Charlie Gard 6

[CaveMum]

New thread so that we can await this morning's hearing.

Let's try to keep this one as sensible and measured as the past 5 threads have been.

Fingers crossed that this can all be resolved today and that Charlie and his parents can find peace.

Another quote from GOSH court statement: “A world where only parents speak and decide for children — and where children have no separate…

I haven't mentioned the parents either. Quite a few people haven't.

There are a few posts which do, but I think the majority of posts are about Charlie's health and the legal process.

Do the barristers for GOSH and charlie's guardian get an opportunity to put questions to the American doctor?

Straighttalker, I have reported your long post denigrating Charlie's parents. It is hateful. It's perfectly possible to feel that they are not acting in Charlie's best interests without ascribing bad motives to them, and calling them "bad people" is vile.

I don't have children, but together with my mother and brother decided to switch off my father's life support. It was a hideous decision, and a hideous time, and that's without all the extra load of genetic guilt that I suspect is fuelling some of their frenzy. Have some compassion for them.

GOSH: “…identity or rights and no court to hear and protect them — is far from the world in which GOSH treats its child patients.”

"Before that was started [pain relief] quite recently, all of those caring for him at GOSH hoped very much that Charlie did not experience pain. They did so in the knowledge that if he did not it was because he had no experience at all because he was beyond experience”

GOSH position statement. I presume the morphine was started just in case he wasn't totally beyond experience.
This at least sounds better than all our fears that he was possibly in pain -- 'beyond experience', how tragic a hope.

Do the barristers for GOSH and charlie's guardian get an opportunity to put questions to the American doctor? I would imagine so but am happy to be told otherwise.

GOSH: we have treated over 1000 patients with mitochondrial disease and nucleoside treatment where appropriate.

Oral morphine "oramorph" can be given via naso gastric tube.
Sorry this thread moves so fast .

@SkintAsASkintThing

It's a case that has some far reaching implications.

Of course people are going to discuss it.

Charlie's parents are talking about it both on mainstream media and social media.

A whole cohort of people are posting regular updates that abuse the medical staff looking after Charlie - I'd suggest you direct your outrage towards them.

GOSH: Charlie “has no quality of life and no real prospect of any quality of life”.

My worry for the parents is after this, the media which has been feeding them, is going to turn on them.

It is only going to take a couple of articles.

skint I think that as quite a few people here have direct experience of being in PICU and seeing their children suffer, they do have a right to at the very least compare their views/actions to those of the Gards.

God these threads are fucking vile, mawkishly grabbing at every move of two grieving, clearly mentally unwell people. How anyone can look at the parents of Charlie Gard, their clothes hanging off them and their gaunt hollow faces and suggest that what their doing is for anything other than what they believe to be the right thing (( whether it is or not is a different matter )) is beyond me. Shame on the lot of you, you're no better or better educated than the ones spouting nonesense on the CA fb page. Mumsnet should pull every single one of these threads.

I agree with every thing you said SkintAsASkintThing.

I agree with GOSH and the courts but I've been dipping in and out of these threads and find some of the views expressed on them about the parents to be disgusting and as obsessed and prurient as any member of the utterly misguided Charlie's Army.

Whatever happens I feel so sad for Charlie's parents and family. What a horrendous and devastating situation for them

Whatever happens I feel so sad for Charlie's parents and family. What a horrendous and devastating situation for them

GOSH: “What has been very difficult … is the effect on Charlie of the delay.” He has had to “endure months on a ventilator…”

Sobeyondthehills. Thats my concern too. The parents are in denial and their army have been helping them to maintain their denial. I fear when they dont get their happy ending that CA will turn on the parents for 'giving up' .

tweets saying

gosh have no exertise to saye thy shoulnt treeat him

ffs

How can people with such limited comprehension of the level of care he is getting (drugs will be given via Ng tube) think that the possibly have the level of understanding to process this case

Please see chart.

I hope they do not and I do not think they will to be honest,but then again you never know.

GOSH: “He has grown bigger but growth has not been accompanied by health. The reverse is true and there are signs of deterioration”

Whatever happens I feel so sad for Charlie's parents and family. What a horrendous and devastating situation for them < This. Regardless of motive, intention or whatever else, their boy is ill. All they want is for him to be better. And cannot comprehend that they may have to see his life support switched off.

I'm pretty certain their heads are up their arses for want of a better phrase.

Regarding the administration of pain relief, I think it is precautionary. No one knows if he feels pain or not, so the compassionate thing to do is administer it on the basis that he MIGHT experience pain. That is such a caring thing in my view.

skint - just like Claire did last night you have come on here and been vile about the parents, then slagged us off.
You could have had a valid point if you hadn't been so nasty about C&C