To feel absolutely devasted.. So much pain!

[RubiconGuava]

3 trips to A&E with serve stomach pain possible endometriosis bladder retention (from separate on going issue) swabs taken from GP to send off then maybe consider gynaecologist referral.

To be told deal with it at home won't be doing nothing for me at hospital..
Go and see my GP.

Just spent 6 hours in A&E throwing up.

I cannot cope at home with pain and throwing up taking care of kids.

This is really effecting my mental health and I honestly can't do it anymore.

Please any advice and experience!

If they offered a catheter that’s what you should have had. It’s horrible when you’re in pain and it can make you completely off the wall with rage - been there, got the T shirt (I have chronic long term debilitating health conditions including lupus and a pituitary tumour) but if the hospital suggested a catheter you must have really needed it.

If you can afford it somehow (even getting a 0% credit card) I would go privately for scans etc. Just contact your nearest private hospital and speak to the receptionist and say you want to self fund and they should be able to help.

Oh you poor thing. You really should have accepted the catheter. I hope you can be seen again and get some relief.

You refused the appropriate treatment plan, so the doctor was correct, you were refusing treatment. If your in retention catheterisation would have relieved that pressure on your bladder and your kidneys and eased the pain considerably wouldn't necessarily fixed the root problem but eased the pain somewhat.

My df has prostate cancer he had permanent catheter insitu and has stents put in place its not place it hasn't been pleasant for him but he was in retention prior to his diagnosis.

Could GP / urgent care help with a catheter? Would it require re-admission? Maybe OP can avoid further urgent admission

I am annoyed by this thread

You were offered medical treatment
You declined
You are not bitching about a doctor not giving a damn

now

Take a deep breath and regroup OP. Why did you refuse the catheter? You need to prep yourself as best you can for an urgent call to your GP, outline the issue, your mood, and ask for acute pain relief as well as urgent referral for a scan, and prepare for the fact you will be advised to rest and a&e, wait again and be catheterised.

You won't feel like this forever but now is the time to behave rationally. If you can find someone (friend, family) to advocate for you then let them help, they can speak to your GP with your permission if you are not able but this needs sorting or you won't get relief.

you dont have to go privately op.
get your urinary retention sorted out
dont take your vomiting to A & E

Definitely get the catheter if you haven't already, OP. I'm a bit that you left without it, tbh.

A&E is for what it says - accidents and emergencies. Unless it has a sudden onset, urinary retention is not an emergency, and they were willing to deal with this by giving you a catheter.

I know (all too well) how awful it is to have to live with chronic pain, but it's not an emergency and they gave you pain relief. You really need a gynae referral, and if you can't wait for the appointment, scans etc, you can see someone privately.

The initial consultation is not that expensive, and if you see a consultant who also works in the NHS and is prepared to treat you on the NHS, it can save the waiting time for an NHS appointment.

Your GP will prescribe you pain relief to help in the meantime. Ooh GP can send an electronic prescription to your nearest 24-hour pharmacy if you need it now.

Waiting times are dreadful, partly because for months they weren't doing any non-urgent stuff because of Covid, so the waiting list got longer and longer, but also because of ten years of austerity and under-funding. We're back to where we were in the early-90s, when I waited 2 years to see an ENT consultant and another 2 before I had surgery.

I just hope people remember this come election time.

Urinary retention is very serious. If you’re not passing urine, go back NOW.

To go privately, find a local private hospital google is your friend. Call them and ask if they do gynae referrals. If they don’t they will probably be able to tell you who does. Ask for an appointment. Call your GP and tell them you need a referral letter.

You poor thing OP. People saying why did you leave etc haven't been in severe pain before . When you're in so much pain you do things you wouldn't normally as it's difficult to think straight.

Try looking up some private gps as they may be able to diagnose you quicker and get the ball rolling whilst getting some pain relief too, it sounds like you need fairly urgent treatment in the meantime too though so don't wait at the detriment of your well being, have you got anyone else who can stand your ground on your behalf?
Some online doctors are about £100 an appointment which for me would be worth it. Once you get the ball rolling I find the nhs starts to work a little better, private scans are often not too expensive either and you get results so much quicker although I haven't had any since pre covid. I have paid for private doctors recently though and there are a few good online ones too.

People just shrugging their shoulders saying oh it's the nhs as if that's ok, it's really not. Everyone should have access to the healthcare they need.

@LakieLady

Definitely get the catheter if you haven't already, OP. I'm a bit that you left without it, tbh.

A&E is for what it says - accidents and emergencies. Unless it has a sudden onset, urinary retention is not an emergency, and they were willing to deal with this by giving you a catheter.

I know (all too well) how awful it is to have to live with chronic pain, but it's not an emergency and they gave you pain relief. You really need a gynae referral, and if you can't wait for the appointment, scans etc, you can see someone privately.

