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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To feel absolutely devasted.. So much pain!

155 replies

RubiconGuava · 27/02/2021 07:03

3 trips to A&E with serve stomach pain possible endometriosis bladder retention (from separate on going issue) swabs taken from GP to send off then maybe consider gynaecologist referral.

To be told deal with it at home won't be doing nothing for me at hospital..
Go and see my GP.

Just spent 6 hours in A&E throwing up.

I cannot cope at home with pain and throwing up taking care of kids.

This is really effecting my mental health and I honestly can't do it anymore.Sad

Please any advice and experience!

OP posts:
mrsjoyfulprizeforraffiawork · 27/02/2021 10:39

Better a catheter than sepsis or renal failure

This ++++

I had a blocked and infected kidney (infected by backed up urine which became infected) and was very ill indeed. It never recovered and I now have only one kidney.

Chewingle · 27/02/2021 10:40

[quote BearEastie]@Chewingle She says she has bladder retention in her first post.[/quote]
No.

“Possible” bladder retention

Chewingle · 27/02/2021 10:41

@Multicover

I did read the thread
No diagnosis
And OP says “possible” bladder retention

Multicover · 27/02/2021 10:44

[quote Chewingle]@Multicover

I did read the thread
No diagnosis
And OP says “possible” bladder retention[/quote]
Nice try love.
Possible endometriosis.
Bladder retention requiring catheterisation.

Let’s just hope you’re not an HCP.

sunflowersandbuttercups · 27/02/2021 10:44

@Calledyoulastnightfromglasgow

You poor soul. Men would never be allowed to suffer like this
OP was offered medical treatment but refused it and walked out. The hospital can't lock her up and force her to be treated.
mrsjoyfulprizeforraffiawork · 27/02/2021 10:44

Should have said, kidney emptying was blocked by a growth from my gynae system which had got big enough to interfere with it, which may be your problem here so PLEASE GET THE CATHETER PUT IN!!

Chewingle · 27/02/2021 10:56

* possible endometriosis bladder retention*

I read that as possible bladder retention as a result of endometriosis.

I’m not in anyway related to healthcare. Therefore I don’t give medical advice.
The same can’t be said for others!

JesusAteMyHamster · 27/02/2021 10:57

Have you got Fowler's syndrome ?

Kintsuji · 27/02/2021 11:05

@RubiconGuava

3 visit in 3 days. Nobody's care! Covid gone to there head. I do not fuxking no.
Unfortunately covid or no covid this is how chronic pain sufferers are usually treated by A&E and various medical professionals. I've wanted to die just to escape the pain. It's usually put up and shut up. If you have a good gp they might be a more productive option.
Multicover · 27/02/2021 11:09

‘I’m not in anyway related to healthcare. Therefore I don’t give medical advice.
The same can’t be said for others!’

Shock And yet here you are merrily telling someone that what they’re experiencing is not a medical emergency Hmm

Scarlettpixie · 27/02/2021 11:13

Walking out without a catheter (and probably anti sickness meds and pain relief) was not the best move OP. I know you are fed up but not taking the help on offer (because they cannot offer you a complete fix) really is cutting your nose off to spite your face. I hope you are ok.

TheyIsMyFamily · 27/02/2021 11:18

OP may have declined to go home with a catheter, but many would. It should be done there and sorted.

I agree with the poster who said men would never be treated this way.

sunflowersandbuttercups · 27/02/2021 11:25

@TheyIsMyFamily

OP may have declined to go home with a catheter, but many would. It should be done there and sorted.

I agree with the poster who said men would never be treated this way.

But they can't force treatment on people. OP chose to leave - what were the doctors supposed to do?
Hubstar · 27/02/2021 11:27

I had this for 2 years. Pain so bad I couldn’t walk. I was barely out of bed. Every time I went to my a and e. They kept telling me it was my gallbladder and to go see the GP. GP kept telling me I was too complex for them. (I have 3 incredibly rare diseases). So I was stuck.

If gone to the local hospital. Was seen by a triage nurse who told me to go home. So I did. Spoke to a friend who said you need to try another hospital. So we drove 45 mins to the one in the next county. The first thing they did was try to send me hone. If had blood clots before and said it felt like that. I finally saw a de who said it was probably like chest inflammation. I knew it wasn’t.

To cut a very long story short. They asked me if I’d ever been scanned. I said no. The dr was so shocked he asked me 3 times if I was sure. I said no. Never been scanned

When they scanned me. They found multiple problems. I had dilated ducts everywhere for started. Enlarged liver. Enlarged kidneys. Enlarged spleen. Scarring on my spleen which was prohibiting it working correctly. (Which shown up in bloods but they didn’t bother to tell me!!) they just dismissed it.

