Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

See all MNHQ comments on this thread

Donor consent law is being changed...

895 replies

flirtygirl · 16/03/2019 10:39

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

OP posts:
Frainbreeze · 17/03/2019 13:34

The amount of people who die whilst waiting for a kidney is tragic. This is a fantastic move. Wonder what those against donation think of those of us who, as live donors, give a kidney altruistically?

Totaldogsbody · 17/03/2019 13:49

I totally agree with opt out but I find it very disturbing to read that many people feel that those who opt out should (A) not receive a transplant if needed or (B) go to the bottom of the list which is effectively the same thing. I caŕry a donor card, I do so because I believe that if I can help someone enjoy a better life when I die then my death could be worth something. To put conditions on who will or will not be able to receive an organ unless its for medical grounds is undermining the whole system. What next they're black, white, Catholic, Protestant, eat mushrooms Ffs can you not see how absurd this is. If you wish to opt out then it's entirely your prerogative I for one may not entirely understand it but would argue for your rights to do this, many people fought and died for that right. We live in a democracy not an autocracy and the government whilst changing the procedure have not taken these rights away, you should opt out if you wish without fear of recriminations.

Greyponcho · 17/03/2019 17:05

does that mean sex could end up opt out consent too? I mean it’s just a body at the end of the day.
...and the award for the most ridiculous comment goes to...
Hmm
When I’m alive, I intend to keep using my body, so no, sex doesn’t fall into the “consent unless opted out” category, whereas when I’m dead, I don’t have any plans for using it from the day after and onwards.

The whole “opt out” simply forces people to at least think about it and let their wishes be known. How many people ‘don’t plan on dyingfor several years yet’ so don’t bother to think about organ donation or indeed even make a will, let alone make their wishes known to their families.

Booyahkasha · 17/03/2019 17:24

If you're willing to take an organ, how can you refuse to give?

BreakYourselfAgainstMyStones · 17/03/2019 17:37

If you're willing to take an organ, how can you refuse to give?

Because thinking about something as an abstract concept is very different to having to face it in real life.

People change opinions all the time based on life experiences.

hamptonmummy · 17/03/2019 17:38

I certainly hope those who have opted themselves and families out are also denied the chance of a lifesaving organ should they ever need one !! I think it's diabolical to opt out or refuse to donate organs after someone has died !

BreakYourselfAgainstMyStones · 17/03/2019 17:41

It's diabolical to think people want our NHS system to be based on anything other than medical need. Where would that stop.

nuxe1984 · 17/03/2019 17:41

There was a consultation on this and people could comment on it! Maybe you don't read the right sort of platforms to stay up-to-date with such matters?
It's a great change and badly needed. Are you aware of how many people die each year because they're waiting for a donor organ?
Also family are often shocked when they are asked about this after a death and their immediate reaction is no, they don't want the dead person's body touched. If it was the norm that it would be used for donations they wouldn't be so shocked.
The next of kin can still say no, if they want to for religious reasons or whatever. But if the dead person expressed a wish that their organs were used for donation, then they'd be going against their wishes, regardless of how they felt personally, which would be wrong.
I'm registered for organ donation and would not be happy if my family said no …. not that I could do anything about it other than come back and haunt them ...

clairemcnam · 17/03/2019 17:42

In reality, few people faced with a brain dead relative on a ventilator, view it as just a body.

Mrsbapandbabies · 17/03/2019 17:47

I imagine everyone who is up in arms has no real experience of organ donation or the consent process. Even if you’re on the organ donation register your next of kin can refuse to give their consent and you won’t be a donor. That won’t change. The idea that the NHS will harvest everyone’s organs without asking is so ridiculous! A friend of mine said that they believed if you were an organ donor the hospital wouldn’t try as hard to save you! It’s such a bizarre thing to think! In the UK every death in hospital should be referred to the organ donation specialist nurses to see if any organ can be used. It’s not just people who are brain stem dead on the end of a ventilator that can be donors. You can donate some organs from the mortuary where you have absolutely no need for them anymore!

