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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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To want to run away

689 replies

LostJennyWren · 15/12/2014 10:15

Today is my 25th birthday, likely the last birthday I will ever have. I have recently been diagnosed with a rare cancer, and the prognosis is not good. I have a two year old daughter. Every time I look at her my heart breaks. She will never remember me.
Anyway, all of my family and friends want me to enjoy my birthday. My DH wants us to do something special as a family and pretend everything is normal. But I can't. AIBU to just want to check myself into a hotel room alone and spend the day crying? I can't cope anymore. Nothing helps.

OP posts:
LostJennyWren · 04/01/2015 00:25

I have just written my son a letter. It's too much of a jumble and preachy to give him but I don't want to just delete it either. I will post a little of it on here so I can not include it in his letter folder without guilt:

My beautiful sweet boy. I love you. I love you so much and I was looking forward to a lifetime of saying those words to you. It can’t be that way now and it breaks my heart. Sweetheart, know that just because I am no longer with you doesn't mean that the love I have for you has gone away. It will always be with you. I am part of you. It was my love that made you and that will never, ever change. I know I didn't get long with you. No amount of time would have ever been enough though my darling. The time we had was special. The time we had together was the best time of my life. Every time you smiled at me you filled my heart with joy. When I was diagnosed with this evil, awful sickness it was you I fought for. It was you and my love for you that made me brave. I’m sorry I had to leave you. Please don’t be angry at me and please forgive me because I fought so hard to stay.

OP posts:
LostJennyWren · 04/01/2015 00:32

Goldmandra I don't know what we are doing yet. I hope I feel well enough to go for a walk with my husband and son. He was a late walker and it's so special to see him walking along the woodland paths with his reigns on. I know I am lucky that I get these special moments with him. I am fighting the unfightable in the hope I will get a few more.

OP posts:
Fedupmuch · 04/01/2015 00:36

Lovely letter that will be treasured by your son Jenny. I'm lost for words. I just want to give you a big hug. Xxx

Cataline · 04/01/2015 00:41

I think you should include the letter - it's beautiful and heartfelt and will mean SO much to your son when he is older.

Goldmandra · 04/01/2015 00:54

I hope you feel well enough to walk together tomorrow.

The words you've written are beautiful and will mean a great deal to him when he's older if you can include them. They are perfect.

Imnotbeingyourbestfriendanymor · 04/01/2015 00:58

This reply has been deleted

Message withdrawn at poster's request.

SunshineBossaNova · 04/01/2015 01:02

That's a beautiful letter Jenny. x

MulledLairyFights · 04/01/2015 02:33

That letter is beautiful.

If you can, try and hand write it. My mother's handwriting is very special to me. xxx

Goldmandra · 04/01/2015 10:48

I hope you're managing not to crumble today, Jenny.

LostJennyWren · 04/01/2015 20:57

Goldmandra managed to remain stable until my beautiful son went to bed. Crumbling a little with my husband now. How dare I be taken away from this wonderful man? He looks so afraid.

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LostJennyWren · 04/01/2015 21:01

Goldmandra I did manage to go for a short walk thank you. Hope you too had a lovely Sunday.

OP posts:
attheendofmyteatheragain · 04/01/2015 21:17

I've only just caught this thread, but I think you are amazing. your boy, (and husband) will never forget you and you will always be a huge part of him. you are doing great and DO seem incredibly strong. your handwriting, your photos, the videos of you and photos together, he will hold them close to his heart and think of you each and every day. I too wish I could give you a hug, and I hope you find peace Thanks

ChillySundays · 04/01/2015 22:14

I am glad you managed a walk and the letter is beautiful. Your DS will cherish when he is older.

We are all thinking of you.

ghostyslovesheep · 04/01/2015 22:17
Thanks

I can't think of anything useful to say but I am thinking of you all x

Goldmandra · 04/01/2015 23:00

Thank you Jenny. I didn't manage a walk myself but did kick my DH out with the dogs for a while which I'm sure did him good Smile

I'm glad you got out there. It was a lovely day where we are and watching toddlers exploring the outside world is one of my favourite things to do.

Has your DH been able to talk any more realistically with you about the future?

ADishBestEatenCold · 05/01/2015 00:13

Dear Jenny, I am so sorry.

In reading your posts, I am reminded of someone I used to know; indeed someone I still know, because of course, although he is no longer with us all, our loss did not eradicate our memories of him alive. If you see what I mean. I still know him.

I do remember, not long after he was told of just how quickly terminal his cancer would be, him talking so much of what he would miss ... his children growing up, their milestones, he was so worried about leaving them, about his wife, of how she would cope alone, and conversely, that she might not cope alone for long, that she may remarry, and there lay more of his own loss! He spoke of the loss, the fears and the sadness, and it clearly hounded him, for a period, although he was also clearly trying to do as much as he could for his wife and children.
Anyway ... the point of me telling you of this ... a few weeks further down the line, he spoke to me of that period. He said it was during that "frantic with fear and loss" time that he found he had done a lot of his own (very significant) grieving and that, if he hadn't done that, he could not have faced his fears, supported his family in their grieving, nor enjoyed his wife and children for whatever time they all had together.

I don't know if what he said to me means anything to you. Some of your words reminded me of his.