It took a good year to sort it out. They didn’t know why this had all happened. But the fact it had been going on for so long had made it a lot worse.

So anyway. One of the drs said to me. If you cannot ha for the pain. Go to a and E. a good dr would never send a patient in extreme pain home. Just keep saying you’re in pain. Whatever they give you. If it’s not working. Say that! Pain control is and A and E problem.

HoppingPavlova · 27/02/2021 11:29

The doctor wanted to send me home with the catheter, I no its not the smartes idea to just leave with 500ml of urine in me but the doctor could not of cared less

Sorry, I don’t understand what you mean here?

You went in, was given a gynae referral for root cause management, they gave you something to stop the vomiting (an IV med to work immediately), they did bloodwork to ensure no immediate danger, they gave you something to take home to assist with the pain (Oro-morph), they wanted to catheterise you to also address immediate issues but you refused and left. You are now unhappy and claim they do not care about you or are not doing their job, it’s not entirely clear?

They did so the job they are meant to do as A&E is for immediate treatment required, not longer term. You would not let them finish their job. You are now upset. I am baffled.

The 6hr wait is not that bad actually. If you look at it as there were 5hrs worth of patients worse off than yourself you can then swing your thinking around to the fact that you are doing pretty well. If you are someone who is seen/dealt with immediately it means you are bordering on being pretty touch and go.

HoppingPavlova · 27/02/2021 11:32

OP may have declined to go home with a catheter, but many would. It should be done there and sorted.

From what the OP said, that’s exactly what they were trying to do but OP refused. You can’t just go around banging catheters in patients who are refusing. That’s assault. What exactly do you want them to do when patients refuse treatment?

Chewingle · 27/02/2021 11:32

@Multicover

‘I’m not in anyway related to healthcare. Therefore I don’t give medical advice. The same can’t be said for others!’

Shock And yet here you are merrily telling someone that what they’re experiencing is not a medical emergency Hmm

Nope Her doctor clearly doesn’t think it’s a medical emergency Indeed normal obs and normal bloods rather supports that

And fact that Op refuses medical care would perhaps indicate she doesn’t think quite the emergency conveyed in this Op

What I don’t like it botching about the doctor and hospital when they performed tests, she saw a doctor, was offered treatment

But declines and then starts a thread complaining about the care she has received

Erkrie · 27/02/2021 11:43

.

To feel absolutely devasted.. So much pain!
Crossandcrochety · 27/02/2021 12:06

@Porcupineintherough
The OP was offered treatment for the immediate, and urgent issue that was appropriate to be dealt with in A&E. She refused it.
Even the Queen would be referred on from an A&E department. Though of course would be seen privately.

LemonCrab · 27/02/2021 12:11

I'm very sorry you're in so much pain.

But if you acted in A&E the way you're talking in your posts then I can understand why they were glad to see you leave.

You're not helping yourself.

MintyMabel · 27/02/2021 12:13

It's the covid only nhs at the moment

It isn’t. DD is having an elective surgery in two weeks, and has had physio and orthotics appointments. OH has been treated for an infection in his elbow and was at minor injuries for a toe injury. I had a gynae appointment in January.

Different areas are managing different things, it’s dangerous to tell people unless they have Covid they won’t get treatment.

youvegottenminuteslynn · 27/02/2021 12:19

Different areas are managing different things, it’s dangerous to tell people unless they have Covid they won’t get treatment.

I agree with this completely.

Porcupineintherough · 27/02/2021 12:50

@Crossandcrochety of course, but how long do you think the queen would have to wait between appointments? About 20 min.

Porcupineintherough · 27/02/2021 12:55

It's the COVID only NHS at the moment

And yet my friend is going in for a mastectomy on Wednesday. Lump detected just before Christmas. My godmother had a heart attack in Jan and was admitted and treated straight away (she did catch COVID in hospital mind). Friend's dad is currently in being treated for a stroke.

Its dangerous crap to tell people that no health care is available. OP is just unfortunate in having a gynecological problem which is a chronically underfunded part of the service with unacceptably long wait times.

fightingSmiths · 27/02/2021 13:20

It's the COVID only NHS at the moment

In some areas it is. Nothing is happening., I even had an urgent cancer referral (gyne) rejected in lieu of a 5 months wait for a phone appointment. Simple ultrasounds have waiting lists of at least three months. You cannot see consultants face to face. It's absolutely dreadful round here (NW).

Glad to see that others can access treatment but it is absolutely not the case across the board.

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