The initial consultation is not that expensive, and if you see a consultant who also works in the NHS and is prepared to treat you on the NHS, it can save the waiting time for an NHS appointment.

Your GP will prescribe you pain relief to help in the meantime. Ooh GP can send an electronic prescription to your nearest 24-hour pharmacy if you need it now.

Waiting times are dreadful, partly because for months they weren't doing any non-urgent stuff because of Covid, so the waiting list got longer and longer, but also because of ten years of austerity and under-funding. We're back to where we were in the early-90s, when I waited 2 years to see an ENT consultant and another 2 before I had surgery.

I just hope people remember this come election time.

I hope people remember this, come election time.

For the most part Labour have supported much of what the government has done. Covid has happened, yes mistakes have been made but other countries haven’t done that much better on the whole. And don’t compare us with Australia or New Zealand FFs. Their situation is entirely different.

So you had obs and bloods done which you say were normal, an antisickness injection, strong pain killer (oramorph), seen by a gynae doctor and they wanted to do further treatment (catheter) and you walked out and are now complaining about them? Wow. What more did you want them to do?

I just looked at your other post for more information and see that you had another nighttime A&E visit. Is the pain also there during the day? Have you seen your own GP about it?

So sorry you're going through this op. Imagine the queen being treated this way. We should all be treated the same regardless of wealth and privilege. Unfortunately it'll get worse.

@seashells11 I’m no royalist, but I can’t imagine the Queen refusing treatment and walking out.

@seashells11

So sorry you're going through this op. Imagine the queen being treated this way. We should all be treated the same regardless of wealth and privilege. Unfortunately it'll get worse.

What on earth does the Queen have to do with it? OP you really ought to go back for a catheter, the relief will make du jour a difference to the pain.

You're going to have to go back.

OP LISTEN.
Block out all the white noise about baby bond scans, governments and covid.

If you were offered a catheter and refused it, you have put yourself at inmediate risk of serious medical harm.
You need to get yourself into a calmer head space, go back to A&E and have a catheter fitted. It’s a simple procedure and will give you IMMEDIATE relief from pain.

There are thousands of people in this country who self manage catheters and lots of support for those who do.

This then means that you can start to function more clearly and your GP can refer you for investigations to find any underlying causes.

People on this thread need to recognise that this is a deeply distressed woman and now is not the time for political rantings or random bull about private referrals.
THIS IS A MEDICAL EMERGENCY.

What did you want from them?

They did bloods to check for infection. You saw a gynae doctor. They offered you a catheter which would likely help your symptoms and at that point you walked out?

They haven't offered you nothing, its you who walked out.

If you had the catheter then the district nurse will come out. Also you are seen in urology quickly as you need a twoc.

Hope you're ok op

@Crossandcrochety the point is that the queen would be offered actual treatment then and there. Not patched up in and told to add herself to the end of a waiting list for a scan and just to put up with the pain because it's not important.

It should not be acceptable that people are left like this for months and months and it's not a new (covidrelated) thing. It's something we've all been trained to accept because the NHS is beloved and therefore the standards of care we receive cannot be challenged.

@seashells11

So sorry you're going through this op. Imagine the queen being treated this way. We should all be treated the same regardless of wealth and privilege. Unfortunately it'll get worse.

To be fair, she’s been offered pain management, a gynae referral and symptomatic relief . That’s about all they can do - they can’t exactly admit her and whip straight off to theatre for a diagnostic laparoscopy .

It isn’t a surgical emergency, most people are better off at home in their own bed with oral pain management . I say this as someone who’s been admitted to gynaecology 20 odd times with pelvic pain and retention (I have endo, PCOS, adhesions, and Fowler’s syndrome) - you’re better off at home . All the hospital would usually do is administer oramorph and antisickness, sometimes a bag of IV fluids - you go home shattered from lack of sleep and an outpatients referral ! Better off at home in your own bed, own food, own shower - less chance of infections and more chance to relax which will also help with pain management .

Go back, get the catheter, get some painkillers, go home, snuggle under the duvet with a hot bottle, crap TV and a deliveroo, and ring GP on Monday .

@Multicover

OP LISTEN. Block out all the white noise about baby bond scans, governments and covid.

If you were offered a catheter and refused it, you have put yourself at inmediate risk of serious medical harm.
You need to get yourself into a calmer head space, go back to A&E and have a catheter fitted. It’s a simple procedure and will give you IMMEDIATE relief from pain.

There are thousands of people in this country who self manage catheters and lots of support for those who do.

This then means that you can start to function more clearly and your GP can refer you for investigations to find any underlying causes.

People on this thread need to recognise that this is a deeply distressed woman and now is not the time for political rantings or random bull about private referrals.
THIS IS A MEDICAL EMERGENCY.

This.

I feel for you OP, it must be terrifying to be in so much pain, but you really need to go back.