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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think people with eupd aren’t taken seriously when struggling

219 replies

User30372 · 12/02/2020 10:02

A friend of mine has repeatedly told professionals that she didn’t feel safe and was going to do something. She’s now seriously unwell in hospital and I just feel if people listened to her she wouldn’t be in that position. I’m sure she will be sent back into the community despite this. I know inpatient care isn’t the answer to everything but surely for someone at such high risk it should be considered not dismissed due to a diagnoses.

OP posts:
itsalmostspringagain · 13/02/2020 21:50

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treesandrocks · 13/02/2020 21:58

@itsalmostspringagain Is it really necessary to be so nasty? Not a single person on this thread, whether with a mental illness or not, has lowered themselves to make such unkind and ignorant comments for no reason at all. @underthecedartree has made useful and informed comments throughout, I know who most people would rather spend time with.

CandyCaneLeBonBon · 13/02/2020 21:59

Jesus Christ @itsalmostspringagain
Back off would you?

If you were talking about people of colour, or women, your comments would absolutely be considered racist or sexist. Wind your neck in and dial down the goadiness.

UndertheCedartree · 13/02/2020 22:01

@itsalmostspringagain - you really are a nasty piece of work Sad Do you ever think about how your words affect others?

Mulledwineinajug · 13/02/2020 22:03

Still waiting for someone who has a parent, sibling or partner with EUPD to come here and share what a joy they are to live with and how their lives have been enriched rather than ruined by the experience

I had a close friend with BPD. We had a healthy and balanced friendship.
My life was enriched by knowing her.
She taught me a lot.
She was caring and brave.
She isn’t here any more. And she is much, much missed. Her family say so too, as they did when she was alive.

And yes, I do know people who have recovered from BPD.

Mulledwineinajug · 13/02/2020 22:05

Why are you being nasty almostspring? The person with EUPD here is responding calmly and reasonably, respectfully and politely to you.
Yet you are making personal, unpleasant remarks and sweeping statements that are not backed up by anything more than prejudice. It’s kind of undermining what you’re saying.

itsalmostspringagain · 13/02/2020 22:08

Mulledwineinajug my sincere condolences for your loss.

UndertheCedartree · 13/02/2020 22:09

@Mlou32 - I think it's because I have come across ignorant comments where people have equated 'disorder' to just bad behaviour rather than understanding the complexities. In describing it as a mental illness it makes some people realise how serious it is. In my mind an illness can be cured, too. But I understand your point which can apply to lots of mental illnesses. Like schizophrenia - when not having a psychotic episode someone can be relatively much less unwell. Do they still have an illness?. It is an interesting debate.

UndertheCedartree · 13/02/2020 22:11

@Mulledwineinajug - I'm sorry to hear about your friend. I have friends with EUPD who really enrich my life too.

Mulledwineinajug · 13/02/2020 22:13

almostspring thank you.

Of course there were aspects of her illness that were difficult. Really difficult. I truly believe that she suffered more than anyone around her.
I think it would have been just as difficult to live with if she had had a serious physical illness, which impacts people’s personality and behaviour. Leads to long stays in hospital. Causes them and others pain.

My friend was a good person. She tried with everything she had to get better. She wasn’t manipulative. And her illness wasn’t who she was.

Mlou32 · 13/02/2020 22:24

@UndertheCedartree I think the difference is that while folk with schizophrenia may function relatively well when not in a period of crisis/experiencing highly distressing psychotic phenomena, it is still generally a lifelong condition/illness. Whereas with EUPD, after receiving input (and even without receiving input), a majority of those with this diagnosis no longer meet the diagnostic criteria after 5+ years.

ffswhatnext · 13/02/2020 22:30

I've done dbt and Stepps. Didn't help.
I hear voices in my head.
I hear other things that aren't there.
I see things that aren't there.
I don't attention seek. As part of my sh I avoid lots of medical interventions.
I have tried to commit suicide. Unfortunately, I was found each time. I told no-one of my plans, nor did I call for help.
Now I'm in my 40's I understand it more, and I can recognise the same things I still do now, started very early in childhood.
It's not just about triggers. I can go from laughter to homicidal within seconds, and back to laughter.
Getting medical intervention is also hampered by a lack of trust. One medical person says the wrong thing and I withdraw again.

I scored 8 or 9, and the wording pissed me off and I made loads of comments on each page lol. Hate tick boxes.

KilljoysDutch · 14/02/2020 00:48

@itsalmostspringagain my daughter is 16 not young at all and we've always been close. Her boyfriend is envious of our relationship and wishes he was as close with his mother. I saw how my mother treated me and I went in the opposite direction. She has no diagnosis of mental health conditions either. Just wasn't prepared to be my mother. I don't blame her.

But you have made up your mind about people you know nothing about and judged them to be monsters, where as many of us on this board are trying to reach out and help you understand while accepting that some people with EUPD can be that way. I Think in the end that alone shows who the real monsters are.

