I am not going to read all this as I've already had one nervous breakdown in the last 2 months and frankly another would be surplus to requirements.
Anyone who thinks we get everything should come and visit! My family consists of me (carer, PT student) and DH (FT student following redundancy graduating soon, PT worker going FT on graduation, severe MH issues following events of last few years. Worked FT often on permanent nights all his adult life prior to redundancy).
Also the boys (all born BEFORE redundancy was ever worried about)...
DS1- Asperger's, severe enough to necessitate a SN school placement
DS3- autism, won;t ever work I would guess due to concentration- attends Sn palcement. The LEA want him to attend a school with several hundred more children than places (Wales, different admissions system here) without support: er no. Over my dead body and all that. He doesn;t function in a group over 12 kids anyway so hardly!
DS4- being assessed, clear AS, at MS pre-school attached to Primary but might not stay at a guess after year 2. Has waited since April to see someone but nowhere near top of list yet.
DS2- was referred formally Friday, school suspect ADD.
I plan to go back to work when ds4 starts school, if I can't find anything before September then I will go self employed but no idea how as lease says I cannot register business to this house- only a consultancy but still can't pay business rent without clients = vicious circle.
Anyway:
2 get DLA. We have no plans to apply for other boys as right now there are no additional costs incurred by their SN, which is spirit of it. DS1's needs have increased if anything but expect him to be downgraded in December when reapplying because it is happening to everyone with his DX. At 12 he still sleeps little and needs constant supervision, never goes out without an adult. Neither DH or I have ever claimed anything health related, not even when I could not walk for 3 months in my twenties which actually was pretty damn stupid in retrospect but there you go. Quite possibly led to my then relationship ending.
We get Tax credit help but that will halve with Universal Credit even though IMO anyone who can't see dealing with several children with SN adds more complications (eg we have 4 schools!) is a dunce. If ds1's DLA is downgraded I will be forced to work or attend workfare, we will have no carer exemption.
After my breakdown my GP and HV have gone to battle to get me help. HomeStart are coming Friday although ds4 is 4 in April so won;t get much support but grateful- used to work fro them so know what their waiting list is like! NAS are offering us 2 hours a week from a befriender for ds1.
Social Services have been asked to help us several times nd refused- I had a carer's assessment before breakdown so their legal duty is complete and apart from a holiday club that EVERY child in my county gets access to, it's a great big sod off.
Up until now it has been nothing at all though so you know, improvement. Family can't help as not in Wales plus they have my Grandad to care for and he is 91.
We do NOT have a council house or mobility car.
My studies are in ASD, post grad but very part time and over years- luckily covered before redundancy, by about a week in fact (same week DH's place was told no redundancies possible grrrr). I have ahd emails telling me I should not be studying or that is a 'nice hobby' becuase I won;t make anything of it; like Hell I won't!
The breakdown consisted of me getting exhausted after 12 months of no sleep and convincing myself that my family were such a drain that I personally would do the county a favour if I were dead and euthanised. Thank goodness for citalopram.
If anyone who thinks disabled and carer famillies get it easy you should swap. If you want to then you are so nuts you should seek help.