Quite long so please bear with me.
I really don't know what to do anymore.
I have 2 kids with SEN, one sort of sleeps normally the other survives on about 2 hours of sleep a night.
In total I have 4 kids, 2 under 2.
And these 2 with SEN who are 6&9.
We cannot get to the school on time, simply because he just cannot get up in the mornings. I am shattered, he is shattered the hole house is shattered.
School are really unhelpful and are constantly on our case to improve attendance. They are aware both children are fully diagnosed with numerous conditions. The biggest one to affect them is the ADHD.
We have tried 4 different medications from CAMHs and The gp. None have worked.
When he's up at night he needs to be supervised as the possibilities are endless on what he could get up too.
I then struggle to motivate myself around the house and have to live by strict routines to function.
We used to live on the school road and was late daily, we then moved 20 minutes away and are now even more late.
School have now reduced the gate time they have to be in school by so now we are even later than before
.
My child constantly falls asleep in the class room and is behind and functioning at reception age. They hate school because they can't do the work, they receive no help as there's no funding for a 1-1 and the EHCP was recently rejected! We are appealing this.
I am just lost. I have tried to move them schools but no school is willing to take them on without firm EHCP's.
I feel like the worlds shittest parent.
I'm fed up of the sarcastic comments from the teachers about persistent lateness but what am I meant to do? My child is sleeping maybe 2/3 hours max in a 24 hour period and when they evetunally fall asleep around 4-5am they then cannot get up for school.
I have tried and tried, on top of this we don't drive so have to rely on busses, if there's traffic we are late again.
The attendance for the pair of them is terrible currently below 80% because more often than not I simply cannot wake them up for school so they miss it.
I have had Respite breaks, Social workers involved trying to help which they was good but as no issue with my parenting or partners or safeguarding they've closed the case and said school need to just get on with it.
I've had portage workers trying to install good sleep patterns in for the kids which obviously doesn't work.
Physiological therapists trying to help.
I've tried so many medications and gummies but nothing.
Camhs have now said they will discharge us as there's no more help we can have.
And on top of it the SENCO in the school is useless. They put in things in place to help manage behaviour then remove them or simply send them home or out the classroom. I feel like I am banging my head against a brick wall and I just don't know what to do anymore.
CAMHS have now said they think the child with the big sleeping issue will simply be one of them people who don't need much sleep.
I just feel so lonely with it all. The school they are at, is the best in the borough and very prestigious but it's just not working for them and I feel so sad that it just doesn't work for us. If your child is fine and has no SEN issue they go to school fine and enjoy it and leave with good grades.
Children with SEN seem to Fail here. On a local forum for parents of SEN kids this school came out terrible for us all.
I don't even know what the point of this post is really just need to offload and ask do you think I should try and really push again to move schools somehow? Or has anyone been in this situation and it's improved and the school have been understanding? I feel like they don't take in any of the things I am saying and simply see it as well other parents get there kids in so you can too. But my argument is I don't know anyone else with kids who have 2 hours sleep a night and are so tired they are almost comatose in the morning unable to move! Let alone get up and get dressed and out the door.