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Share your dilemmas and get honest opinions from other Mumsnetters.

To wonder what reasons people give for being willing to accept an organ but not donate

593 replies

crashdoll · 13/02/2013 20:20

What the title says really.

I am happy for all my organs to be donated when I'm gone. I'd also accept an organ transplant if I was in that position. I know there are religious reaons for not donating certain organs but I do wonder how people can rationalise not donating organs if they are willing to accept.

OP posts:
CloudsAndTrees · 14/02/2013 19:04

Either you believe your reasons for not donating are valid, or you don't.

I don't feel the need to have my feelings validated.

I think my reasons are valid for me, but I don't think that gives me any kind of say over what is valid or not for other people. Other people's feelings about their own organs are nothing to do with me.

Lifeisontheup · 14/02/2013 19:04

Just added my name to the donor list, I used to have a card but have no idea where it went. Have sent the suggested email to my DH so he is in no doubt what my wishes are although I'm sure he would want to donate too.

Does anyone know if you have to update the register if you move?

CloudsAndTrees · 14/02/2013 19:07

Ledkr, I missed your post directed at me, and I'm sorry that I thought one of your previous posts was aimed at me when it wasn't. I'm just trying to discuss people's various thoughts on a difficult subject.

Of course I have compassion for a mother in terrible circumstances, and I'm genuinely sorry for what your family is going through.

ComposHat · 14/02/2013 19:07

I'll accept and give any organ going duckie.

[Does high pitched Kenneth Williams laugh]

jeee · 14/02/2013 19:08

Aggressive posts will not make anybody think, "gosh, I really should go on the donor register."

Yes, as TantrumsAndBalloons says, people should be prepared to donate if they would accept a donation. But if the aim of this thread is to encourage people to sign up, these kind of posts are mind-bogglingly counter-productive.

I've suggested this on previous threads about transplants, but I'll do it here again, anyway. Perhaps people who have received organs, or have had family members who have had one can tell their stories - to explain someone's enormous generosity, at a time of deep bereavement, can transform the lives of others.

My sister had two liver transplants, which gave my family an extra eight years of my sister. I will always be indebted to the donor families.

expatinscotland · 14/02/2013 19:09

'I guess maybe a difference in my head is that while I understand that after brain death, a person is dead, if their body is still going, they just aren't completely dead.

People are a body and a soul in my mind. That person isn't completely gone until both parts are finished. The soul being gone but not the body doesn't mean to me that the whole person is gone.'

Clouds, my daughter was never brain dead. She went first into kidney failure, then liver failure, and her lungs, well, she developed this pneumothorax/air escaping from failed lungs.

She was dead when that vent was pulled. The amazing ICU consultant, my child's own consultant got him in per my request, told me exactly what would happen if we did not pull off that vent, and how he'd seen it and it haunts him. That poor man. And I knew from two other doctor friends it was true. I'm so glad he levelled with us and we were able to give her as dignified a death as possible.

But she was dead. Her kidneys had failed, her liver had failed, her lungs had failed. If there was a chance for her organs to be harvested for transplant, I'd have been more than willing to agree because I can tell you, when your loved one is dead, you know. She was not technically brain dead, but her heart beat all of about 10 times after that vent was pulled and she never breathed on her own. She died because her lungs failed.

As it was, it wasn't a possibility for her to donate, because of her leukaemia and stem cell transplant.

And it makes me sad. You see, she was buried 'intact' and 'whole'. There was no need for post mortem as her cause of death was very clear.

We were able to donate the 500mL of her cancer-free bone marrow harvest before she went for transplant herself to medical research, and I can tell you, this gives me great comfort, that somehow, there is something left of her that may help others (her form of leukaemia was relatively rare, and even more so in children, and even rarer still is to have someone survive to produce such a harvest).

I think it's very selfish, really. When you die, you are dead. You do not come back, and your body doesn't go with you.

If there is a chance to spare others the grief that goes with losing one's loved one, I think it's the human thing to do.

Fair enough, if you chose not to, but then you should not be able to receive, IMO, as an adult.

Maryz · 14/02/2013 19:10

This reply has been deleted

Message withdrawn at poster's request.

CloudsAndTrees · 14/02/2013 19:11

And someone else being motherless, that's ok?

No, premature death for anyone isn't ok, and I will continue to donate blood and would willingly give bone marrow if a match was found for me to try to prevent that. It will still happen though.

ledkr · 14/02/2013 19:11

clouds thank you.

lifes yes maybe we should all use this thread to remind ourselves to update our details. That would be far more proactive.

Maybe the call will come tonight. You never know.

TantrumsAndBalloons · 14/02/2013 19:11

AThing so now you have decided you aren't going to save anyone's life?
So a person who needed your organs, who was fully prepared to donate their own if possible, will die?

And that makes you what? Morally superior?

Get a grip. And read back what you just wrote.

Doesn't that make you a scumbag?

