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To ask what the hell to do about my leaking arse!

498 replies

alittlebitembarrassing · 03/01/2022 22:25

Exactly as the title says. Very crass but it is a literal pain in my arse and I’m starting to feel very unwell.

Backstory: I have inflammatory bowel disease and have had my large intestine removed. I had a stoma for 10 months and then a reversal surgery joining my small intestine to my rectum. I have mild proctitis left in my rectum.

A week ago, my anus started itching and leaking fluid. It has been getting worse and worse to the point I am leaking through my underwear to my clothes, I am uncomfortably wet all of the time and it is so painful to go to the toilet that I almost vomit from the pain and am just living by having cold baths.

The leaking is mucous, I’ve developed wounds on my bum cheeks from the dampness, and it is mixed with blood and green pus.

I developed abdominal pain with it two days ago so went to A&E who were useless, have referred me to gastro (no idea how long that will take), and told me my infection markers are raised so gave me antibiotics. Nothing else.

Today I have been on off sleeping and am feeling feverish and unwell in myself. When I was at A&E my heart rate was 120 and my blood pressure was high, but they said they weren’t concerned.

I am leaking massively to the point it’s not even just damp it is like water is pouring out of me.

I don’t want to waste another 8 hours in A&E to be sent home, but I’m feeling unwell in myself now, I can’t go to the toilet properly because it absolutely kills.

What do I do?!

OP posts:
QOD · 04/01/2022 16:16

thats just not right, i am so sorry

Migrainesbythedozen · 04/01/2022 16:29

Good on you for persevering, it sounds very unpleasant. I hope doctors treat you more seriously.

Walking4You · 04/01/2022 16:37

I hope you will feel better soon @alittlebitembarrassing

FlowersFlowers
and
((hugs))((hugs))

LucyAutumn · 04/01/2022 16:51

Gosh OP this sounds horrendous, I can't believe they sent you home the first time round. Really hope things get sorted out properly for you x

rrhuth · 04/01/2022 16:57

I hope you get some help now.

Sadly now the Tories have absolutely fucked the NHS over you have to go back until someone finally caves in and helps Sad

You don't have to update but itw ould be lovely to know that you are OK Flowers

NewYearCalavicci · 04/01/2022 17:03

I have been following your thread @alittlebitembarrassing , I am glad you managed to get yo A&e and get seen quickly.
I really hope that they manage to get you back on the road to recovery quickly .
Flowers

Pancakeorcrepe · 04/01/2022 17:16

Omg you poor thing, that sounds awful.
I’m glad you got to the hospital and hope you are on the mend now. Get well soon!

spiderlight · 04/01/2022 17:47

I really hope you're in a better state now, OP. Hoping for a positive update when you're well enough Flowers

Andouillette · 04/01/2022 17:47

@rrhuth

I hope you get some help now.

Sadly now the Tories have absolutely fucked the NHS over you have to go back until someone finally caves in and helps Sad

You don't have to update but itw ould be lovely to know that you are OK Flowers

Iterestig. So who do you blame for the catatrophic failures in Scotland, where health is fully devolved and has been for decades?
MrJollyLivesNextDoor · 04/01/2022 17:50

Hope you're feeling better OP

FawnFrenchieMum · 04/01/2022 17:53

From a fellow IBDer sending very gentle hugs. Hope you are ok and getting the help you need. Please try and get the contact details for your IBD team or secretary for future.

Billben · 04/01/2022 18:13

How on earth do you not have an IBD team???

I have Crohn’s and I have my team at the end of the phone any time I need it. In fact, sometimes I simply communicate with them through an app on my phone. They monitor the app (I can put my daily bowel movements, symptoms etc on) and contact me when they think I might be going into a flare. With such major operations behind you, just because your surgeon has discharged you, you don’t stop to become their patient. My last operation was 3 years ago, but I’ve just had a call from my surgeon the other week because I’ve been having symptoms and my gastro consultant contacted him for a heads up. If I was in your shoes I would be going to my GP and asking them to contact my surgeon (or his secretary) and refer me to a gastroenterologist pronto.
Wish you lived in Worcestershire. They really can’t do enough for me here.

TheUnquestionedAnswer · 04/01/2022 18:18

Hoping that they are sorting you out OP. I second what @Billben said. You should have been given contact with the IBD Clinic. Best wishes.

MissPeregrine · 04/01/2022 18:30

Hope you’re going ok OP? Flowers

Agree with @Billben you need a direct number to your IBD team for future complications, although I do have a number to my IBD nurse I don’t have an App @Billben.

Really hope you get the help needed OP, please keep us updated Flowers

MissPeregrine · 04/01/2022 18:31

*doing ok not going!

Nidan2Sandan · 04/01/2022 18:38

I cant quite believe there are actually people on her telling a very unwell, frightened, in pain human being that she shouldn't call an ambulance!!

What the hell is wrong with you!!! Angry

CaMePlaitPas · 04/01/2022 18:45

This is awful, I really hope you're OK OP x

BrutusMcDogface · 04/01/2022 18:48

Dear god, I hope you’re ok. Glad you’re in hospital now being treated 🤞 💐

SaltedCaramelIcedLatte · 04/01/2022 19:04

Hope you are okay and getting the care that you need x

CottonSock · 04/01/2022 19:12

Wishing you a speedy recovery. This sounds awful and I have a leaky bottom myself (without the complicated history, but I do need it looking at). I've been putting it off for ages myself but got onto the waiting list again recently.

gggrrrargh · 04/01/2022 19:54

Thinking of you, hope all is okay and you’re being looked after Flowers

JaneyJimplin · 04/01/2022 20:16

Hope you're getting the help you need op Flowers

SleevedOff · 04/01/2022 20:44

I hope you are doing ok.

RantyAunty · 04/01/2022 21:07

OP thinking of you and hoping they've found out what was wrong.

Flowers
Nothingfallingdowntoday · 04/01/2022 21:09

Wishing you a speedy recovery.

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