Charlie Gard case

[LovelyBath77]

AIBU to feel the drama over this poor little boy is not helpful? I read the Pope and Donald Trump were suggesting they help- when several courts have agreed it is in his best interests to let the little boy die with dignity. I feel sorry for him as he may be in pain and it is unfair to add further to false hope for the parents as well. I also feel that many, many people has awful situations where babies die, sadly, for example stillbirths and other cases which are just un-heard and un-noticed and people have to deal with it, so why is there such a huge focus here.

I think they might have to succumb to the pressure

If we've reached a point in time where qualified medical professionals would set aside their professional expertise and ethics regarding their patient- because emotionally overwrought parents and unqualified strangers stamp their feet loudly enough, then we're heading into seriously murky territory as a society.

💙TRUTHS ABOUT CHARLIE GARD:

💥 Charlie's eeg isn't flatline which would mean brain dead . Normal is 5hz(hertz)and Charlie goes up to 8hz.

💥 GOSH tries to say Charlie cannot breath on his own. But his brain stem is intact . Brainstem controls vital functions to sustain life like respirations, body temp, & eye reflexes.
Even if you flat line the EEG as long as your brainstem is ok then you can breathe.
Non working Brain stem=death.

💥 Charlie can't breathe on his own because of his muscles which are effected by the mitochondria syndrome . Medication will in theory improve this . This is why he can possibly come off a vent in the future .

💥 Charlie's eyes were seen by an eye doc and he said there is no reason Charlie shouldn't be able to see .

💥 Charlie can't cry because he is intubated and it effects his vocal chords , but he can makes tears , the other half of crying.

💥 POINT BLANK PERIOD THE END...
There is NO irreversible structural damage, he still has brainwaves, there is absolutely nothing wrong with his brainstem so he's nowhere near braindead.
GOT IT? 💥
#savecharliegard 💙💙💙💙💙

This is what has been posted this morning by the 'army', this is the kind of expertise that think they know best.

PD we are in agreement, we usually are. I'm trying to sit on the fence and listen to all sides but I'm all for ending people's suffering, especially when they have such a poor quality of life. At the moment this little boy has no quality and that makes me so sad.

Hasn't this "10% chance of the treatment helping" has come from the "5 doctors worldwide" who the parents claim are supporting their position?

I've obviously no idea who they are, but am certainly aware that medical ethics differ worldwide ... and I expect it's possible, somehow and somewhere, to find "doctors" who'll say whatever you want them to if it's made worth their while

If this is what's happened, then in theory there might be no end to this. Every time a resolution's been reached, the £2 million could easily be used to fund yet more doctors who'll have a different view

If we've reached a point in time where qualified medical professionals would set aside their professional expertise and ethics regarding their patient- because emotionally overwrought parents and unqualified strangers stamp their feet loudly enough, then we're heading into seriously murky territory as a society.

THIS, absolutely.

And that's why we're all entitled to a view. There are wider principles being tested here.

PacificDogwood the Vatican has described the mother as 'very determined' which could be a euphemism for all sorts of things. The medical staff at GOSH are respected worldwide and incredibly experienced at handling these very tough situations. I'm not sure much dysfunction is required, just a parent who refuses point blank to accept what other parent have had to in the same situation.

I think they should let him go to America or to the Vatican it's got to the point now where people are accusing gosh of lying about his illness having it verified by a different medical team would be good for the hospitals credibility long term

Other parents.

Medical ethics vary even between the US and the UK.

abbsisspartacus, why on earth should they have to verify anything?

I'm another who fears the precedent that would be set if GOSH are forced to back track purely due to non medical pressures.

Me too.

Legally can they backtrack?
Do they not have to follow court orders?

Unless significant new information not previously available to the courts is revealed how on earth could anyone have faith in decisions made by doctors and courts if this one is reversed?

We could have numerous challenges and publicity.

Why not have a vote on Saturday night telly? Which cute kid gets the oxygen? It's the next logical step of public (uninformed) opinion 'wins' this one.

LogicalPsycho

I think they might have to succumb to the pressure

If we've reached a point in time where qualified medical professionals would set aside their professional expertise and ethics regarding their patient- because emotionally overwrought parents and unqualified strangers stamp their feet loudly enough, then we're heading into seriously murky territory as a society.

I absolutely concur.

Total

Encephalitis means brain inflammation. He doesn't have that. Encephalopathy is a broad term meaning a disease that alters brain function or structure. It can mean/caused by anything from infection, drugs, poisoning, metabolic conditions, hormonal conditions, structural problems, hypoxic-ischaemic conditions. Many causes are reversible and treatable. Like your sister's. Many aren't. Like mitochondrial encephalopathy. Like Charlie's.

abbs But medical teams other than GOSH have already verified GOSH including one from Barcelona.

Maudlinmaud Yes, GOSH can overrule the court decision if they so chose to.

"'very determined' - hm, yes, that might cover any number of things.

It's about Charlie's suffering.
A transfer to anywhere is likely to be difficult for him to endure.

I am not aware that the Vatican hospital is a world-class centre of excellence for mitochondrial disease. Whereas GOSH has all the expertise one could wish for for a vanishingly rare condition.

Yy to dangerous precedent potentially being set if the parents 'win'.
In reality there are no winners here

Logical do they not have to go back to court to do that though? What a fucking massive waste of resources.

I hope the family donate all their money to Gosh.

PacificDogwod,your right no winners and massive expense,that expense to be going to help other sick children, its wrong, all wrong!!!

OhUnpretentiousSpud

You do know that I took that from what they posted this morning? That wasn't me commenting?

OhUnpretentiousSpud, who is CA? and how do you know?

stop Oh whoops! I'm so sorry! I will ask MNHQ to delete my post, apologies!

GOSH would have to go back to the High Court to get the order changed if they wanted to deviate from the plan at all. And they'd have to explain their reasons. Which would be interesting. I can't see GOSH making an application on the basis of external pressure knowing that the judge can only make orders in Charlie's best interests.

So it would have to be new, credible information or a material change of circumstances that took them back to court.