Donor consent law is being changed...

[flirtygirl]

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

Does absolutely everything on here have to include a transgender debate.

I'm guessing the people who are treating the patient in hospital will have full access to their medical records and be able to determine what sex they are.

How the person chooses to identify in life makes no difference.

Just tick the box you want to and leave others to do the same.

I've worked for NHS transplant for many years, I am a specialist nurse in organ donation- and seen first hand many many lives saved and transformed through transplant. Quite worrying to see some of the comments on here! NHSBT have never, not will ever make money from peoples organs... Also, no-one would ever have withdrawal of life saving treatment purely to facilitate donation.

We invite all families of organ donors to a ceremony each year where they get an award on behalf of their loved one and it is so clear to see the positive side, that families can gain so much from the life changing legacy from their loved one donating their organs. In fact one donor can save or transform more than 9 peoples lives.

The problem is, about 3 people die each day waiting for a transplant. So many people do not opt in, for many reasons, often thinking that it is tempting fate perhaps, or wrongly thinking their organs may not be suitable. They also don't tell their families what they would have wanted. The fact is that less than 1 in 100 people die in a situation that they can donate (on a ventilator in intensive care) so there are simply not enough donors. Since opt out in Wales they have seen a big increase in donors.

We will always seek families consent (they can and do even override the ODR), and this will not change, although a family will not ever be able to override an opt out. Incidentally- we do have a back up service if the organ donor register is down for whatever reason- although I have never known this to be the case....also if you move your NHS number will stay the same, even if you haven't updated the ODR.

There will be much more information before opt out in spring 2020...in the meantime, if you would want to donate, remember to opt in, and tell your family and loved ones.

Personally, I think it's a great idea. Many people, children and adults, die every year on transplant waiting lists. Many people never get round to adding themselves on to the donor register, don't discuss their wishes with relatives and so relatives say no. If you feel strongly about not being a donor then you will opt out. Those who want to be donors but didn't get round to adding themselves onto the register would automatically be there. Hopefully saving many lives.

Since opt out in Wales they have seen a big increase in donors.

According to the BMJ they saw no significant increase at all when it was introduced.

It absolutely matters what sex you are for medical purposes doesn't it? I thought some things had to be female-to-female, male-to-male?

It absolutely matters what sex you are for medical purposes doesn't it?

Of course it does, but that won't be determined by opting out of stating your sex on a form anyway.

*Since opt out in Wales they have seen a big increase in donors.

According to the BMJ they saw no significant increase at all when it was introduced.*

There was only a small increase initially, but according to NHSBT, (who collect the data) the latest report shows consent rates are up to 82% from around 65%. England is currently at 66%.

www.thesun.co.uk/news/8651558/girl-donates-organs-saving-5-childrens-lives/?utm_campaign=sunmainfacebook160319&utm_medium=Social&utm_source=Facebook#Echobox=1552741959

There was only a small increase initially, but according to NHSBT, (who collect the data) the latest report shows consent rates are up to 82% from around 65%. England is currently at 66%.

Fair enough, obviously the figures I saw were a bit out of date. Sorry.

If you're so worried about people knowing your opinion, get a tattoo.

a family will not ever be able to override an opt out

This is disappointing if true. I want to opt out but my family know that I am more than willing to donate my organs. I want my family to have the choice to give my organs freely.

Religion is far more pertinent to a donor permission form than gender given that some religions have very strict rules regarding deceased between death and burial. Gender is completely irrelevant to donor status and overall to the majority of the population. Sex on the other hand is extremely important information and I am horrified by its omission.

To be clear, there is no box to tick for sex.

There is no way to complete the form and ignore the gender box.

This would stop me opting in because the form is a nonsense.

"This would stop me opting in because the form is a nonsense."

wait, what? I completely get the rage for the gender thing but why would bureaucracy stop you opting in....and it's an opt out form!

also confused by pp saying they want to opt out but have their family override it. Guessing that's due to irritation over the presumed consent?

How is it in any way right that you will take an organ from a donor but selfishly burn or allow yours to rot to stop someone else using them

No, you can fuck right off with that attitude.

In Wales it takes 2 seconds to opt out. I'm an organ donor, skin an all. I don't need any of my body when I'm dead and I hope if myself or family needed donation in the future that their would be someone available.

It's opt in for Scotland.

Speak sorry!

See things like this which was in Penguins linked article:

"Before they took her away I was able to lie next to her. The nurse was amazing and agreed to hold her hand throughout the surgery. When she came back she had a lovely blanket over her up to her shoulders.

“You don’t see the scars where she has been neatly sewn together. She just looked asleep and peaceful. It was all done with so much respect."

...are far more persuasive than the dramatic hectoring that we've seen on this thread. When posters keep alluding to 'just a dead body' it makes me worry that the 'just dead' body might not be treated gently or kindly, and this is important to me because that 'just dead' body is a body that is important to me.

Knowing the body is not treated like spare parts and is cared for is going to be what makes somebody think twice.

Why would anyone want their useful organs, that can save or improve another life, to rot in a grave or be cremated?

I sincerely hope you never need a life saving gift.

The point is everyone should be entitled to their own opinion as far as possible regarding what happens to them and theirs during and after death.

It is commendable to donate and obviously donating should be encouraged but it is equally important that a wish to remain physically whole for whatever reason is respected.

Like grief, there is no right and wrong just how people manage things in their own way. Death is a very personal event and respect is essential.

“wait, what? I completely get the rage for the gender thing but why would bureaucracy stop you opting in....and it's an opt out form!“

Because Grace, as I stated up thread, some people on here are clearly outraged at the idea that the state are in some way ‘controlling’ them. This is their biggest concern. For some people this warped idea would in itself make them opt out. They do this to make a point/a mini protest. It’s a bit like Brexit. Most people didn’t actually vote to leave due to having a problem with the EU, they voted to leave as a protest against the state. ‘Sticking it to the man’ as someone described it up thread.
The true issue of organ donation (or whether we are better off in or out of the EU) is almost irrelevant to them. As long as they can stick two fingers up at the state they don’t care.

“It is commendable to donate and obviously donating should be encouraged but it is equally important that a wish to remain physically whole for whatever reason is respected”

Speakupwoman- you make a very very valid point with which I agree. The point is that most people who are commenting on here about wishing to opt out clearly don’t have that as their reason. Their reason appears to be - as I said above- a desire to ‘stick it to the man’.

Biological sex doesn't make any difference when it comes to organ donation AFAIK. They tissue type, blood group etc but I'm sure that I have heard about men getting an organ from a woman and vice versa.

And some of us don’t believe we belong to the State, in life or death. It’s not sticking two fingers up to the State but where does it end. Your consent is being eroded away in life and in death.

Biological sex is essential for donation or any other medical procedure, do not for a second consider that a full and complete history is not required whether an organ is going to another person or to research.

The removal of sex as a class from societal data gathering is becoming an illogical epidemic, don't stand for it.