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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Charlie gard case thread 2

954 replies

Fancythat69 · 08/07/2017 20:22

The last thread is full, Not sure if another has been started.

Theres a CA rally at GOSH planned for tomorrow. What are these people on?

Charlie gard case thread 2
OP posts:
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16
AndHoldTheBun · 08/07/2017 22:08

CoolCarrie, I THINK typically the inheritance pattern is 25/50/25 (each child has 25% chance of having the condition, 50% chance of being a carrier, 25% chance of not carrying the gene), as both parents are carrier (carriers have one healthy gene and on affected gene), if that's the case, preimplantation diagnosis and IVF could be used to choose unaffected embryos before implantation, although some people are not happy with the idea of that at all.

noradurst · 08/07/2017 22:09

I wrote that in a heated rush. I don't mean no sympathy; they are understandably caught up in a whirlwind of false hopes perpetuated by those nutters. I just have rapidly diminishing sympathy for the amount of pain they are putting on other sick children, their families, and the staff.

TheWeeWitch · 08/07/2017 22:11

These photos are simply disgusting. Those slimy, opportunistic men standing over that poor dying baby. Each time I check my various news feeds I desperately hope to see that Charlie has died unexpectedly, that he has peacefully slipped away from all of this.

TheWeeWitch · 08/07/2017 22:12

Photos here, sorry.

Charlie gard case thread 2
Charlie gard case thread 2
muckypup73 · 08/07/2017 22:15

Gosh his face is really really bloated,that is certainly not weight gain.

LetsGoFlyAKiteee · 08/07/2017 22:15

Guest speakers?! Are you kidding me?! What is this!!! Just urghhhhh it ain't about you lot!!!

muckypup73 · 08/07/2017 22:17

I am beggining to wonder if this is more about his parents fame and fortune than it is about the poor child.

MrGrumpy01 · 08/07/2017 22:18

I have a genetic condition which can cause very serious complications including cancer. I am in a FB group where many children are going through cancer treatments. Feelings of guilt are talked about fairly regularly. I can understand in those dark moments that a sense of guilt being overwhelming and then an absolute drive to make it all right again.

Maybe this isn't the case and until a pp touched on it i hadn't thought about it. But it might explain the determined need to find a cure.

ZerbaPadnaTigre · 08/07/2017 22:18

I can't find it now but I'm sure somebody said the protest is around the corner from the hospital rather than right outside it but it's still not fair on other patients and their families to have to deal with that lot shouting and singing. You can't claim to care about children and then protest outside a children's hospital. They'll definitely upset more children than they'll help with their behaviour and I wish the family would tell them to go protest somewhere else.

Maudlinmaud · 08/07/2017 22:18

Poor Charlie. How can anyone not cry looking at those pictures. How can any parent smile into a camera lens standing over their child like that?

Please help me understand. Please.

Alittlepotofrosie · 08/07/2017 22:19

Anyone who protests outside any hospital, especially a childrens hospital, is a sick, sick fucker. Imagine the children who will have to look at their uneducated, futile stupid protest on the way in or out of the hospital. They'll probably be sticking to the line that gosh are baby killers and all those children and families will hear it. Sick fucking twisted bastard twats.

As you can tell im angry about this.

Drivemetofolkestone · 08/07/2017 22:21

Once an apple is bruised, all the science in the world can't reverse it, and make the bruised flesh crisp and healthy again. Sometimes things just aren't fixable, sadly.

HookandSwan · 08/07/2017 22:23

Anyone who protests a hospital devoted to saving children deserve to be locked up!!

It's a terribly tragic case, I can blame the parents the press are manipulating them for a good story.

Trump is using this to improve his image etc.

The poor little baby needs to be allowed to rest in peace now.

HookandSwan · 08/07/2017 22:24

can't blame the parents

Chestervase1 · 08/07/2017 22:24

Ffs it's an intensive care unit what about infection control.

muckypup73 · 08/07/2017 22:27

HookandSwan, parents manipulating the press, yes good statement, but for what gain? for their own gain? or their sons gain?because it cannot be for their sons gain because he has nothing to gain, what do they have to gain? there son living a couple of weeks longer? couple of months? however they still have to say goodbye it is like prooing along the agony for their child, so why would they do this??? it does not benefit him if he is going to die anyway,so what have they to gain? genuine question.

Redglitter · 08/07/2017 22:28

Ffs the staff at GOSH didn't keep that pastor person out of ICU just to wind them up. Don't these idiots realise what ICU is like. When my dad was in ICU it was only me my mum & brother who they allowed in. Even my SIL didn't get in until just before he died. They seem to overlook this is a working hospital. Charlie isn't the only other child there

It's beyond me why they're campaigning for money to cover the guys expenses isn't that what the £1.5million the parents have is for

worcestersauce29 · 08/07/2017 22:28

Poor, poor Charlie…those most recent photos are wrong on so many levels.

The 'pastor' aside, Charlie needs to be allowed to go, the odeoma is so severe now.How can it not be seen by his parents and 'army' ?

Ellie56 · 08/07/2017 22:29

Like somebody said earlier - this is like a Hello photo shoot. How can they do this when their child is dying in front of them?

And the number of CA thickos cooing about how big he's grown and how "chunky" he is FGS! Angry

user1498911470 · 08/07/2017 22:30

I worry that Charlie's parents have surrounded themselves with supporters so extreme and deluded that they wouldn't ever be able to make a statement like that. It would go so much against everything they've been saying and hearing and it would make almost all their supporters turn on them.

This Sad

muckypup73 · 08/07/2017 22:30

Redglitter, I thought it was over 2 mill now, and he had to fundraise, I find that highly odd especially as they invited him over, one could think they could be using this for their own financial gain, after all treatment has already been offered free and the pastor had to raise his own money to come over on their request, I actually find it all highly odd.

Alittlepotofrosie · 08/07/2017 22:30

A fucking pro life pastor smirking over charlie who looks ... Well i have no words. His body looks like its given up. I desperately hope that the court rules I support of the previous judgement because what that tiny baby is being put through is fucking inhumane.

muckypup73 · 08/07/2017 22:32

The pastor who belive there is going to be a miracle, wonder what he will do when Charlie dies? will he say it was gods wish??? he hasput himselfon the spot abit there now really!

HookandSwan · 08/07/2017 22:33

"Muckypup73" I meant the press are using the parents for a good story. But good question I suspect the parents are liking the attention a little to much now.

I admit I don't like them, I mean the mum is forever smiling and posing with this poorly baby who should be in heaven now.

spiney · 08/07/2017 22:34

Could someone explain to me - Charlie has significant brain damage yes? Is this universally acknowledged? But on the CA Facebook page or his aunts twitter I think I read that his ' brain scans' ( MRI?) were 'fine'. What is the implication here? And then on the Good Morning clip Connie Yates was describing the monitors giving readings.

She also disputes that he is in pain. And surely this is a significant grey area.

She wouldn't really answer the question ( on Good Morning ) and the interviewer wouldn't really ask it either- what are you hoping this will lead to for Charlie? She talked about 10% improvement but then talked about a little girl riding her bike. It left me wondering what she is really hoping for. What can she really hope for?

I feel very confused. I agree that the child's rights must remain supreme but I do think a parents wishes should be taken wholeheartedly into consideration.

Somewhere it's all gone haywire between the hospital and Charlie's parents. I know sometimes hospitals can be very hierarchical and traditional in their approach with a great deal of deference required to certain consultants etc. I say this from personal experience. I am not criticising GOSH just wondering how the relationship seems to have broken down so badly. After all Charlie's parents must have got to know so many of the staff very well having spent so much time there.

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