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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To expect Croydon University Hospital to treat me in a better manner than this?

137 replies

WhyAlwaysBoris · 20/05/2012 20:35

This is very long, sorry. It is about the hospitals treatment of me during my pregnancy and miscarriage.

I really need some outside perspective- so many things have happened that seem rubbish to me, and I don't know if this is because they are rubbish, or if I have massively high expectations and need to revise them downwards.

At my booking in appointment the MW was strange- lots of odd things including crossing out the bit in my notes where it said there was a family history of mental illness on the grounds that 'depression isn't a mental illness'. I just ignored it and hoped next appointment would be better.

Second appointment at 16 weeks cancelled on the day it was supposed to happen as they had not realised the building would be shut for the Christmas holidays. I was offered a replacement appointment but it was after my 20 week scan.

I kept ringing to try and rearrange- more than 50 times in total, never answered. Left numerous messages, never returned. Eventually I left a message saying if they didn't ring me back within 48 hours I'd sent a written complaint.

Someone phoned me. I was told that the MW from my booking in appointment should have given me other numbers as the number she had given me was a line that was never staffed. Was told they had just taken on a lot of new people who 'weren't up to speed yet' and someone had been drafted in to sort things out.

They also said that if I had left messages they would have been answered. They maintained every message was logged in a book and I had never left any previous messages.

This put me in the rather ridiculous situation of having to offer to send it an itemised mobile bill to prove who was telling the truth- at which point they suddenly 'found' thee lost messages which were in the book after all. The lying aspect of made me very uncomfortable.

At my 20 week scan it was found that I had had a missed miscarriage and the baby had died between 14 and 16 weeks. I was induced but advised not to see the baby as it had deteriorated since it had passed away some 4-6 weeks prior to this.
If I had had my 16 week appointment it obviously would not have saved the baby, but I would have known weeks earlier and would have at least had the opportunity to say goodbye properly.

The PM suspected a clotting issue but could not confirm as the hospital lost the placenta despite the doctor insisting at the time of delivery that it was very important it was sent off (which including ordering a nurse to retrieve some of it out of the toilet so that it was complete). They still lost it.

The appointment to receive the PM results told us to go to an address that did not exist (the building, department and zone of the hospital all conflicted)- We were variously sent back to the place where we had had the scan telling us the baby had died, back to the place where we had had the initial meeting after the scan to explain the baby was dead, back to the place where we had had the booking in for the induction and finally to a fourth place where they sat us in a waiting area with a 3 minute video on a loop of a new born baby. By the time someone actually found out where we were supposed to go we were in a complete state.

We were told we would need blood tests to pinpoint the blood clotting issue, and the consultant said he would like to see us in 3 months to discuss the results- this would be in May.

Two weeks before the appointment I received a letter saying he would see us on the 31st August now instead of May.

I rang the consultant's secretary who said she would try and get me anther date and ring me the next day. She did not. I rang her the day after and she said I should be waiting for a letter. It was as if we had never spoken and she had never promised to phone me.

I got the letter yesterday morning and it was just the final straw- it became apparent why she didn't ring me. It is an earlier appointment, but not with the consultant but a much more junior doctor and in biro scrawled underneath they have written 'we have now cancelled your appointment with the consultant in August'. So we don't even get to see him.

If you have read all this, thanks for sticking with me.

I am tempted to complain but don't think it would do any good- by the time someone rang me about the 16 week appointment I had already sent the threatened letter of complaint and I was told this would be taken seriously and investigated and after the MC I would be emailed with the results so that I could choose when to read when I was feeling OK. I never heard from them again.

What should I do?

OP posts:
WhyAlwaysBoris · 21/05/2012 15:44

Loonybun i am so sorry about your gran, that is terrible. I hope the hosptial you are at now are treating you really well and making up for the horrible time you had. Think May-die very funny in a you've got to laugh or you'd cry kind of way

OP posts:
amicissimma · 21/05/2012 18:07

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Message withdrawn at poster's request.

