I still have that audio of those poor children’s crying stuck in my head. Those child abusing bastards. Unbearable what they are doing.
I’m really worried that the Trump-era (deliberately?) shit level of official record-keeping about these forced separations will mean that some families’ genetic data will be abused, which can affect multiple individuals from one individuals’ DNA test. after all these people have already been put through.
Whether or not the genetic tests will be actually used as a means to reunite the families who have been separated seems moot (and not all of the kids will have been travelling with their blood relatives anyhow).
This whole scandal Is constantly upping the stakes of many human rights and ethical norms can be violated. It’s appalling.
eu.usatoday.com/story/tech/2018/06/23/using-dna-tests-reunite-immigrant-children-parents-poses-privacy-risk/727424002/
www.motherjones.com/politics/2018/06/using-23andme-to-reunite-families-at-the-border-comes-with-serious-privacy-risks/
For a digested read: www.bionews.org.uk/page_136712
Two commercial genetic testing companies have offered to support efforts to reunite the 2300-plus children that have been separated from their parents at the US-Mexican border.
[...]
Jackie Speier, a Congress Representative for California, appealed for assistance from the private DNA testing company 23andMe, to help reunite these families as quickly as possible. In an interview with USA Today, Speier said: 'If you've got infants, they don't know their names, they don't know their parents' names. 23andMe tests would allow the Department of Justice to match people. Right now, there's no way to know who a parent or child is.'
Since Speier's plea, both 23andMe and another private genealogy company, MyHeritage, have pledged to help the reunification process by donating DNA) testing kits and their sequencing services to those affected by Trump's 'zero tolerance' immigration policy.
Genetic testing may seem like a quick and relatively easy way to pinpoint familial relationships, but it raises a number of legal and ethical issues.
First and foremost is the problem of serious privacy risks associated with generating and storing genetic information. Procedures would need to be put in place to ensure that this information is protected and not misused by the government or other third parties.
One solution would be for all genetic data to be destroyed once a parent-child match had been made. However, current regulations state that all genetic testing laboratories must store their results for ten years, to allow their procedures to be externally validated. As a result, genetic testing companies could potentially be forced to release their data to aid legal proceedings in the future. This in turn could place migrants and their relatives in a very vulnerable position.
Due to the highly personal nature of the data that would be obtained and the lack of assurance surrounding data control, it is of paramount importance that informed consent is gained from those undergoing genetic testing. However, the ability to establish consent in this situation is another thorny issue.
Minors are not able to give consent. For obvious reasons, it is not possible to obtain parental consent for them. Conversely, any adults that do consent to genetic testing are doing so in an environment of extreme stress where the long-term consequences of such testing may not be adequately considered or discussed.
As Marcy Darnovsky, executive director of the Center for Genetics and Society, recently told Mother Jones: 'Coming up with a solution for people who are already at risk in this country by handing over very private information seems very dangerous.'
The offers of services by 23andMe and MyHeritage may be well meant. But acting before carefully thinking through these complex ethical issues could lead to more problems for migrant families in the long term. As Darnovsky has suggested, a simpler and more low-tech intervention – like filing cards and a spreadsheet – could do the job of reuniting families just as well, without attempting to walk this blurry ethical line.’