Another couple of things I remember him doing ... may not be helpful, but I will mention them as I remember them just now.
He extracted promises from friends and family ... just little things, but very important promises all the same. Small significant little tasks or reminders, some relating to his wife and children, some relating to others, some related to things he would like to happen or to be remembered. None huge, none very taxing and, as far as I'm aware, most of these small promises have been kept.
The other thing I remember is in those last few months, he created a lot of the milestones. Yes he did letters, a diary and videos, but it seemed that (when he felt well enough) he must have sprinkled more than a little poetic licence on the family milestones. There were quite a few 'firsts' ... days out creating memories, I suppose ... and I'm sure their family all had at least one birthday each in that short period, while he and his wife seemed to have at least three anniversaries!
This was quite a few years ago and I know his wife, family and friends have used the memories of those last couple of months to preserve things for his children.

Thinking of you Jenny, and I hope you can keep posting.

AndHarry · 05/01/2015 08:23

Jenny your letter is beautiful. I'm so sorry this is happening to you. A few years ago I was given a mid-diagnosis of a cancer that would have been fatal. I already had a large tumour so it would have been very quick. My son was just 1 at the time and I remember trying to continue to make everything normal for him and getting hit again and again with the realisation that I was going to die and he wouldn't remember me. Often it would feel as though the words were being beaten into my head or chest with my pulse. It was an absolutely awful time and I really feel for you.

Other posters have given you lovely suggestions on what to do for your son. I was also doing letters for him for significant milestones, storybook recordings and photos. I was also going to do personalised cufflinks for him to wear on his wedding day (if he wanted to of course!) with my fingerprint on them, like you can get with a baby's prints.

I know the fear, grief and anger can be paralysing but if you can, the best way to help your husband is to get your paperwork in order so that he has doesn't have to struggle to organise it when he may not be really capable of doing so. This is things like putting details of bank accounts, insurances, pensions, passport, online accounts and passwords in one place that he knows about, making your will and also making a living will with your wishes for your care and giving him power of attorney so that he can make decisions quickly if he needs to and you are not capable of giving your consent. I know it is very difficult but this truly is the best way to help him in a practical way.

Flowers
PoppySausage · 05/01/2015 08:53

Jenny your letter is beautiful. If I had lost my mum when I was little I would cherish a truly heartfelt letter like that.

CrapBag · 05/01/2015 10:47

I have nothing to add except agree that it's not fair. I know someone young who lost her battle last year and it is heartbreaking. Your family are sad because you are important to them, don't under estimate your importance to them.

Don't feel you should be doing anything, just do what you need to do. The way you are feeling is completely understandable and anyone in the same situation would feel the same.

Try not to focus on what you have been told by the doctors. The person I knew went way past the time she was told that she had left, she couldn't be told how long in the end because she had kept on going for a couple of years past the doctors predictions. I am not trying to give you false hope but just don't accept it as you never know what can happen. Try and live in the here and now and take each moment as it comes.

Flowers xx

CrazyTights · 05/01/2015 11:09

OP, that's a lovely letter and I really think you should consider including it. Heck, it made me nearly cry and I never cry over stuff I read on the Internet. I'm too hard hearted by half

bananayellow · 05/01/2015 14:07

I'm crying.

I was diagnosed with cancer last year. I was lucky and have the all clear.

In my darkest hours my thoughts went exactly where you are now. Everything you say was my worst nightmare. I cannot imagine actually living that nightmare. I was planning the memory boxes but didn't actually have to do them. What I endured was awful. You are enduring much worse. There is no right and wrong way to react. You are grieving for the future you should have had and the future that your family should have had.

My children were slightly older so would remember me. I remember thinking it would have been kinder if they were younger so they could have wonderful memories of me through videos etc, but with less of the pain.

I think you should print out this thread and make sure someone gives it to DS when he is an adult. It is heartbreaking to read but it gives a real picture of your thoughts and your love for him and your bravery and yes, your fear. It is an insight in to you and what a wonderful woman you are. He needs to read this as well as the more positive stuff that you are planning for the significant milestones. Your love for your family shines through.

Just sending you as much strength as I possibly can, to help you through this awful time.
It is so unfair.

LostJennyWren · 05/01/2015 18:40

bananayellow thank you for your post. I am pleased to read you are now
cancer free. It's terrifying isn't it?

I hadn't thought of giving him this thread to read. It shows me in my darkest and most vulnerable light, because that is when I reach out to Mumsnet. Do you think its okay to share that side of you with your child? I would never want to cause him any pain.

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Goldmandra · 05/01/2015 19:42

Do you think its okay to share that side of you with your child?

I think it's something that's might help him if and when he has children of his own. That is likely to be a time when your journey is in his thoughts and he will have the maturity to cope with the pain you are clearly feeling.

How you can be sure he would wait until he is an adult is another matter. I don't think it would be great reading for a vulnerable teenager.

editthis · 05/01/2015 19:44

Jenny, I am late to this thread and don't have anything very practical to add, but I wanted to tell you how brave I think you are, and how lucky your son and husband are to have you.

I understand about not wanting to show yourself in your darkest hour. Perhaps you could print out the thread and decide later, or leave it in the hands of your husband or a trusted friend to decide whether it should be passed on. It might be good to have the option later on, but equally you may not want to show anyone. Only you can decide.

Sending so much love, wherever you are.

bananayellow · 05/01/2015 19:59

Terrifying is a massive understatement. My heart goes out to you.

I agree that if you decide to print out the thread, then you should make sure he never gets to read it before he is an adult. Only you know if you have someone that you can trust with that responsibility. By showing your darkest and most vulnerable side then you are really giving your child to the chance to get to know the real you. I think he could really value that, but again someone you trust could judge whether it would be appropriate for him. Perhaps some of the other posters who lost a parent at an early age would know better than us.

Thanks