Hattie23 · 21/05/2012 18:17

NHS worker here (nurse) and I am normally the first to jump to the defence of the NHS - but not in this case, you poor thing.
It sounds like you have very good grounds for a complaint. It may just help others in future.

Brightspark1 · 21/05/2012 18:34

Also NHS worker here, always been a passionate defender of the health service. Not this time though, your treatment has been inexcusably bad , please give
PALS a go, I understand you my not feel up to it, but they shouldn't get away with this. Had both DCs at Kings college, scruffy old place but I received excellent care.

Lambzig · 21/05/2012 19:30

I am so sorry to hear your story and can only echo others advice to go somewhere else, your experience is horrendous. Try and get a copy of your notes (they do have to provide this if you want it, but may charge for copying it) so that you can take all your results to a new hospital. Good luck.

Kveta · 21/05/2012 19:38

oh Boris how horrible for you :( I think you should definitely complain AND switch hospitals, you have been treated atrociously.

but congratulations on the new pg - will keep fingers crossed for you! :)

montague · 21/05/2012 19:54

I'm so sorry to hear about your experiences. What you have described is completely rubbish and you are not being in any way unreasonable to expect better treatment than you received.

For the moment though I would focus on trying to ensure that you get speedy results from the clotting tests and that you get an early appointment to discuss these if they disclose an issue so that if you need treatment you are getting it.

If St Thomas's is an option for you I would consider being referred there. I saw a consultant there when diagnosed with a clotting issue after miscarriage and found her helpful. St Thomas's also has a research link with the Hughes Syndrome Foundation (which is concerned with the blood clotting disorder antiphospholipid syndrome). Whether or not it turns out that you have a clotting issue, the people in the early pregnancy unit at St Thomas's are nice. I have been there a few times in early pregnancy and although they can be busy have never felt badly treated.

Sending you all my very best wishes for smooth sailing from here on in

SpamMarie · 21/05/2012 20:06

You should definitely complain as without a complaint nothing will change and how you were dealt with was wholly unacceptable. This is simply a case of lack of organisation, and with some staff training and procedure review can be easily rectified. It's appalling that it was allowed to become this chaotic.

My sympathies for you that this hospital made a hard time so much harder than it needed to be.

Northernlurker · 21/05/2012 20:06

I am also an NHS employee and I agree the Croydon hospital has fallen far short of what should be done. I hope you can get to see somebody elsewhere very soon and that your pregnancy proceeds smoothly.

Hassled · 21/05/2012 20:07

This is so appalling.
Google tells me that the interim chief executive is [email protected].
Interim chairman is Michael Parker - no email address given but probably safe to assume the same protocol - so [email protected].
Am happy to email both with a link to this thread if you're happy for me to do so, OP.

WhyAlwaysBoris · 21/05/2012 20:10

thanks everyone.

Monntague i was actually considering Thomas's so its good to hear good things about it, thanks

Kveta hello Nice to see you. How are things for you at this stage??

I had my hcg level it is very low. Sad
Won't know more till wednesday eve /thurs am but not great hopes, unfortuanately.
HCG is 32 and i'm officially 4 + 3 (although i think i'm more like 4 + 1 but still low.

OP posts:
WhyAlwaysBoris · 21/05/2012 20:14

x post with hassled.
Can't believe you have take the time and trouble to look that up.
So many lovely people on this thread :)
By all means email them if you want to, it would be very nice if they perked their ideas up but to be honest i have concluded that things can only be that bad there if those in charge really don't care at all. I mean two years to not change the signage to epu? Even if you were vaguely bothered, surely you'd have got around to that by now.....

OP posts:
Hassled · 21/05/2012 20:21

Not a problem at all and was the work of moments :). Have emailed them both urging them to read this thread.

Northernlurker · 21/05/2012 20:33

Interim senior management? I wonder if that means that there have been wider issues with the hospital. Not an excuse for your experience but may explain why things have been so difficult.

