Meet the Other Phone. Child-safe in minutes.

Meet the Other Phone.
Child-safe in minutes.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To expect Croydon University Hospital to treat me in a better manner than this?

137 replies

WhyAlwaysBoris · 20/05/2012 20:35

This is very long, sorry. It is about the hospitals treatment of me during my pregnancy and miscarriage.

I really need some outside perspective- so many things have happened that seem rubbish to me, and I don't know if this is because they are rubbish, or if I have massively high expectations and need to revise them downwards.

At my booking in appointment the MW was strange- lots of odd things including crossing out the bit in my notes where it said there was a family history of mental illness on the grounds that 'depression isn't a mental illness'. I just ignored it and hoped next appointment would be better.

Second appointment at 16 weeks cancelled on the day it was supposed to happen as they had not realised the building would be shut for the Christmas holidays. I was offered a replacement appointment but it was after my 20 week scan.

I kept ringing to try and rearrange- more than 50 times in total, never answered. Left numerous messages, never returned. Eventually I left a message saying if they didn't ring me back within 48 hours I'd sent a written complaint.

Someone phoned me. I was told that the MW from my booking in appointment should have given me other numbers as the number she had given me was a line that was never staffed. Was told they had just taken on a lot of new people who 'weren't up to speed yet' and someone had been drafted in to sort things out.

They also said that if I had left messages they would have been answered. They maintained every message was logged in a book and I had never left any previous messages.

This put me in the rather ridiculous situation of having to offer to send it an itemised mobile bill to prove who was telling the truth- at which point they suddenly 'found' thee lost messages which were in the book after all. The lying aspect of made me very uncomfortable.

At my 20 week scan it was found that I had had a missed miscarriage and the baby had died between 14 and 16 weeks. I was induced but advised not to see the baby as it had deteriorated since it had passed away some 4-6 weeks prior to this.
If I had had my 16 week appointment it obviously would not have saved the baby, but I would have known weeks earlier and would have at least had the opportunity to say goodbye properly.

The PM suspected a clotting issue but could not confirm as the hospital lost the placenta despite the doctor insisting at the time of delivery that it was very important it was sent off (which including ordering a nurse to retrieve some of it out of the toilet so that it was complete). They still lost it.

The appointment to receive the PM results told us to go to an address that did not exist (the building, department and zone of the hospital all conflicted)- We were variously sent back to the place where we had had the scan telling us the baby had died, back to the place where we had had the initial meeting after the scan to explain the baby was dead, back to the place where we had had the booking in for the induction and finally to a fourth place where they sat us in a waiting area with a 3 minute video on a loop of a new born baby. By the time someone actually found out where we were supposed to go we were in a complete state.

We were told we would need blood tests to pinpoint the blood clotting issue, and the consultant said he would like to see us in 3 months to discuss the results- this would be in May.

Two weeks before the appointment I received a letter saying he would see us on the 31st August now instead of May.

I rang the consultant's secretary who said she would try and get me anther date and ring me the next day. She did not. I rang her the day after and she said I should be waiting for a letter. It was as if we had never spoken and she had never promised to phone me.

I got the letter yesterday morning and it was just the final straw- it became apparent why she didn't ring me. It is an earlier appointment, but not with the consultant but a much more junior doctor and in biro scrawled underneath they have written 'we have now cancelled your appointment with the consultant in August'. So we don't even get to see him.

If you have read all this, thanks for sticking with me.

I am tempted to complain but don't think it would do any good- by the time someone rang me about the 16 week appointment I had already sent the threatened letter of complaint and I was told this would be taken seriously and investigated and after the MC I would be emailed with the results so that I could choose when to read when I was feeling OK. I never heard from them again.

What should I do?

OP posts:
WhyAlwaysBoris · 22/05/2012 15:05

x post with Bemybebe

I am so so sorry to hear about the loss of your little girl.

How kind of you to think of me when you must have so much of your own stuff to worry you.

