I would like to add to Drained heartfelt post.
My son is what is considered as ‘high functioning’ above average IQ, articulate etc ie ‘normal’ acting and ‘appearances’. Polite, well mannered, well behaved. Not to ‘trump’ disabilities, more just understanding of it can be anyone and not visible.
He is 14, still soils on occasion, struggles to dress etc. Has difficulties eating, to the point of making him ill. Cannot use a knife or fork or tie shoe laces etc. Or be near anyone who eats. Cannot cope socially, struggles to leave the house or his room, self harms due to pressure of having to socialise or just having to live in a ‘normal’ world, to the point of being hospitalised and in danger of amputation due to wounds being infected. Often thinks of suicide to end the struggle. He struggles to attend his specialist school
Cannot change in front of others male or female, for swimming or PE. Or take his t-shirt off for swimming due to his self harming scars. Pools don’t ‘allow’ t-shirts to be worn. We used to go to SN pool sessions, local pool, he was allowed to keep his t-shirt on etc, etc, etc, etc etc.
Could he live independently, maybe with some teaching, understanding, tolerance, less pressure. Is it likely, when people cannot even tolerate a disabled child in a changing room, no.
Is this what it takes, parents to reveal their child’s difficulties to get people to understand? Exact details? Or can you just take our word for it? Or the words of our children? just be tolerant? Kind? Not up your own arses with ‘rights’ and ‘rules’ or ‘entitlement’?
We spend a life time trying to teach our children ‘flexibility’ what about a little something in return?