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AIBU?

Charlie Gard case

999 replies

LovelyBath77 · 06/07/2017 09:41

AIBU to feel the drama over this poor little boy is not helpful? I read the Pope and Donald Trump were suggesting they help- when several courts have agreed it is in his best interests to let the little boy die with dignity. I feel sorry for him as he may be in pain and it is unfair to add further to false hope for the parents as well. I also feel that many, many people has awful situations where babies die, sadly, for example stillbirths and other cases which are just un-heard and un-noticed and people have to deal with it, so why is there such a huge focus here.

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BearsDontDigOnDancing · 08/07/2017 19:47

I do wonder just how much more awful this is making an already awful situation for other parents of children in that very same unit.

It is very easy to jump on a bandwagon and be all "keep fighting, he can get better" from behind a keyboard when you have absolutely no emotional attachment other than whatever you have managed to summon up to feel part of something.

That little boy is getting forgotten in amongst all the posturing about how great people are for "fighting" and how much they "love" him and all the self congratulation. All the while they seem to not understand or realise that every second, that baby is suffering. And it is only being prolonged. That very same child a bunch of keyboard warriors profess to love and be fighting for. What are they fighting for?

Do we want ruddy paediatric healthcare to be reduced to "your child, your rules" because that is what they seem to be fighting for. It seems less about Charlie and more about their own fear they do not have total control over their children. And I say that about the Charlie's Army lot.

I cannot even begin to understand the hell that Charlies parents are going through and I can see how they feel the need to fight and fight for their boy. But the way it has played out has been awful, for the staff at GOSH and for every other parent in that same unit, hospital, or who has been through the same thing. It is just an awfully sad situation all around really. And I do really worry for Connie and Chris once this is all over. They seem surrounded by this "army" but when the battle is done, who is going to be there for them and help them come to terms with what was going to always happen.

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SilverLining17 · 08/07/2017 19:48

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NannyOggsKnickers · 08/07/2017 19:51

This shitty circus needs to stop. I notice how the huns on the CA Facebook page are all about parental 'rights'. They don't seem to care about Charlie's dignity, quality of life or his rights at all. This just reflects a mind set where children are just extensions of their parents and not entities in their own right. I applaud the hospital and the staff for advocating to faithfully for Charlie's well being and trying to guard him so well and do so with such quiet dignity. CA should be ashamed of themselves.

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DorotheaBeale · 08/07/2017 19:51

"Great Ormond Street Hospital, hired to care for Charlie Gard, is not only trying to deny him care, but now also is denying him prayer."

hired to care for????

And GOSH has its own chaplaincy; Charlie and his parents could have their prayers and support at any time, without photographers in attendance and a media circus.

This gets more distasteful by the hour.

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Ellie56 · 08/07/2017 19:52

CA are talking of turning up at Heathrow waving banners for Trump to visit Charlie. Hmm
But it doesn't look as though Trump is visiting any time soon. No date has been fixed.

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ChardonnaysPrettySister · 08/07/2017 19:53

Doesn't Trump fly from Northolt or some military airport?

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SilverLining17 · 08/07/2017 19:54

CA were going on about a 'Charlie's law' to stop parents being 'stripped of parental rights.'

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EB123 · 08/07/2017 19:54

My sympathy towards Charlie's parents has long gone.

My sympathy firmly lies with Charlie, who even with the blanket looks so bloated and poorly. He is laid there most likely in pain but is being used as a prop for photos. It makes me feel sick tbh, nobody should be treated like this, I would never give my child such little dignity.

I can't look at that Facebook group anymore, they make me so angry with their stupidity.

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JaneEyre70 · 08/07/2017 19:54

I'm shaking with anger seeing those photos today. Imagine all the other families in that ICU with very sick children and under unimaginable strain, surrounded by all this circus. I'm sorry but I think the High Court need to completely overturn their parental rights now and stop this.

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Caprianna · 08/07/2017 19:57

JayneAyre, I agree. This must stop now.

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stitchglitched · 08/07/2017 19:58

I hadn't seen a photo of Charlie for a few days. I'm shocked at how swollen he looks. Poor little chap Sad

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SilverLining17 · 08/07/2017 19:59

I should think GOSH are heartily sick of it all.

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MirandaWest · 08/07/2017 19:59

I am actually finding it quite terrifying.

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Venusflytwat · 08/07/2017 20:00

I have been holding back from posting this for days but I really think Connie has lost all touch with reality now. I'm interested how much lower profile Chris has been. I think he probably has more of a footing in reality than she does now.

It's so sad. I think CA and her friends/family are doing them all a massive disservice. I hope if I ever went over into such a bad place my nearest and dearest would hold my face kindly but firmly and speak truth to me until I listened, or get me professional help if I couldn't hear them.

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SilverLining17 · 08/07/2017 20:02

CA cannot spell allowed.
The pastor was not 'aloud' in. Luckily the monsters that are GOSH changed their minds. Just as well else CA would have 'kicked off'
Who are these people who think they can just get their own way all the time?

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MrGrumpy01 · 08/07/2017 20:02

The post about the pastor sent a shiver down my spine. It is just point scoring. If you have beef deal with it in private.

I wouldn't be surprised if the whole 'no you can't come in' happened during a general ward closure but twisted on SM.

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Ellie56 · 08/07/2017 20:03

I hadn't seen a photo of Charlie for a few days. I'm shocked at how swollen he looks. Poor little chap

He is obviously deteriorating. There is no way he is going to America or anywhere else for treatment.

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JaneEyre70 · 08/07/2017 20:04

The fact that GOSH are still dancing to the parents tune is frankly bewildering. Why should a random Pastor be allowed into an ICU - doesn't that make a mockery of the visitor rules in there?

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SilverLining17 · 08/07/2017 20:05

CA think he's grown and it proves he should have more treatment

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TheFairyCaravan · 08/07/2017 20:06

Charlie is swelling more as each day goes on. It's really upsetting.

It all needs to stop. But god knows what will happen on Monday if it doesn't go their way.

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Ellie56 · 08/07/2017 20:07

I thought rules in ICU were very strict because of the risk of spreading infection. Maybe they've allowed the creepy looking pastor in because they know it's not going to make any difference in this case?

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alltouchedout · 08/07/2017 20:10

CA are really disturbing. And Charlie looks so, so unwell.

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PlaidMaid · 08/07/2017 20:13

This is also my first time posting on the subject but I've been following it closely. Sorry if this has already been discussed but what is the best outcome for Connie and Chris if Charlie is allowed the treatment? Say he does improve by the 10% they're claiming, what's the long term prognosis? A 90% chance of no improvement doesn't sound like much at all. So do they truly think Charlie will grow up and be completely recovered? Or do they expect him to remain profoundly disabled and... what? Care for him at home? Would they have the physical and emotional support required to do that? Or would he remain in the care of GOSH indefinitely? Presumably his life expectancy will still be quite short even with this treatment and the possible 10% improvement?

Sorry there's lots of questions there! It seems the whole focus is on the fight to get Charlie the treatment with no thought given to what happens afterwards, let alone what poor little Charlie may be experiencing in the meantime...

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CaveMum · 08/07/2017 20:14

Chardonnay Yes, Trump would probably either fly into Stanstead or RAF Northolt.

We live near RAF Mildenhall and when Obama last visited he landed at Stanstead then Air Force One was flown to Mildenhall where it stayed until he was ready to fly home. We also had Marine One (the helicopter) and its escort fly over our house.

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