Charlie Gard Case 3

[LovelyBath77]

A new thread to carry on from the previous ones about the case

Sostenueto

Seem to be in the minority but I'm another one who feels uncomfortable about some of the attitudes towards the parents on here

You're not wrong. When I saw the "Death panel" meme flying around Twitter and realised this circus may actually influence the right of Americans to access healthcare I felt so fucking angry. I keep trying to internally stop myself from judging them but they chose to invite that judgement, they chose to get on board with that fuckwit pastor. At what point does a persons grief and trauma stop being a justification?

I honestly don't know.

I guess that is why the judge has made it clear that he wants to see the date of the evidence to establish whether it was available when his previous judgement was handed down. If it was I can't imagine he is going to look very favorably on the parents

I would imagine that Charlie has been on, at least, low level pain relief for some time now.

Pain relief would usually be given proactively in case he feels pain, especially as medical evidence at the earlier hearing was that he probably does feel pain, and if so then it's probably not at a low level. I would have though it would be unethical not to give some proactive pain relief under those circumstances.

Morphine will possibly have been used at low dosages for a while. Obviously the hospital cannot release that information but the parents will have been kept fully informed of any changes in his medication.

meltor apparently at one point GOSH where in the process of preparing to get ethics permission to undertake the treatment here. However in that time his condition deteriorated more and that was when it was deemed as an unsuitable treatment for him. The doctor in the US who initially offered it has also said that in his condition he doesn't believe it would help.

Now various psychics and mediums have taken up this case and Alfie's Army and opened their own little facebook pages about it

I cannot believe this

I remember that about the 1 in 10,000 is 10% MrGrumpy

Sirzy,I think thats what people are forgetting, unfortunately there is no new evidence.

I've just caught up on the thread.

Some of the anti-seizure meds Charlie would perhaps be on could be dual purpose for pain meds, so it's not that unusual that they've gone to Morphine imo.

Today's hearing shows that they really didn't expect GOSH to take it back to court. They wouldn't have been claiming all and sundry right up until the eleventh hour if they had.

Sostenueto

Ca are telling people to bombard gosh page again they have a usa facebook page! My dh just found it! They're saying their chariry needs looking into
A usa page!!

BabyHamster- agreed. The poor parents are being vilified. The language and criticism about them is like that directed at the McCanns.

Whilst I think they are wrong to be still fighting, they don't deserve to be criticised because he had sunglasses on his head one day.

Imagine, just imagine,being that little boy lying there, all day, day in day out,not being able to tell you he is in pain,not being able to cry out in pain, it breaks my heart thinking how cruel it is.

@Noeuf and @BabyHamster I've followed all three of these threads from the beginning and I really think that under the circumstances (and in comparison with what I see on FB and twitter) the posts have been extremely measured. Quite a few have been very informative, with some people sharing harrowing stories of the loss of their own children.

The fact is that the Gards and their extended family and hangers-on are courting publicity and hysteria. They command little respect with many people because the whole basis of their argument is that their rights as parents and their religious beliefs should override the hospital and the courts, who have stated time and again that they have carefully considered the case with Charlie's interests at the heart of it all.

MusicForTheJiltedGeneration I agree that he's probably been on pain relief for some time now. And the parents would have been informed.

kali110,that is absolutely disgusting, I have a stalker on that page, I am choosing to ignore her now.

OH lord there is even someone asking for people to do Hawaiian rituals or some such tosh.

And then I find out a few friends have joined the cause and post regularly. I give up.

I don't understand people any more.

I will maintain my sympathy for the parents to the end. I think they are desperate people in a desperate situation.
I do, however think they have lost all sense of reason and perspective through their grief. My anger is growing but it is directed at all the hangers on; CA, the political and religious figures who are using him for their own causes, PR companies trying to make a quick buck, bored and opportunist shits selling air fresheners and baby bottles.
As I said earlier Charlie and his parents are trapped by this circus. Despite sympathy for the parents I disagree profoundly with their decisions. The distinction between rights and responsibilities is so true. Heartbreakingly hard but true

I am horribly reminded of a case a few years ago when a very disabled (but IMO a good quality of life) child died, i think due to progression of a disease. His parents were found dead a few days later having left a note saying their lives were without any meaning after the death of their son.

I'm scared that the parents have cut themselves off from sources of effective psychological support. I hope very much that there will be professionals able to help them that they feel able to trust. You can certainly see that they are barely able to look after themselves at the moment.

Do wonder if the people on that page belive what they say or just getting caught up/led on by others. GOSH will now fake his measurement records..the morphine is so he looks ill mean really?!

Was that the young clue who put their adored childs body into a bag and then jumped off a cliff? So desperately sad.

I agree with noeuf about the unpleasant tone of some of the comments about Charlie's mother here. There's no need to get into speculation. Let's face it, the known details of the case are depressing enough.

clue couple

RMC123 I agree with everything you have said.

I noticed that GOSH ICU provides psychological support for the parents, but wonder if the parents wouldn't trust it? I'm not sure. I don;t agree with their approach but feel they are possibly vulnerable and lack of sleep and food can make you mentally unwell, and even delusional. I know- I had this myself when very physically ill in the past- I started not trusting the docs, thinking the meds were poisons and all sorts, the psychologist i saw said sleep deprivation can cause this. Anyone looking at Connie can see she is very thin and pale looking.