Thinking of you too

Thanks
OP posts:
bemybebe · 22/05/2012 15:27

Thank you Boris. I just think that when one had a similar experience they appreciate just how truly awful you feel. I think I do. You OP brought all the memories flooding in... I also remember (amongst other things) sitting in the reception room waiting for the bereavement appointment with the consultant surrounded by all the happy pregnant ladies discussing various aspects of their pg and impending births and the bf video on the loop. All I could do was to lean forward and hide my face in the palms of my hand whilst my shocked husband was rubbing my back. It did not help that the consultant was 1h40m late, but we were told she would be calling us "any minute".

The problem is that life is life and people die, but to have the system on top on you hammering you down is just so dreadful. You are one strong lady, but please do take care of yourself.

As for me, I am pregnant again, due in just over 4 weeks and this pregnancy was a million times harder given our experience last time. It also makes me very aware of a quiet person sitting in that reception room whilst I am waiting for my antenatal appoinment- maybe she is going through what I went through less then a year ago??

WhyAlwaysBoris · 22/05/2012 15:35

Bemybebe Gosh that experience in the waiting room sounds so hard for you.

Congratulations on your pregnancy- almost there :)

I'll bet you could do without the sudden heatwave.

I know what you mea about your experience last time overshadowing things this time- I was so innocent last time, i thought once the 12 scan was fine there was nothing to worry about, and i have definitely lost that innocence now....

I have just got a bfp but i have this sense of impending doom about it, don't know if this is intuition that something is wrong or just my experience last time overshadowing but it is horrible, isnt it?

Know exactly what you mean about noticing the quiet lady in the reception room. I was soooo disgusted yesterday when i realised croydon hadn't changed their signs to the epu as i know what going in there is like, and i was so cross for all those ladies who'd be getting lost on top of that.

Maybe i'll organise a MN outing to tippex over their signage when i'm feeling a bit less tearful!

OP posts:
flibbertywidget · 22/05/2012 15:56

Just this to you both (((((((()))))))))))

bemybebe · 22/05/2012 15:56

Fantastic news Boris!! Please don't take the negativity you may experience now as a "sign". I am sure it is just the fear of history repeating itself plain and simple. I hate that expression "what does not kill us makes us stronger", it does not, it made me expect the worst at every corner and get annoyed with people telling me that the chances of bad outcome repeated are very small. But it does help to force oneself to rationalize things and not to rely on the emotional responses alone, which is natural. Chanel your energy to fight for the best care you can get now. My hospital recalled me for scans every 2-4 weeks partly I am sure because I complained that my concerns in prev pg were totally ignored and I will not put up with that second time round quietly (i had suspected incomp cx and was group B strep positive = lethal combination).

Good luck and yes, your signage MN outing sounds like a bloody good idea!

WhyAlwaysBoris · 22/05/2012 16:20

Thanks for the PM about this, RDW, I have PM'd you back.

OP posts:
cherrytree63 · 22/05/2012 23:34

I'm feeling very sad at your story, hope you find a way through your grief. I am a maternity support worker at St Thomas (hi to the poster who had 3 weeks on ANW....) and totally reccommend the maternity dept there. I had an op at Mayday last year and had a couple of complaints, I went into the PALS office and they are very supportive. Told me what they would dofor me, and DID it, followed everything up with phone calls and letters, so I would suggest you pay them a visit. xx

WhyAlwaysBoris · 23/05/2012 07:20

Thanks cherrytree, really good to hear recommendations from someone who works there. If I end up there I will have to drop MNet hints to try and find you! Maybe sit in the waiting room and say 'pom bear, anyone?' and sees who laughs. We should have a secret handshake. have emailed pals, working v long day today so can't go in.

OP posts:
Hattie23 · 23/05/2012 14:09

I also work at St Thomas'. Not in maternity (although did visit the birth centre the other day and it seemed v nice). I am obviously completely biased but I work there because I think it is a good hospital. Kings is also good (can be non-biased too Smile)
Will listen out for talk of Pom Bears in the corridors.

WhyAlwaysBoris · 23/05/2012 19:38

Hello everyone,

have to tell you very exciting news!!

Went into the hospital to have my second blood test and THEY HAVE CHANGED THE SIGNS TO EPU!!!

I am so pleased!!!!

Just think, nothing for two years and then two days on mumsnet sorts it out!!

Isn't this a brilliant invention!

Doesn't really make things up but certainly helps.

