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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To elicit not to have children due to fair to medium chance of an early death

128 replies

ThatsJustHowIFeel · 15/04/2017 10:48

Unfortunately our family line has two diseases in it which both claim people young. To my knowledge no one has survived beyond the age of 75.

I am 36 nearly 37

Of course I am 'over' the loss of my parents. But the loneliness, the difference and disconnect from my peers - are hard.

I always thought I'd like to be a mother but AIBU to consider this is perhaps selfish given I probably wouldn't live beyond their 30s?

OP posts:
hackmum · 15/04/2017 18:59

OP, I understand completely where you are coming from. My own mum died of cancer when I was in my early 20s. I have a friend whose mum died of breast cancer when she was 13, and then her sister died in her 40s of another form of cancer. Her dad also died of cancer when she was in her 20s. This particular friend got genetic testing and as a result had a hysterectomy because she was at high risk of uterine, ovarian and breast cancer.

The questions I'd ask you to consider are: what does your partner say about it? How keen is he to have kids? Also: what are the diseases, and how likely are you to get them? Is it just that your family have a propensity to things like cancer and heart disease, or is it something like Huntington's where the gene gets passed on?

If it's the former, then I would go for it. Generally these days people are living longer than their parents and you can reduce your risk through healthy diet, exercise, not smoking etc , plus the genetic testing my friend had if that applies to you.

Beebeeeight · 15/04/2017 19:10

Have you actually had it confirmed by a medical professional that you have 'the gene' that's makes your risk of early death higher?

Sunbeam18 · 15/04/2017 19:33

75 is a ' good innings'

StealthPolarBear · 15/04/2017 19:39

I don't think people are disputing that sunbeam

user1471451355 · 15/04/2017 20:57

My parents were already retirement age when I was born. If they live a VERY long life they'll be around another 10-15 years (my late 30s), but I expect I'll carry on without them and I am very thankful for the life they gave me. I'd not let this stop me having children if I wanted them but only you know what's best for you.

NabobsFromNobHill · 15/04/2017 21:00

claim people young. To my knowledge no one has survived beyond the age of 75

75 is very far from young.
My parents died at 45 and 53. I had five children. If I happen to die young, they'll have each other, their other parent, various other family. I can't see how they'd be better off not existing at all just because I pop off early, seems a little self absorbed to imagine so, personally.

But if you don't want children you don't need any justification.

DixieNormas · 15/04/2017 21:23

This reply has been deleted

Message withdrawn at poster's request.

MrsTerryPratchett · 15/04/2017 21:30

There's a joke in our family that everyone dies at 56. And it's unfortunately true for many. My dad manages to rub along in his 70s, extremely lucky (his DB died in his 50s). But I'd rather exist. If he hadn't taken a chance, I wouldn't be here.

Your partner? Long-living relatives? Because I married a man with rellies into their 80s (for insurance).

KnickerBockerGlooooory · 15/04/2017 21:38

My mum and dad died at 45 and 54 respectively so I completely get where you're coming from - I don't really expect to live to a ripe old age! However it didn't occur to me not to have my own children because of this; I have pushed hard however to get regular check ups and notes on my medical files so that if any symptoms do surface they are taken seriously very quickly. Good luck with your life choices either waySmile

ThatsJustHowIFeel · 15/04/2017 21:46

Thank you.

It is cancer, and I realise many reading this will have also lost loved ones to cancer Flowers but I'm sure you all know there are cancers and cancers and some are more likely to have a positive outcome than others.

I hesitate to say this as I realise you can't generalise about grief but two points.

Firstly, some have told me they lost their parents and are sad but not devastated.

There is a huge difference in losing a parent as a child and as an adult, even a young adult. For children the instinct is often to keep things as normal as possible. I feel this is unwise, as it gives children an impression nothing much has happened. I remember crying after the funeral and someone disparagingly asking me 'what was I making such a big fuss about.' Hmm

For a child, parents are the centre of the world and for this to be removed it is enormously painful.

If you came through that and don't identify with my explanation it may be because your surviving parent was in a fit state to deal with your grief. Unfortunately mine was not - partly because he was also unwell.

