AIBU That Mumsnet won't allow any discussion on the Sally Roberts case?

[Zealey]

There's something about her that is media hungry - if she hasn't sold her story to a tabloid or glossy mag in the next week then I'll take it back. But more importantly, WHY is Mumsnet towers deleting any threads discussing the case?

My son was diagnosed with cancer in January and I cannot begin to describe the shock of the diagnosis which is then coupled with the awfulness of having to decide and/or consent to having hideous things done to them almost immediately. It would not surprise me in the slightest if she is just completely in denial about the whole thing. My son looked and seemed extremely well, but his bone marrow was crammed full of leukaemia cells. Agreeing to have my son operated on and have poison pumped through his veins and injected into his spine was very hard when he apparently was so well. She really has my sympathies.

However, I don't agree with her actions. I feel that she is being irrational about it (understandably so, however) and I think that it is right that the courts have been involved. I think her refusing anti-emetics for him is mean, frankly, and I also have concerns about the 'experts' who are supporting her. When she was 'on the run' with Neon she was found with a man called Kevin Wright who, it was reported, had had a son who had survived medullablastoma without the need for radiotherapy. This was incorrect as that man's son actually had a neuroblastoma and the father is due in court soon on fraud charges www.thisisexeter.co.uk/Bobby-s-dad-fraud-charges/story-15988320-detail/story.html - that seriously discredits her views, in my opinion.

aargh yet another crass cross-post

sorry

Don't worry greensleeves !

mrsdevere Thank you, he is doing very well but the worry is endless! I was raging when I read that he was involved - it kind of changed the whole case on it's head for me.

I actually do think that this thread should be deleted. What a horrible bunch of judgemental, holierthanthou people - some of you are.

So quick to jump to conclusions and have opinions when you have no idea what is going on. I wish the media would just fuck off on this too.

Best wishes for your little boy, Tabitha.
What are anti emetics, btw.

anti-emetics is medication to stop you feeling or being sick.

I am that anyone would not want their child to have that tbh.

Anti-emetics are medication that stops you feeling/being sick. Very important after surgery to counteract the side effect of the morphine and other opioid pain relief.

I have no truck with the comments about Sally Roberts appearance and the unfounded speculation on the reasons for her action. They are unkind, unhelpful and unnecessary.

However, I still think that from an ethical point of view this case is an interesting one to discuss.

To all the very very sad posters on here hugs and love and to all parents coping with this unbelievable pain.

Poor Sally and her dh. None should judge unless they have walked in these steps.

I work in radiotherapy and I would just like to say that while the treatment is gruelling the side-effects are not always horrendous. It saddens me that much has been made in the media about the mother's belief that it will leave her son severely disabled with his IQ reduced. This is not really the case. Many of our patients (for medulloblastoma) have gone on to live very full lives with degrees working as teachers, radiographers etc and parents themselves.

It worries me that the media coverage will scare parents and patients when really radiotherapy can be a very effective treatment.

I agree with you too Happy

The media coverage is so skewed and designed to make the general public judge. I also really hate the fact that the headlines call him 'cancer boy' - he is a boy who happens to have cancer

I was wondering why I hadn't seen anything about this on here.

Tabitha- I wish your you all a merry Christmas, and to all the families who are affected.

I remember Bobby's fund well, I was very angry when I saw what that man had done and to see him involved in this case is saddening.

For this case, I wish this little boy gets the best life he possibly can, with plenty of love and fun.

I will not and cannot even bring myself to comment on her decisions, so sorry to those who have been through this.

I think she is desperate. And also that she is being used by the media, both by the newspaper she has allegedly signed up with and by the media who wish she would sign up with so that they could give exclusive interviews.

I think the hardest thing is when two parents both want the very best for their child, but both think that opposite things are "the best" which is what has happened here.

I can't understand the doctors who are appearing on tv and saying "he has an 80% chance of survival with this treatment" - because googling seems to make that complete bollocks.

So I have come to the conclusion that I don't know exactly what he has, or what the outcome is (with or without treatment), that both his parents really, really, really want him to survive with few side effects and that they are taking different routes to that.

And also the conclusion that, whatever they do, they are unlikely to have a happy ending .

So I'm not going to criticise any of them. Not his mother, his father or the judge.

She flicked her hair? Whilst her son is ill? leanandhungry you are an idiot. A very crass one.

MrsDeVere, I just want to scoop you up and take you away from these horrible, horrible threads. And you Edgar, and you Tabitha!

I think we could all do well to remember that most of us have happy healthy children. We don't have a clue what this woman is going through, we just see a snap shot on the news. We don't know what she has been told by the doctors, we don't know the life Neon is facing. She does, she has her reasons for doing what she is doing.

Last night, MrsDV told us to google the survival rates for the recurrening type of cancer Neon has. I did. All I could say was Fucking Hell! Perhaps some of you should do it tonight!

I would hate to be in this situation. Which parent has more of a view. Which parents opinion/beliefs should be listened to. Who decides what is best for the child.

TabithaMcKitten Fri 21-Dec-12 20:17:59
your post really explained it for me.
hope your ok x