Oh but no of course not. Because you have a valid reason to let people die don't you? Much more valid than anyone else.

Maryz · 14/02/2013 19:11

This reply has been deleted

Message withdrawn at poster's request.

weegiemum · 14/02/2013 19:12

((expat)) I know what you went through with your dd, as much as I could. She would have loved to let others live on after her death. She was such a generous soul. I wish everyone was like her!

Maryz · 14/02/2013 19:13

This reply has been deleted

Message withdrawn at poster's request.

TantrumsAndBalloons · 14/02/2013 19:14

And FWIW, even I don't think my DH should be able to receive a transplant if he isn't willing to donate, other than by giving blood and bone marrow.

I hate it.

But I can't change his mind, it's not mine to change.

And whilst it is probably hard to accept, because its hard for me to accept, that doesn't make him scum.

Adsss · 14/02/2013 19:14

Lifeisontheup well done and a big cheer Thanks. Thank you for taking the extra step to register

clucky80 · 14/02/2013 19:15

Hi Jeee I have had a double organ transplant and have talked about a few things relating to it in this thread from how it has saved my life and meant that I could have my DS to the relationship I now have with my donors mum.
I am so sorry about your sisters passing but I am so happy for you all that she managed to have 8 years more of her life to spend with you all.

Sadly I think that many people just think that it is something that will never affect them or their families and I guess they can justify their decision more to themselves thinking this.

The comment about not wanting a strangers organs inside you is understandable I suppose but believe me I am so so happy to have 2 of my donors organs inside me keeping me alive every day. It is very hard for me to get my head around the fact that I have got a boys organs inside me, a boy who I know a lot about and have seen pictures of but will never get to meet to thank (not in this world anyway) but I thank god/whoever every day for the amazing and brave donors and their families and the wonderful surgeons and NHS system we have in this country.

ledkr · 14/02/2013 19:16

expat that was hard to read never mind write. Don't let this thread make you feel any worse than you do. The majority are good people. Lives will still be saved even if not enough.
Don't know what to say so ill shut up now.

BrianCoxandTheTempleofDOOM · 14/02/2013 19:16

I know I can't donate blood, due to having a life saving transfusion in 1995.

I always assumed I could donate organs and my family are aware that is my wish. At some point I did sign up to be a donor, have no idea if that has lapsed or I need to re-register though as it was years and years ago.

I need to read the thread really don't I slaps self for committing MN sin of not reading the full thread

CloudsAndTrees · 14/02/2013 19:17

Except if you or your child needed one. In which case you feel you have a right to accept one

It's not up to me to decide for my child. When my children are old enough to express their own wishes about organ donation, I will respect them whatever they are.

This thread is going round in circles now, but as I said earlier, I'm open to having my mind changed if anyone has anything new to add.

FairyJen · 14/02/2013 19:18

athing I think I've made an accurate guess as to who the scum is on this threa and I didn't look in the mirror!

There are people in here who have gone through unspeakable loss who are tryin to explain the value of donation to posters like myself and they have carried it off with grace, dignity and politeness.

No one on here is spoiling for a bun fight except you

Maryz · 14/02/2013 19:21

This reply has been deleted

Message withdrawn at poster's request.

ledkr · 14/02/2013 19:21

maryz no worries. We are the lucky ones. Dialysis will keep him alive until we find a donor unlike many other illnesses so ds and I are always positive about it. In fact I bought him a fray bentos steak and kidney pie for his birthday.
Jeeez thank god it's half term/ valentines day so I can indulge in some weekday wine.

CloudsAndTrees · 14/02/2013 19:23

Clouds, you might be able to prevent someone being motherless. If you were in a car accident, you might be able to save someone else.

I could, possibly, but in doing so I'd make my own husbands grief at the death of his wife even worse. Should I just ignore that completely?

Expat, your post is heartbreaking. I don't know what to say. Of course, I am so sorry for what happened to your daughter. I'm not trying to be patronising btw, I doubt anyone could feel anything other than genuine sorrow upon hearing yours and your daughters stories.

BrianCoxandTheTempleofDOOM · 14/02/2013 19:23

ok, so this thread is not what I expected it to be when I initially replied Shock

I have read some posts, skim read others does anybody know if I can donate having had a transfusion and being unable to donate blood?

Thanks

TandB · 14/02/2013 19:23

I find it so hard to understand people being willing to accept an organ - even to the extent of being willing to do so under false pretences, like Fairyjen - but refuse to do the same for others.

A friend of mine donated a kidney to her brother. She didn't think twice about it when she found out he needed one - she went to be tested and told them straight away that she wanted to do it. She went into a hospital and let them cut her open and take a part of her out in order to save her brother. If someone is capable of that level of self-sacrifice, I find it staggering that anyone would refuse to allow what is, when all is said and done, a lump of dead flesh, to be used to save someone else's life.

If I knew someone who held these views in real life I would judge them and I would find it hard to look at them in the same way ever again.

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