Charlie Gard Case 3

[LovelyBath77]

A new thread to carry on from the previous ones about the case

The "Charlie's Army" are currently doing more harm than good to the cause. Someone needs to reign them in.

Guys if reporting to the met, make sure you take screenshots x

Why would you send hair to Jeremy Kyle for analysis when you can go direct to a hair strand analyst and cut out the middleman?

Maybe they could kill two birds with one stone and get Charlie's doctors to do a Jeremy Kyle lie detector test too.

This whole case is just so disturbing.

This is cruel to charlie now. That last photo!!! How can anyone let him continue like this.

Sirzy, I totally agree,however when its the sister in law thats stirring everything up what can you do???? apart from report to the police

I braced myself for a quick look, there are a few lone voices trying to calm people down but they are few & far between unfortunately.

Re: Charlie being on morphine, the comments on the Facebook page seem to be suggesting he's just been put on it so GOSH can back up their claim he's in pain, presumably he could have been on it for months but that info wouldn't have been made public.

IM so glad I don't live in a world where I think doctors are out to kill babies

Problem is the lone voices will be deleted as don't fit

Doesn't help as said up thread the sister in law is running the page. You do wonder who is supporting the parents but if someone like her and views and comments etc not the best.

FFS

Regarding the 'parents being desperate' comment, people need to realise it's NOT about them. It's about the child, and the hospital/courts will always try to act in the child's best interests.

Twatyer tough titties- that's my opinion and I'm not the only one who thinks something is amiss.

Having a sick child does not mean that they are incapable of malpractice or whatever it may or may not be.
I am incredibly sympathetic to their plight that they are going to lose their beloved child. I am a mum myself. I'm not fucking heartless.

You on the other hand are a gf

These threads are slowly becoming quite unpleasant in tone.

I really dislike the smug I know best / I wouldn't do this vibe. I appreciate also lots of posters have suffered dreadful loss but this is a fairly unique situation (a very rare disease and the faint hope of treatment plus a lengthy timeline in which hopes have raised and fallen).

Bitching about parents singing and wondering if there's something 'off' about them is just nasty.

It must be nice to be one of those CA people.

Their world is simple, wishes save lives. Babies can't die naturally, only be killed by neglectful medical staff. Parents who suffer should have nothing but full throated support and anybody question their actions are bad people.

Everything is someones fault and if you can identify and stop that person things will be right again.

No grey, no nuance, no questions.

I can see the appeal.

I was in central London today and saw several groups of CA making their way towards the Law Courts. There they all were in their CA t-shirts, with their kids, all of whom had blue balloons, laughing as they walked along as though they were going on a jolly good family day out.
. I wanted to jump out of my taxi and give them all a good slap.

It's true about these weird groups though! The one for my health condition is just the same- (the miracle cure one) anything not supportive to the doctor involved (for the expensive miracle cure' is considered a 'troll' and deleted / blocked. It is why it is good to have places like this where it isn;t possible just to press delete if you don;t agree.

MargaretTwatyer, again you pop up, then fuck off, are you partof charlies army?

I've said for a while that something is not quite right regarding the mum, I cannot put my finger on it but gut instinct is screaming that something will come out that will show her in a less than favourable light.

You know her then? Or it is your armchair analysis? Or are you just a callous person.

Something off about her, yes her child is dying, she is grieving, doesn't know where to turn, feels overwhelmed.... could go on.
She doesn't act the way you want her too!

Put the fucking pitch fork down.

Seem to be in the minority but I'm another one who feels uncomfortable about some of the attitudes towards the parents on here.

I cannot begin to imagine what they must be going through and I think they have been exploited by the media. It feels like they've been built up and encouraged, and now the backlash is starting. It's horrible.

I don't have an opinion on the 'right' thing to do, as I'm neither a doctor or a lawyer involved in the case. But whilst the way the GOSH staff have been verbally attacked by CA and others is truly awful, ultimately it's Charlie and his parents I feel for the most. What a desperately sad situation.

There comes a time when all hope of a cure is gone. The best way to die, as I am, is with as much dignity as you can. I have refused further treatment because what time I have left I want to spend with my family, not retching into a sick bowl in hospital at yet another failed.chemo session. The pare ts of Charlie Hard have denied him all dignity. They have also denied themselves dignity. When little Bradley died this week there was no fuss, no outbursts of grief, just dignity. Bradley was surrounded with love and was allowed a dignified end. Charley's parents are denying him that fundamental human right. I know they are grief-stricken but this is not about them, it be er was, it was and is about Charley. I don't care if anyone thinks me wrong in knocking the parents. They should have looked towards little Bradleys parents to see the proper way to do the right thing for your child. And, the parents in gosh who are facing the same decisions as Charley's parents, who are watching their children due. No, no way us any of this about the parents.

Science question: If the nucleoside treatment were to work, wouldn't it have to be given continuously? I mean, with each cell division, the daughter cells would contain the same genes that Charlie was born with, with the same mitochondrial depletion. So it wouldn't be a one-off treatment. Which would mean any side-effects from the treatment would become a permanent feature of the rest of Charlie's life.

The parents need to be careful though cause if they continue to shout at people In court they maybe banned and not allowed in for the ruling.

Noeuf,did I say her singing was bad? noi said sahe will be releasing an album nextand theway things are going with them raising money................

BabyHamster,maybe people are getting hacked off with charlies army and their conduct,its all right for them to be a bunch of twats!!!

Completely agree with nouef.

Just seen this in the Guardian: At the hearing, a lawyer for GOSH said the alleged "new research" had been available for the judge's consideration in April and was purely lab-based anyway, and related to patients with muscle problems only rather than brain damage

I'd been wondering what happened about the "letter signed by seven scientists" and maybe this answers it? If the report's correct it would appear that previous articles been wrong, and rather than the "research" arriving in the last few days it's been known about for months

Why can't the supposed cures be undertaken at GOSH?

Surely it would be easier if they say, yup, you think it will work by all means pop over and do it? I'm not clued in on the details as to be honest I can't bear to read too much (pregnant, hormonal, already have a boy myself).

I feel desperately sorry for the parents, they are angry and have made the hospital their enemy when essentially it's their DNA that caused the problem, is their back lash guilt?

I don't know how I would come back from all this, heart breaking.