? Are you saying people on PIP shouldn’t be able to have any kind of social life or buy a small gift for their parents and sister at Christmas?

OP posts:
MeinKraft · 24/09/2023 16:52

I don't see a problem really OP, she's got some personal spends, you get the bills covered, both of you are happy with this so it sounds like a good solution all round.

When she's awarded the UC she might be eligible for funding from the Open University which might be a good option for her if she wants to continue studying at home, if you feel she would be able. Might give her something to work towards and a sense of achievement, soften the blow of the driving thing maybe not happening.

TravellingSpoon · 24/09/2023 16:53

Booksandwine80 · 24/09/2023 16:50

Presents for other people and social activities….you’re really not helping us to feel sorry for her😩are you really that tone deaf?

Because disabled people shouldnt be able to engage in social activities? Should they all be locked up in isolation FFS?

nochangeever · 24/09/2023 16:54

BlueLines81 · 24/09/2023 16:51

@nochangeever i wouldn’t say DD’s Etsy work is painstaking or backbreaking 🤣. She designed some keyrings, ordered them in bulk from China, and then listed them for sale (with my help). So now they are listed, she has to print a label and put it in a Jiffy bag for me to take to the post office, once in a while.

🤣

My relative’s is on a much bigger scale. She works extremely hard for very little gain. It’s her life though.

MeinKraft · 24/09/2023 16:54

@Booksandwine80 haven't you got anything better to do, like read the Daily Mail or watch GB news?

Booksandwine80 · 24/09/2023 16:55

BlueLines81 · 24/09/2023 16:52

@Booksandwine80 are you for real? Are you saying people on PIP shouldn’t be able to have any kind of social life or buy a small gift for their parents and sister at Christmas?

Yea I am for real-when someone I love is unable to work due to the harrowing effects of cancer treatment yet is not entitled to a penny. We have helped all we can but there is no more in the pot. Christmas gifts are a long distant memory-she can barely afford a small chicken for a Christmas dinner let alone presents