DLA is an essential benefit to enable people to cover the extra costs that arise through having a disability. I have uncontrolled epilepsy, and need special pillows for if I have a seizure in the night, to prevent suffocation if I end up face down during a nocturnal seizure - they cost me £30 each, and need replacing every 6 months. I need to pay an annual subscription for my medical bracelet to keep the information held on it up to date. I need to spend an absolute fortune on bus fares because the free bus pass I am offered cannot be used before 9.30am, therefore I cannot use it to get my dc to school (too far to walk). I have to get my shopping home by Taxi as I am not allowed to drive. I have to have extra kitchen eqiupment such as a kettle tipper.
I would not have any of these extra expenses if I did not suffer from this disability. Yet the riteria for qualification for DLA for epilepsy for adults has changed. It used to be (until last July, just as my renewal was due) that you automatically qualified for DLA for epilepsy if you had an average of one seizure/ loss of conciousness a week (ave. 52 seizures/yr). Now you have to have an average of two seizures a week to qualify (ave. 104 seizures/yr). So I no longer qualify.
I'm no more employable when I could have to take at least 52 days off per year because of my disability, than I would be if I had to have 104 days off. Employers still aren't willing to employ me.
These cuts disgust me. For 99.9% of the disabilities you can claim DLA for, there would just be no way of 'making it up'. Have these people that are talking about medical tests for DLA ever actually seen a DLA form or tried to fill one in? It's like the seventh circle of hell, and you LITERALLY have to spell out how many times a day you have to go to the toilet (for needing help), and if you need help cleaning yourself up when you have a period. Nobody fills in information like that if they don't actually NEED the money!