PacmanPants · 14/02/2020 02:13

I think EUPD runs in my family and I might have it too, but we are undiagnosed.

My father was terribly physically abused by his father and for his whole life struggled with emotions, I witnessed his domestic violence against my mother and a subsequent partner. He made me witness him taking an overdose when I was a teenager (very traumatic as part of the event was in public). He was sectioned and I found visiting him very traumatic too. I blamed myself for twenty years that it was my fault that he wanted to die and he would kind of exploit that by threatening or attempting suicide when he wanted me to enable him (he has an alcohol and painkiller addiction so he would threaten suicide and I’d bring him drink/pills). I slit my wrists at 18, I was carrying the burden of guilt that my dad wanted to die but my parents never acknowledged it and to this day seem to have never noticed my wrist scars? Despite my dads violence he also presents as quite weak and incapable for a man, very needy.. so I feel sorry and responsible for him.

In recent years I found out that my dads father would take overdoses in front of the family and actually died from overdose in the 70s. I was never told this information and i feel that if I had only known this then I may have not carried so much of the burden of my dad’s suicidal activity myself.

My dysfunctional childhood led to quite out of control behaviour, I was a people pleaser and a caretaker of others but also a risk-taker, chasing sexual encounters at 14. I was in a relationship with a boy from 15-17 where the boy was violent to me and also sexually abusive, I was sent to stay with this boy when the DV from home was at its worst. We did not have separate bedrooms and lived like a man and wife at the age of 15, I could not escape from the sexual stuff. Obviously I was an easy target as parents were preoccupied. I developed an unhealthy relationship with alcohol at a young age. I still have no off switch. I also spent a few years chasing married men which was horrendous of me but I can only describe as compulsive behaviour.

I now have a stable home life with a fantastic husband and my crazy behaviour has gone, I’ve had lots of counselling which has helped although I still struggle with intrusive thoughts and phobias (I have had EMDR which has helped the intrusive thoughts somewhat). I have a binge/purge attitude to money where I will save and save, use spreadsheets etc and then blow it on a holiday and feel sick with shame. I have a driving phobia, probably because of some of my dad’s drink driving incidents when I was small. I tend to have a very extreme reaction if DH can’t give me a lift somewhere, I take it as a rejection of myself and feel like I’m flawed for not driving and DH doesn’t love me. I used to want to self harm on these occasions but I haven’t for 10 years. I am NC with my dad for the last two years but have been guilt tripped recently by people saying that my dad is crying for me, this has led to some suicidal ideation. I also have ‘running away’ ideation where I dream about disappearing for good.

If you met me, you would never guess any of this. Except most days when I leave the house I cry on my way to the station (for no real reason sometimes). I don’t know how to ask for help, how did others on this thread get a diagnosis? Is it even worth trying now I’m coping a bit better?

weebarra · 14/02/2020 09:51

Notspring - my sister enriched my life hugely. She was such a giving, empathetic, funny person. My DCs worshipped her.
She was very unhappy and she stayed with us as long as she could. Her life was painful to her.
We are broken by her decision but respect her choice. We were so lucky to have her.

Orangeblossom78 · 14/02/2020 09:52

I kind if understand where almost spring is coming from...after that happened with my mum I was given CBT with psychology team (NHS) and when I told her about mum she said I was being 'prejudiced' about he possible BPD...but we go on our experiences....and if we have been personally affected it can leave people very wary and when people like mum showed total lack of insight also, or awareness of others feelings, it is hard not to respond to that also.

It is good to hear that not all are like that, however.

UndertheCedartree · 14/02/2020 20:08

@Orangeblossom78 - I understand where you are coming from and I can understand how your experiences must have been very damaging. But it is very upsetting when someone doesn't just talk about their own experiences but claims to be very knowledgeable about the illness/disorder but then spreads all sorts of damaging unfactual information even in the face of people reasonably pointing out they are incorrect with sources. And then goes on with wild generalisations and personal insults. My exDH has Schizophrenia and I went through hell with 2 young children. But I armed myself with knowledge and saw through the illness to the lovely person inside. Just because of my awful experiences I would never make horrible generalisations or insults to others with the illness.

CandyCaneLeBonBon · 15/02/2020 11:55

Exactly @UndertheCedartree

I have EUPD and I work hard every day to not fall foul of it. I'm a single mum and I love and put my children first. I'm in a stable relationship with someone who understands who I am and gives me space to repair and in turn that respect makes sure I work hard to not allow this awful way of reacting to the world to debilitate me or those I love.

Yes there are are people out there with a eupd diagnosis who don't engage and who spiral into a black hole. Equally there are people who don't have any kind of mh diagnosis who actually CAUSE the problems, willfully and selfishly.. They're the ones who need to be vilified imo. Not their victims.

UndertheCedartree · 15/02/2020 12:23

@CandyCaneLeBonBon - sounds like you're doing amazingly! My DC definitely give me the push to keep trying. They are so important to me and I strive everyday to be a good-enough mother to them. You are right we are individuals and there is good and bad in all groups.

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