My second point is that losing one parent is awful. But until you lose both I don't think you really can fully appreciate the sense of discombobulation and loss of identity even. A sense of belonging to a family unit, even as an adult, is an important one.

Now there is an age where obviously you expect this and as Claudius tells hamlet 'your father lost a father' but nowadays, most people expect to live to a good age, and most people generally don't lose both parents until their forties, fifties and even beyond. I had buried both mine when many of my friends were also mourning their grandparents.

I'm also conscious it will lead to a further disconnect further down the line - when my friends do start to lose their parents - far from identifying and understanding I think the general feeling is my losses are so far away as to be meaningless.

Not a day has gone by I haven't thought about both my parents. I'm not sure I miss them any more - my mother certainly not as I struggle to remember her.

But has it left its mark? Yes; I wish I could say it has not and that I shrugged and smiled and realised that my parents would want me to carry on. But it has left its mark.

Small ways - as a student doing a college course we had to leave our placements and I had nowhere to go in holidays. It was assumed most students would go 'home' I of course could not so was homeless. I slept in my car or on friends' sofas and spent Christmas Day one year in the early 2000s alone eating salt n vinegar crisps for Christmas lunch. I know that shouldn't matter now but it does. My days as a young woman that should have been filled with fun and happiness and heartbreak were instead spent trying to find where I fit into the world. I graduated and no one came. A hundred and one ways you are reminded of what you don't have.

And because of the lack of a safety net there is a tendency to cling tightly to what you know.

I'm digressing because I'm trying to explain how different it is to someone in their twenties very sadly losing one parent. That's awful, it's heartbreaking and you have my compassion. But it is not the same as what I went through and that's why I worry so about potentially putting any future children through it.

OP posts:
myusernamewastaken · 15/04/2017 22:10

I lost both my parents at age 26 from seperate causes...mum was 52 and my dad was 56....it has been very hard and i feel so sad for my kids who have no grandparents.

Sunbeam18 · 15/04/2017 22:14

I understand totally how you feel, OP. Sorry I made a thoughtful remark before, before reading the full thread. Sending you warm wishes in finding the right answer X

Sunbeam18 · 15/04/2017 22:14

thoughtless

PippaRose · 16/04/2017 07:26

So sorry for what you went through OP, I lost my Dad in my early 20s but still have Mum and she's been a great support for both my brother and I. Not having somewhere to go at Christmas and inbetween uni is very tough.

We have been identified as in scope for some genetic testing, previously we didn't think we had enough family members impacted. I have a son and all of this came to light when he was 6 weeks old so I felt tired and emotional about all! But now time has passed I wouldn't change anything (and would go on to have another) and I just have to hope that if I am not around for him that his Dad is and he has support around him.

It's a tough thing to have to think about and consider.

Minniemagoo · 16/04/2017 07:37

Op, you were in the same position as my Dad, his dad and mum died within 6 months of each other, his mum was only 40, his Dad 15 years older. But in his case he had an amazing extended family. His Aunt became a second mum and is like our Granny. She is still alive, going strong in her 80s, though Dad is not and like his parents died young, suddenly aged only 57.
I think what you missed wasn't just your parents but family. Theres a real loneliness coming accross in your posts.
I can understand you wanting to protect your (hypothetical) children from this but what if you meet someone with an amazing loving extended family,?

PuddockToad · 16/04/2017 07:46

My DH died at 37. Both DCs well under 10.

Life is still worth living. Without them, it might not be.

They laugh every day

Crumbs1 · 16/04/2017 07:50

Well treatment for most cancers has improved significantly in past two decades. If it's smoking related- lung, threat, stomach then your chances of developing it are massively reduced by not smoking - to the point of negligible risk. Same with alcohol- not drinking cuts risk significantly.
I think talk to GP as risk level may well not be what you are imagining.
Because historically your family died at young age from cancer isn't necessarily going to impact on your longevity. Imagine, you could be going through life thinking you'd only got 50 years when you might actually live to twice that.

GinIsIn · 16/04/2017 08:02

I think you need to take a step back - it must have been awful to lose your mum at 49, but just as cancer treatment will have evolved by the time you are 49, think how far it will have evolved by the time your children are....