What the change in law will do is encourage people to talk about it with their families and that helps decision making of the situation occurs that means you might be able to donate. I’ve had first hand experience of this and families always find it easier to make a decision if they have spoken about it together.

I would take an organ for myself and my children. If i, or my children, die in the circumstance where we could donate any organs I believe we have a moral duty to do so.

Grace212 · 17/03/2019 17:49

Mrsbap "I imagine everyone who is up in arms has no real experience of organ donation or the consent process."

you might want to read the thread then.....

Wineallthetime · 17/03/2019 17:50

Ah yes of course, silly me I forgot that in the last ten years wales has become the epicenter of black market organ harvesting with having opt out....

I think it’s a fabulous idea and likely down to timescales, there’s a short window of opportunity to get the organ out and it be viable, I should image this system means not as much fannying around getting consent? They can have all of me. Having seen a friends little boy nearly die as he needed a transplant I really don’t get why you wouldn’t help, youre dead!

It’s easy, don’t like it, opt out then!

Mrsbapandbabies · 17/03/2019 17:55

Grace - if anyone has real experience of the consent process for organ donation then they would realise that opt-out can still be vetoed by family...

DonnaPlus3 · 17/03/2019 18:21

So, I take it as you are not willing to donate organs in the event of your or a family members death, you wont take an organ if you or a family member needs one?

manicmij · 17/03/2019 18:23

By the time you are buried or cremated all of you is rotten. Surely organ donation is better than that.

Pashal2 · 17/03/2019 18:24

Wow how ghoulish and what a government overreach of your freedom. Your government owns the rights to your body. This is a slippery slope. Once this is accepted without dissent, another law will be passed in 10 years denying the right to opt out. After all, why not? It's for the "greater good". Good luck. Thank God there are more powerful places where the right of the individual is still honored over the power of the government.

Grace212 · 17/03/2019 18:27

Mrsbap

now I'm confused

we can only have experience of the opt-in system

so is the opt-out also going to be (potentially) disrespected by family?

GottaGoGottaGo · 17/03/2019 18:27

I'm genuinely curious - to those people who want to opt out and not donate, but still think they should be entitled to receive one and think they should because the NHS shouldn't be able to discriminate. Where do you get that logic from, or is it "just because you say so?" and because you feel you have the right to? "You can't have mine but I have the right to yours?".

coffeeismyspinach · 17/03/2019 18:30

you wont take an organ if you or a family member needs one?

Why do you extend this to people other than the one who opts out? On top of this silly strawman argument that has been shot down about a million times already on you RTFT.

BreakYourselfAgainstMyStones · 17/03/2019 18:33

Where do you get that logic from

Health and high quality care for all, now and for future generations.

The NHS themselves.

It's says nothing about basing it on any sort of moral code.

coffeeismyspinach · 17/03/2019 18:34

certainly hope those who have opted themselves and families out are also denied the chance of a lifesaving organ should they ever need one !!

And again, you cannot opt your family out. You opt yourself out, an adult. FFS!

BoneyBackJefferson · 17/03/2019 18:37

GottaGoGottaGo

why do you think that this sort of discrimination is ok?

SpeakUpXXWomen · 17/03/2019 19:00

I just went to fill in the form for the Scotland scheme, it has no option for filling out sex. Instead there is a gender box with a bunch of medically batshit options;
Male
Female
Transgender
Not known
Not given

www.organdonationscotland.org/yes

This is a required box to complete but religion is not.

What the actual fuck is going on in the NHS that it thinks Donor Sex is irrelevant?!?

busyhonestchildcarer · 17/03/2019 19:01

You can opt out.For anyone thinking its a liberty etc..I hope you never need or know anyone who needs it.The old system didnt work because often grief meant people coulent make these decisions at the time but this didnt mean they wouldnt have regretted their decision

isabellerossignol · 17/03/2019 19:03

The old system didnt work because often grief meant people coulent make these decisions at the time

And how will the new system change that? Grieving families still need to consent.