Any medical types about - not sure what’s wrong (picture)

[catgirl1976]

Sorry to be a bit dramatic and to use MN as a medical resource

I am feeling dreadful and have been all day. I’ve got a pounding headache, I feel sick and shivery and the skin in my legs has gone mottled (see picture)

I’ve got a massive day at work tomorrow so really don’t have time to go to my GP but I’m feeling dreadful and wondering if (assuming I still feel like this tomorrow) I should try and get to a walk in or something. (Also please excuse my fat legs)

(((((Hugs))) Thanks for the Update and Look after yourself.🌻

Interesting about the Lupis. I've also been tested but came up neg.
Never have solved why I get 'Mottled bruises'

Have you had a blood count? DS looks a little mottled when his platelets are low.

Thanks for letting us know and pleased for you that it wasn’t sepsis.

Would certainly be worth getting a referral to see a rheumatologist to find out what is going on. Also, go for a second opinion if you are not happy with first. I am only saying that as we saw several rheumatologists before dh could get the correct diagnosis so that a treatment regime actually worked. Now seeing an amazing one in Southampton, well out of our area, and dh is feeling so much better.

Wishing you well xx

Glad it's not sepsis OP. Hope you feel better soon x

Thanks for updating, Catgirl.

Very glad to hear it's not sepsis, and good luck with the further tests.

catgir1976l I know you say you've been tested for lupus before....just be aware that a negative test may not be conclusive. I'm glad you're going to chase up a rheumatology referral...I had a mottled rash which turned out to be vasculitis...another rare autoimmune illness which many Drs are not aware about and which can also give negative results...CRP/ inflammatory markers can often be very high when other markers (ANCA/HLA B27 ) are negative ....crucial to be seen by a rheumatologist with expertise in vasculitis....good luck , I've been on treatment ( steroids and chemo) for 18 months and currently in remission

I was thinking the same. Less likely lupus and more likely vasculitis judging by the picture. Do a Google. X

Its really good to see youre ok

Thank you - I haven’t heard of vasculitis. I will have a google.

I’ve been hospitalised a few times now with fevers and raised white blood count and presenting with massive infections but no one has ever been able to work out what was infected or why. Not sure if that fits but will google and thank you

Well, I'm noir sure they fit with vasculitis either, but that rash did, Montreal than with lupus. Lupus presenting symptoms are usually a selection from the following...usually:

1. Absolute fatigue, as in too tired to hold a coffee cup up. 2) quite severee joint pain, usually symmetrical, usually feet, ankles, elbows, hands as wrists. 3) hair loss 4) pleurisy. 5) butterfly/malar rah 6) discoid rash. 7) bloods: positive Ana, positive dsdna, high crp low esr.

Usually a low grade fever can be normal, not very high unless fighting infection.

Autoimmune diseases have boundary issues though, and will stray into each other's territory causing crossovers...if you're really lucky you start collecting them like bloody medals. Not straightforward, but hope you get some answers soon. Xc

I have

Fatigue
Joint pain
Hair loss
Rashes
Pleurisy (three or four times in last few years)
Lichen sclerosis (which is auto immune in nature)
Recurrent kidney infections
Shivers and chills
Recurrent fevers with no discernible cause
Foot cramps
Sunlight seems to make symptoms worse

And negative bloods on two or theee occasions where they’ve tested for lupus. And that seems to be that with no explanation for the symptoms. So I am going to push again to see a rheumatologist

Thank you all for the advice

My tests flip flopped three times before they both became positive. You fit enough of the diagnostic criteria to be diagnosed without blood confirmation, but lots are reluctant to do this. They could at least start you on Hydroxychloriquine...it's the same baseline drug for lots of autoimmune conditions.

I'd print off the criteria and mark the ones you have, and ask outright why they won't diagnose you as per the guidelines. Could be they know something you don't from past bloods, or that they are following in house guidelines etc.

It is unusual, but not unheard of for people never to develop certain blood markers but clearly have the condition.

Thanks domton - that's good advice - I need to get to the bottom of what's going on!