My stepdad's mother died of cancer when she was 52. We lost him to the same cancer at 63, 2 years ago. Just in the 2 years since we lost him, there have been huge strides in the treatment of this kind of cancer. My stepbrother, his eldest child, is 41 now and by the time he reaches the age at which his grandmother and father died, it looks increasingly likely that the cancer will be treatable if he does develop it. And a near certainty for his child, who is 11.

My son has a heart defect, which he has inherited from my DH. We didn't know DH had it until we had children and it was diagnosed in DS. I don't wish for a second we hadn't had DS, and I'm glad of every minute I get with DH.

Dozer · 16/04/2017 08:13

I'm very sorry about your parents dying young.

Someone close to me experienced similar, although in their case it made them want to have DC more.

Have you had advice from a geneticist? This has been really helpful for friends with health conditions with genetics as a factor. It might be that your personal risk of these cancers is actually much lower than you think.

Beebeeeight · 16/04/2017 08:22

I think you would benefit from grief counselling.

It sounds very isolating for you after your parents died.

You can cushion your dcs by making sure they will inherit a house to live in so they aren't homeless like you were.

Have siblings so they aren't alone at graduation.

Family isn't just about parents.

BarbarianMum · 16/04/2017 08:26

I think it's easy to say "anyone could die anytime" but much harder to know that, actually, you have reason to believe you might die young. No one ever comforts the mother whose just discovered their child has a life-limiting condition by telling her that "any child could die anytime" do they?

I'd get some genetic counselling before making a final decision OP but I don't think that I'd have had children if I'd known I'd likely be dying whilst they were still children/teens themselves. Flowers

NoFucksImAQueen · 16/04/2017 08:37

I get what you mean op and I can't believe pp called you arrogant! Hmm
My sisters parents died when they were young (8,9,13) and I know it had a real impact on them and understandably so. I'm 28 and married with 3 kids and still rely heavily on my mum to help with the kids and just be around. I know not everyone has that, I don't expect her to, but I can't say it doesn't make a big difference.
I felt a great deal of empathy for you reading your post and I can totally understand why you are questioning having kids.
I have no advice, just wanted to send hugs ❤

hungryhippo90 · 16/04/2017 08:49

This may seem an insensitive question, but if you wanted children and knew that death was likely to be early, why did you leave it as late? I feel awful asking that, but I do wonder.

I would however say that even if you were to pass when the children were relatively young, this would be sad, but this is a situation many families find themselves in without any forewarning.

I don't think having children in this situation isn't necessarily bad as long as you will be well enough to bring them up, and their father is willing to be around.

Can I ask what your illness is? I wonder whether it's the same illness that my mother has.

ThatsJustHowIFeel · 16/04/2017 08:57

Hippo, do you really think I was happily married, secure and considering children ten years ago but decided to delay it because of a skiing holiday or something? Hmm

My parents did leave me a house. I was homeless because I had to let it out to get through college. Believe me, no matter how well-insured you are and no matter how thoroughly you think you have ensured your children will be okay, nothing really makes up for a parent. I do have a sibling for instance who found my mothers death so traumatic that she had a huge fight with our dad and walked out a few days after Christmas one year and turned to drugs. She's off them now and is doing pretty well but back then her coming to my graduation would have been a no-no! Yes, some will claim similar happened to them but the point is a parent and especially the mother, sexist as that is, are so key and so crucial to that family unit.

I am grateful for those who understand why I am hesitating. It is in no way a personal attack on anyone who lost a parent young. I do not need grief counselling, thank you.

So I think I will not have children although I will look into genetic counselling. One thing I will concede is that I am possibly frightened about the vulnerability of loving them so much and having to leave them Sad

OP posts:
babyinarms · 16/04/2017 09:09

It must be awful to feel how you do but none of us know what's ahead of us. I pray I'll live to see my kids grow up but there are no gaurantees .
If you would really love to have children ( and this is the only reason that's stopping you) maybe go for some counselling to help clear your mind. You have had awful experiences and that's bound to affect your choices in life. It's terrible that you didn't have extended family to step in and look after you. If you're dp has extended family, maybe that would put your mind at ease also. Best of luck, whatever you decide. Flowers