HokeyCokeyPigInaPokey · 21/05/2012 20:41

You must live near me op.

I have two dd's and refused to go there for both pregnancies due to family members having awful times there during pregnancy. I had both girls at Farnborough (Princess Royal) i have no complaints whatsoever.

I had a mc last June, i was only about 9 weeks. I called nhs direct as was a Sunday. A doctor from Croydon University called me and asfter asking for my symptoms, agony and bleeding her asked me "what i expected him to do about it?"

I think it's an awful hospital, you have been dealt with appallingly and you should complain and complain until someone listens.

I am so sorry for your loss x

CrumpettyTree · 21/05/2012 20:44

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Message withdrawn at poster's request.

CrumpettyTree · 21/05/2012 20:45

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WhyAlwaysBoris · 21/05/2012 20:46

that was very kind, hassled thank you.

Just told my DH about this thread. He was very touched by all the replies & also said- did you tell them about the iphone incident? (which i'd forgotten)

After delivery i had retained placenta and heavy bleeding. Doc came into room to see if he could stop it but the examination light didn't work and (I'm really, really not making this up) another doctor was already using the torch So he had to get the nurse to hold his iphone up with the light on and tried to work from that.

Then the doc and nurse had a bit of an altercation when the light went off as she didn't know how to the finger swish thing to keep turning it on and he was trying to explain as he had blood on both his gloves and couldn't do it and felt she wasn't listening to his instructions properly.

Oh the fun we had!

OP posts:
CrumpettyTree · 21/05/2012 20:48

This reply has been deleted

Message withdrawn at poster's request.

TeaandHobnobs · 21/05/2012 21:08

Boris so sorry to hear about your experience. I would say definitely pursue a complaint if you are feeling up to it, and maybe consider if you would benefit from some counselling for the whole ordeal? Not only did you go through an extremely traumatic experience with your loss, but to be treated so appallingly as well... Sad

Another vote for moving your care to St Thomas' - having recently spent 3 weeks on the antenatal ward (and previously been at the EPU as well), I honestly think it is the most fantastic hospital. I think you would be very well looked after by them.

Many congratulations on your new pregnancy and wishing you all the best Thanks

showtunesgirl · 21/05/2012 21:20

So sorry about your awful treatment OP.

If you can choose your hospital, would King's be an option for you? I had my DD there and she came out with a funny leg, it was bent the wrong way and she was promptly seen to by more specialists than you could shake a stick at.

HokeyCokeyPigInaPokey · 21/05/2012 21:24

I have heard nothing but good things about Kings. I don't know whereabouts you are but i thought Farnborough Princess Royal was miles away but it's only the other side of West Wickham.

WhyAlwaysBoris · 21/05/2012 21:29

Hi CrumpetyTree although it was my only PG I have had lots of clotting tests done as it was a late MC and the PM suggested clotting.

The only test i haven't had i may need is something called a TEG that they only do at st mary's r.m.clinic. That finds clotting issues when the nhs tests come back clean.

We have got enough money together to go and have this done if the tests they have done all come back negative, but private care generally is completely out of the question financially at the moment.

Hadn't thought of kings, maybe because i had my wisdom teeth out there so always associate them with teeth and forget they are actually a proper hospital as well! Might have a think about it, but am very swayed to ask to go to St Thomas's based on the feedback here

They weren't overly optimistic about it being a viable PG, though, based on very low HCG. I just have to hope it has risen lots by wednesday, but probably shouldn't get my hopes up yet.

OP posts:
WhyAlwaysBoris · 21/05/2012 21:32

hadn't really thought about conselling....i'm going to a church thing in a week or two where will be opportunities for lots prayer counselling and i'm hoping that might really help. Will see after that how I am.

OP posts:
WhyAlwaysBoris · 21/05/2012 21:33

showtunes girl hope your DD is ok now.

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