Worried about overactive thyroid despite thyroxine dose changes

[PerkyOchrePeer]

Very worried as ive been diagnosed with an overactive thyroid. My thyroid has been u der and made stable with thyroxine but it's now overactive and the dose of thyroxine was changed and it's still overactive so they have changed it again and in 6 weeks I will have another blood test to see what's what. I. So worried as this can lead to heart failure. I am having palpitations and lkst weight and have fatigue. Ive never been so worried I can't eat or sleep due to the worry.

if you’ve had it for years you likely had Hashimotos when younger or a different autoimmune type or hypothyroidism (ords iirc) which has fully destroyed your thyroid.

testing won’t help anything

I’ve found mine has been hard to get right during perimenopause and breast cancer treatment. I need enough to think straight but occasionally I seem to slip into too much. I think it’s because I need quite a lot so a slight swing is exaggerated

the only way I can really keep on top of it is by taking it very carefully and regularly. For me over an hour before food or in the night if I wake up. Consistency is key

I also keep an eye on my levels; tsh 1.4-0.8 ish seems to be my good spot. 0.5 or less is still in the ok level but for me I feel I’m more likely to feel I’m on too much at times

I also have to eat well, especially breakfast and keep an eye on a decent level of protein. That also helps anxiety ime.

What were you on before and what was tsh?

coming down it usually settles quicker than going up.

They test in 6 weeks as it takes around that time for the actual blood levels to slowly drop or rise (depending on which way you’re going) and stabilise . But the majority of the drop is in the first couple of weeks.

They often leave it 3 months when going up (though sometimes may test sooner) as some symptoms take longer to settle. Looking at symptoms as well as the blood levels is what’s important.

if you’re on too much they test sooner.

When my thyroid was underactive I was on dose 100mg for ages and each time they tested ne it was fine and my thyroid was stable. Then i started getting regular migraines every 2 weeks. One of the doctors at my surgery thought that it might be to do is my syroid, so she sent me for an early blood test..

The results cane back showing the thyroid was no longer stable but had dropped very low she said that it had dropped so low.It was causing the migraines , so she put the dosage up to 125ng that reveals I was on too much medication , so now i'm taking 100 Monday to Friday and adding 25mg Saturday and Sunday

They say 100 is too low and 125 js too high soday, giving me a company combination of the two to see what happens

I asked if 75mg would work and was told no. As for the hashi.oto i asked this doctor that I saw yesterday if she thought this was the cause of my fluctuating thyroid and she did not bother to answer, and that's why I thought she was rubbish.I never want to see this woman again

Im at my wits end wi. Why can't they try 75mg because it's interference 100 and 125. My friend takes 75 and is fine

100 daily was too low for you.

125 daily was too high for you.

They’ve dropped you to an in between level of 100 daily plus extra 25s on two days a week.

75 daily will be much too low for you. As this was lower than the previous 100 daily.

If it helps; I’m now on 125 daily and take two extra 25s a week on top (so two days a week I’m on 150.)

Some of the terminology can be confusing too.

If your thyroid is underactive or low, you aren’t getting enough thyroxine. So you need more. Your TSH will be high, t4 (thyroxine) too low.

If your thyroid is over active or “high” this means you have too much thyroxine. Your tsh will be very low and your t4 (thyroxine) high.

I’ll be honest, when my thyroid has been up and down I do get very easily confused. The anxiety is a weird one as you feel completely sane. But in reality your mind is all over the place.

Hopefully if you follow this plan you will feel much better soon.

I hope you’re feeling better soon OP, it can take a little time.

Yeah my next blood test is at the beginning of august

What were your actual thyroid test results along with the ranges? Please tell me they didn't do just a TSH test? You need TSH, T4 and T3 tested to find out how your thyroid is actually doing.

With your symptoms it does sound as if you are slightly over medicated, so hopefully the lower dose will help with that. Over medicated is very different to overactive though, if your thyroid was actually overactive you would be on a totally different medication and not thyroxine.

Thyroid disease is not the simple thing that doctors make it out to be unfortunately, and most of them don't have any more than basic knowledge of the thyroid.

