To leave ds

[Hockeyboysmum]

Long story short my 8 week old son is in hospital. We have been here for 11 days now and also had a few days stay a few weeks back. I cant cope. Ive now not slept a wink in 72 hours. He screams all night. When we here before the nurses etc said i couldnt go home for a night and leave him. I stayed this time because i thought he needs me -he doesn't he hates me. I cant take anymore. If he doesnt get home tomorrow aibu to go home for the night without him? Hospital locked down ao cant go out for a walk or anything and no one can visit so havent seen older son

I hadn't seen this thread till just now but just wanted to say it sounds like you're coping amazingly and your Ben is gorgeous

I wouldn't worry too much about things like tracking yet but you should find going forward that his development is more closely monitored because of hydrocephalus, so that you can get early access to physio, opthalmology etc, just because early intervention can make a big difference should problems arise.

@Hockeyboysmum please feel free to pm me - i have a 4 year old with a number of conditions including hydro.
We spent 8 months in icu & I didn’t spend every waking moment there.

You’re doing a great job

Having a newborn is tough enough without health complications, Covid and an absent father. You are both survivors and I'm certain you'll get through this tough time. Sending you hugs and courage. Your baby boy is beautiful and lucky to have you. These little ones are resilient, try not to feel guilty when you need a break!

@OP Only just noticed your thread but I wanted to add that you are doing a great job in unbelievably tough circumstances. Our DS was in hospital for 8 weeks after he was born and we got to stay in Ronald McDonald accommodation, but it was still fucking awful.

I actually found it worse in a way coming home as I was so used to the nurses being my back up, and I found it overwhelming being at home with him.

So, nothing particularly helpful to add but do be kind to yourself and take your time to adjust to this new normal with your little one. He is absolutely scrumptious! Wishing you all the best

@Hockeyboysmum

How are you & the boys doing now?

How have you coped in LD?

Ben is gorgeous x

We're ok thanks. You?

Its not been easy bur we're getting there. Appts started for ben so getting eyes and ears tested and physio etc.

Getting big

Ah, he’s gorgeous. Hope things are a bit easier for you now.

He is lovely! Fingers crossed for you

@Hockeyboysmum I have only just seen this thread but couldn't go without posting.

Your baby is so beautiful and it looks like you are both home now?

I'm sorry you had such an awful time and I am glad things are getting a bit better

Thanks yeah both home and hopefully no more stays for a while. Ben is 18 weeks old now and progress is slow but it is there.

Can you get to canteen or get your Mum to send you in food parcel? If not tell staff you are having a couple of days off to see other child and sleep. Before you go back do s shop, buy fruit, raisins, nuts snack bars and get multivitamin s too. Your baby does not hate you and needs you but you need a break and recharge. Do sorry your little baby is sick.

Oh he is gorgeous, Hockey

He's beautiful, OP. I hope all goes well for the three of you.