Donor consent law is being changed...

[flirtygirl]

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

What do you think that word is short for?

I am on the bone marrow transplant list, I give blood regularly. I’d happily donate an egg to a relative and I imagine I would give a kidney.

However the thought of having my organs removed whilst my body is still on a ventilator really traumatises me.
We just don’t know enough about consciousness and passing on to guarantee the person is a shell at this point.

I think we need to respect peoples boundaries around and appreciate that people are allowed to feel the way they do and ultimately decide what happens to them.

'spaz' is a disabilist term, morning, a vile, disabilist term, but hey, we are the 'ignorant twats'.

I've never heard the word spaz attached to a disability?

I'm embarrassed for you.

I've never heard the word spaz attached to a disability

Why would randomly hitting the keyboard be called a ‘spaz attack’ what is spaz short for?

Spaz is short for spastic...

regarding cuddling a dead body, that's not for me and it's rather fucking weird.

So fucking offensive! There was nothing weird when my 12 year old son at the time cuddled up to his dad's body.

And you don't know what spaz is short for? You are on the wind up!

So morningstress, should we all be forced to donate a kidney while we're alive? After all we only need one. I don't want children, perhaps I should hand over my eggs as I don't need them. Oh and a bit of my liver, it'll regenerate won't it?

Your posts are fucking offensive.

Knowing two little boys who would be physically and utterly dead right now I think it’s vile not to donate. I don’t usually have such strong viewpoints on things but I do actually think I support the not donating? Not receiving! Idea is something I would 100% support.

TheDarkPassenger

Would you really let someone die that could be saved if there was a possible transplant?

two things
1/ That would be vile
2/ No you wouldn't

TheDarkPassenger does that go for grieving relatives too- if you don't donate your loved ones organs you can't get one? Or just the donors themselves?

What if the mum of those boys had signed a form saying "no" on her and there behalf ten years ago, when she'd been having severe anxiety or belonged to a religious group banning it or something?

Or worse someone had signed a form and their records got merged by accident?

Should she and the boys have just died?

Meanwhile someone who's said "yes" but has smoked their way into cancer and drank their liver away is okay in your books?

@smallereveryday "If it's never 'personal' it's not a discussion you will ever need to have" - no, you don't get to tell people that because you want something, they have no choice.

I'm classed as disabled myself with epilepsy!

Just because you're disabled yourself doesnt mean you're not being disablist.

N0rdicStar

I'm sorry you had that experience.

However the thought of having my organs removed whilst my body is still on a ventilator really traumatises me.
We just don’t know enough about consciousness and passing on to guarantee the person is a shell at this point.

This. I used to work on a Renal Unit in a big London teaching hospital (talking about the 1980s) - we were all talking about kidney donor cards one day and one of the consultants showed us his one and said obviously everyone present had one too. It transpired that none of us wanted to have one (3 doctors present and 2 medical secretaries) as we were uncomfortable about someone deciding we were brain dead and keeping our bodies alive to take our organs. I also remember, on same renal unit, that another hospital offered us the kidneys of a patient who had died after a road accident and didn't realise that unless he/she was on a ventilator, the organs were now useless (they weren't on a ventilator but completely dead). I still feel the same even though I have lost one of my kidneys now and, if the other one fails at any time, I would be reliant on a donor transplant (but both my siblings have said they would do this for me and I've no problem with an indisputably live donor, of course). However, like someone upthread, I would be pleased if my (absolutely dead) body could be useful for medical science and so I am also considering leaving my body to medical science - maybe it will help research in the future.

It should always, IMO, be a choice and a gift. We have laws on what can be done with people after their demise for a very good reason, the same way we have a criminal justice system which is, ostensibly, impartial and founded on beyond reasonable doubt v. balance of probabilities.

GottaGoGottaGo I am asking what makes people feel that they are morally correct in their decision not to donate but then also feel that they are entitled to receive one if they need one? IRRESPECTIVE of what the NHS policy is or is not!!

There are already people who have received organs who were never on the donor register under the current opt-in scheme, in fact I would hazard a guess that most donor recipients weren't on the donor register to give. Perhaps you and all the others on here screaming blue murder that people who wish to opt-out must never receive an organ go and tell those recipients how selfish they are for not voluntarily opting-in to the donor register when they could and how they shouldn't have accepted the organ donation.

Organ donation is GIFT, probably the most altruistic gift there is and that is how it should stay.

There have been a few touching stories on here about the reality of donating. to you. ‘Four goodbyes’ will stick with me. My take out is that where the potential donor is on a ventilator, and appearing ‘alive’ to family with them, the decision to donate forces a timetable of events that may conflict with what the relatives feel is best for their grieving process/goodbye. I’m really convinced that those shouting about it being vile not to donate and ‘it’s just a dead body’ don’t appreciate the reality of how a donation may pan out. It’s shocking really when there was so much outcry about the Alder Hey organ scandal and there is so much support (rightly) for parents with still born babies who choose to stay with their baby for hours, days or months after they have passed away. No one says ‘it’s just a dead body’ then. I would 100% want to donate but I can see how death is messy, distressing and doesn’t always pan out in a neat way.

Why wouldn't you want to donate?hmm
You'll be dead

Actually no you are technically not dead otherwise as far as I am aware you couldn’t donate

Well put, lozter. Spot on.

About time, too. Nobody needs their organs when they're dead.

Knowing two little boys who would be physically and utterly dead right now I think it’s vile not to donate

Anyone can have anything they like when I'm dead and I do struggle to understand why someone wouldn't want to donate (barring JW and other religions) but I do think we need to step away from using the stories of dying children to shame others with.

I’ll opt out then as I don’t wish to default to becoming community property when brain dead and I don’t want to be kept lingering while my parts are booked up like restaurant tables.