Jenny
I had some cervical cells discovered and removed years ago so now twice yearly am monitored for any new developments. I had my DS 1 year ago. On my recent visit as I sat waiting to be seen, with my mum and DS in buggy in hospital corridors with me, a whole new kind of fear spread through me. Not dreading the horrible invasive, painful procedure. Not worrying for selfish reasons id be ok. But the sudden thought of what if my test are negative again and something took me away from him.
I cant for a moment imagine how you are feeling now, when this fear is a reality. But on TV the other day someone else with terminal cancer said “we are all just visiting here”.. some “visit” earth for 80 years and some much more briefly but unhappy etc etc. We are all different but that look-out really struck a chord with me, I know it doesn’t help or link to your situation but just a thought to share.
Just as others have said really, but please make as many possible recordings of everything to do with you and your DD together. Write the most random notes and letters whenever anything occurs to you, all day long e.g. “got into road rage today, your mum must confess she finds male drivers so ignorant and annoying!” or had my favourite chocie bar today, and notes about your DDs lovely quirks etc etc. any notes that sum up you, so she will always have a complete picture of you, your quirks, likes/dislikes, habits, hobbies, feelings.
With all this she will know you so well, better than a lot of grown up daughters know and are closer to their own mums. Never give up a bit of hope and just another 2 pence- I firmly believe life doesn’t just stop still, you will be around one way or another. xxxxxx