This won't define how you are remembered, Jenny.
You and your little family have shared an awful lot more than this dreadful illness.
I wish I could answer the question about death. I guess if we cease to exist, we cease to suffer. We cannot know what we are missing or feel the loss of not being with our loved ones.
If there is something else we must have faith that it is a better existence and we can watch over our loved ones without pain and fear.
I can't imagine a better excuse for being self-centred than the one you have right now. All your energy is going into coping with what is happening to you. You need to give yourself permission to concentrate on that.
Try not to push your DH away too much. Given the choice, he may prefer to be close and taking the brunt of your pain and anger rather than keeping a safe distance. Let him choose to do what he feels he can cope with.
If it helps to cry out for help on MN, keep doing it. There's no merit in being brave apart from in front of your DS.
Also consider asking your GP for something to help you feel calmer if that's something you would like.
QOD isn't the only one who wishes she could come and give you a hug xx