I took some pictures on my phone on monday of them all wrong and some more today of them sorted out so if someone can explain to me how i can put them up somewhere and link it here i can show you before and after pictures and we can all admire our work :)

Still no sign of an appointment time but the blood test results are no longer urgent so it doesn't really matter anymore. HCG level had dropped, so no hope that a baby will survive, and at some point i will miscarry, so don't need clotting meds.

Had to take the call in the middle of the office and then front it out like nothing was wrong for the rest of the afternoon so not the best day i've ever had.

Still feel very proud that no-one else is going to wander round any more.

OP posts:
AKMD · 23/05/2012 19:45

I'm sorry for your bad news :( Thanks

Yes, you should be proud of yourself. Getting the signage corrected will make a real difference and stop extra worry and confusion for already worried and confused women and their partners.

showtunesgirl · 23/05/2012 20:06

Wow WhyAlwaysBoris what a lovely person you are to be happy that you have helped others when you've had such bad news yourself.

I wish I knew you in RL. Thanks

WhyAlwaysBoris · 23/05/2012 20:21

AKMD and Showtunesgirl thank you for your lovely posts. Am very touched. xx

OP posts:
FairyDairyLand · 23/05/2012 20:23

Please also post your story on www.patientopinion.org.uk/

Posts are copied to people that can make a difference within the hospitals you post about, and it's a site that really does make a difference - kind of like trip advisor for hospital care..

Hassled · 23/05/2012 21:06

I am so delighted with the sign news - that's brilliant. And am glad to see that the Trust posted - hopefully you'll be able to tell yourself that no-one will ever have to go through what you went through in the future.

HokeyCokeyPigInaPokey · 23/05/2012 22:22

I'm so sorry to hear your news op Thanks

Sending you best wishes and strength x

cherrytree63 · 24/05/2012 09:50

WAB.... I'm sorry to hear your news, I wish there was something I could say or do to ease your pain... xxx

WhyAlwaysBoris · 24/05/2012 18:49

thanks cherrytree, i'm hanging in there today.

OP posts:
Longtalljosie · 24/05/2012 19:03

Hey Boris - you didn't miss the post from the hospital on page 2 did you? x

PeanutButterRaptosaurus · 24/05/2012 21:01

So sorry to hear your news boris Sad

WhyAlwaysBoris · 24/05/2012 21:26

Hi Josie, yes i did see it and i have contacted them.

They asked me if i'd go in for a meeting and i said yes.

I asked them for an appointment with my consultant (no word)

and a copy of my notes, which i can have for the princely sum of £35 which i think is a hell of a cheek when it is obvious to all concerned that i'm only requesting them because there has been serious issues of dishonesty in my care.

OP posts:
Longtalljosie · 24/05/2012 22:32
Shock

Yes that is a hell of a cheek...

vezzie · 24/05/2012 22:48

WhyAlwaysBoris,
I am so sorry for your loss.

You have definitely been treated unacceptably badly and have strong grounds for complaint.
fwiw my experience of that hospital is that although there are some great practitioners working there, the admin, strategy and planning is shocking. i found that a little upsetting at times, (as it resulted in insensitive or shoddy care); in your case i would have found it beyond devastating.
It's up to you of course what you do, but rest assured, it's not you, it's them.

HokeyCokeyPigInaPokey · 25/05/2012 07:23

£35, they cannot be bloody serious, maybe worth considering speaking to the Advertiser now. That is outrageous, if it was £10 it would be outrageous, how can they even consider charging you?

marshmallowpies · 25/05/2012 07:41

I live on Croydon borders & had heard about the reputation of this place (didn't realise the name had changed).

I went to Kings instead & was very happy with it - or Thomases, as others have said, sounds very good too. My SiL used to work at Kings and had her children there, so that reassured me, if the staff think it's good enough for them, it should hopefully be good enough for everyone.

You definitely deserve an apology & better treatment than this, after all you've been through, hope that you can get it in Lambeth instead of Croydon. Lots of Croydon residents come over the border for breastfeeding groups, NCT etc so lots of help you can get here - wonder if there might be somewhere you can get post-MC counselling too?

Congratulations & hope you get some kind of closure & peace of mind from Croydon in the end.

Swipe left for the next trending thread