Charlie Gard 6

[CaveMum]

New thread so that we can await this morning's hearing.

Let's try to keep this one as sensible and measured as the past 5 threads have been.

Fingers crossed that this can all be resolved today and that Charlie and his parents can find peace.

I will stick with Joshua R as the other reporter makes spelling errors which I cannot abide. But if someone else wants to post his tweets too, go ahead. So mine will all be from Joshua Rozenberg's feed

"Thank you straighttalker Is it faster acting/more suited to a young child than venous mophine?"

No, nothing acts faster than intravenous morphine (directly into the bloodstream). But it does last longer, and has less risk of immediate side effects (depression of breathing being the most serious, though that's not an issue in Charlie's case).
Basically, it can be given regularly once, twice or more times a day and the effects should last longer, until the next dose.

he can't be on oral morphine. He can't swallow. Gosh are liars

To be fair, although it was not asked with the same aggressive stance that this was, it was asked on this thread how Charlie could have oral morphine given that he can't swallow.

To be honest I am not sure about that, as I said before my brother had severe cerebal palsy, and boy he could scream when he was in pain, charlie cannot cry, he must be in pain surely?

straighttalker I am also in agreement. Whilst it is very understandable why they are so focused on their son to the detriment of all other considerations, the ramifications of their actions are, and will affect others significantly, and I am afraid I cannot excuse that.

If there is any feeling or consciousness of any kind, it surely involves pain.

That is what I have thought for a long time: either he is so brain damaged that he cannot feel anything at all, in which case to all intents and purposes he is gone, or he can still feel those things. Either way is horrific for him. His scans show he is having seizures he just want move or react, how awful.

maybe it is so brave of you to talk about your son, this whole case must all be very hard for you to see played out in public. You absolutely did the right thing for your son and put him first.

I just means you don't have to have a drip in to administer it cjt110. Drips can dislodge and cause pain or they are an opening for infection, or they have to be replaced regularly which causes pain. so its safer to give the oral version. Its a nicer way for Charlie to receive pain relief.

Well, pain matters because either Charlie is experiencing it, or he is so profoundly brain damaged that his quality of life is nil. Neither supports maintaining him on a ventilator, at least based on GOSH's analysis.

noon can prov th pain thing eithr way

the doctors obviously now dont want to take the risk he is inpain

I've been following these threads since the start, and can I just say, it has been refreshing to see people's viewpoint's, that have been put across in a concise manner, unlike the BA. Speaking of which some of the comments on there are so laughable its actually quite sad such as, "cancer doesn't kill you the morphine does" correct me of I'm wrong, while I'm sure it play's a part is it the actual cause? Also "the judge and guardian are being bribed by GOSH" IMO, if GOSH can stretch their budget's to pay for the running of the hospital, staff, as well as legal fees and bribing the judge and the guardian all while everyone has stopped their donations then they should be doing the countries budget we would be out of the mess in no time . The BA imo like sharks in a feeding frenzy with every new bit of information, whether its true or not its quite sad.

God these threads are fucking vile, mawkishly grabbing at every move of two grieving, clearly mentally unwell people. How anyone can look at the parents of Charlie Gard, their clothes hanging off them and their gaunt hollow faces and suggest that what their doing is for anything other than what they believe to be the right thing (( whether it is or not is a different matter )) is beyond me. Shame on the lot of you, you're no better or better educated than the ones spouting nonesense on the CA fb page. Mumsnet should pull every single one of these threads.

Chances are the decision will be made soon to withdraw this childs life support again, in all honesty when that day comes I don't think Charlies parents will be far behind their son, who will the people who have posted vile things on these threads point and make judgements about then ?? Or will gloating 'I told you so ' threads start popping up ?? It's bloody disgusting, a real low for mumsnet. 😑😑😑

opinionatedfreak Thank you. I had several surgeries as a child but nothing in terms of long term like this. To me it would be first call to have a cannula. My own veins tissued during my treatments and still have not recovered 30 years on. Your mention of his length of stay makes more sense now to use an oral based solution.

apologies to all for my many questions I hope it is not annoying anyone - just trying to understand.

Charlie Gard: first witness requests his anonymity to remain in force. Denies having been named in the US media. Court upholds restriction.

Lapin Christ touchy, no one is suggesting your very important job be taken away from you.
I was just giving a suggestion for those following on twitter or sky

There was something GOSH said which I don't really understand but others may.
Charlie is not brain dead but his brain has catastrophic cellular damage however his brain stem is still functioning which means he probably has the ability to feel pain.

Hi all sorry to ask but can anyone quickly brief me please?

I'm on new meda for my fibromyalgia and sat down at 10 to read the tweets on here and just woke up bewildered

Thanks

I actually do have a job which I'm doing right now as well as posting here. I was just clarifying whose tweets I'd be relaying that's all.

skint yet you are posting and bumping the thread that way

Hmm

SkintAsASkintThing I personally have not made ANY mention of the child's parents. I am trying to understand what is going on and how the decision will be reached. I have nothing to be ashamed of by trying to understand something.

Regarding motphine: we always give it orally or via NG if we can as opposed to via a cannula not because it's more suited to children as such but because putting drugs through cannulas can be quite painful and can potentially cause damage to veins and surrounding tissue etc if the cannula doesn't work well.

And to follow on from what someone said about the pain of seizures. I have epilepsy and when I come round from my seizures my whole body hurts because the muscles in my limbs have been so tensed and thrashed about. I always have pains in my neck too and I always have the most horrendous headache too and I usually feel like that for almost 24 hours. So yes, there is a good chance that if Charlie is having frequent seizures they may also be causing him some level of pain but I'm only basing that on my own experiences and I obviously have no idea what Charlie's seizures present like or what form they occur in.

It is interesting that both witnesses have asked to remain anonymous.

Skint Most of us are thinking of Charlie first and foremost.

I keep thinking about how the parents maybe know they need to let Charlie go but would feel so much guilt if they agreed, that they feel the need to fight so no one can say they didn't try.

SkintAsASkintThing, Charlies parents made this public, that is what happens, of course people are going to discuss it.

More from the barmy that literally makes my jaw drop to the ground:

Going through doctor's background. He is extremely distinguished.
What does distinguished mean?

And in relation to the request for anonymity tweets:

whats this mean x

I know not everyone is blessed with great intelligence but these people are fighting for this cause, yet seem to know absolutely nothing about, well...life.