Thyroid UK is a very imformative website, I'd suggest you have a read on there:
https://thyroiduk.org/

There is a link on there to the thyroid section of the Health Unlocked forum. It is a fantastic place to get help, with lots of knowledgeable people who have basically spent years having to learn about their condition because of the poor treatment gotten from GPs and even endocrinologists (most of whom are diabetes experts rather than thyroid experts).

Tes thanks. Not sure what else to say. I will see what tge test is and see what they say

I've also discovered that an overactive thyroid can produce brutal bones. But I've had brittle bones for years, and I've never had an overactive thyroid until now, so, I've never really found out what caused my Osteoporosis, but now I do know that an overactive thyroid can cause it.

It can, long term, but so can an under active thyroid, long term.

So can low vit d in childhood. So can genetics.

I currently have osteoponenia which is reversible.

Resistance training, more protein, jumping 50 jumps most days and extra calcium are imperative to look after your bones. As is the right dose of thyroxine.

You want tsh around 1. Take it consistently and always get your test in the morning, say around 9 ish. Take that days thyroxine after the test.

If you have low bone density you need more calcium.

do the Edinburgh calcium calculator (or use chat gtp.)

I now add in two together health calcium capsules a day on top of everything else I eat that is calcium rich.

it interacts with thyroxine so MUST be taken 4 hours before or after.

I take calcium d4 and alendronic acid as advised by the GP

👍

somebody I work with has ostopina. And she has had some cracked ribs and a broken leg.\n And they have told her to go on to alandronic acid, but she refuses, because she has heard that with Alan ronic acid, you can get locked d jaw and your jaw can lock together, but I said to her it's never happened to me and then she said to me, but everybody reacts differently.\n She said, just because it didn't happen to. You doesn't mean to say it won't happen to me. Says she's too frightened to take it.

Hope someone reads this and responds.Because I really would like a reply
I have overactive e or too much thyroxine and told by doc to take it easy. I cannot move .dustbin to theclection point as too heavy. My neibour said she would do it but in the meantime, she complained to our housing officer about the situation and my housing officer wrote to me and had to go at me.. i explained the situation, and she said she would ask my neighbour to do it, which my neighbour already agreed but never did.And now the housing officer is telling me to get a home help to help me.I think that's outrageous.I don't need a home help.I just need to have somebody move my bin and leave it there.And then when i'm better , I can continue doing it myself

I am a very kind person and if this was one of the other neighbours I would help and take the bin out for her, but the housing officer says she can refuse to do it, she doesn't have to do it. And if she says, no, she says no, but I do anything I can to help her neighbour and I don't like this attitude.\n And I've been told, it's not somebody else's job to move your bin, it's your job.

I’m really sorry you’re feeling like this, you’re at your wits end and that is due to having too much thyroxine in your body. You are excessively worrying, your bones, your heart, the bin, your housing officer

its all because your thyroxine has swung out of line - this will calm down as your dose has been decreased

hopef your blood test in August will come back with a higher TSH and you’ll start to worry less, become less anxious and feel much more like yourself

I’m really sorry, it sounds like you are feeling very weak. I had a lot of issues after my children with severe weakness due to fluctuating thyroid, as well as sometimes being on too much.

When you’re on a better dose make sure you’re eating well, especially protein and start to build up more strength. I found it hard to put the muscle back on as was in perimenopause and am quite skinny anyway.

The anxiety of thyroxine is weird as you feel completely sane but the racing thoughts gets can be quite overwhelming. Sometimes I think it perpetuates after you’re at a good level as you’re so used to thinking that way.

OP my thyroid is overactive and I need to take Propanalol prescribed by the GP to manage my anxious thinking. Please speak to your GP about this, it really helps me and it protects your heart.

In my area the bin collectors will get your bin if you have a medical condition. Can you look on your local authority website and see if it is an option in your area?

You're wrong and you havent addressed the point herr. My reason.\n For making, this thread is to say that I don't need a home help. Despite what the housing manager thinks this has not been addressed in this thread and I feel I've wasted my time posting. Something where the main emphasis was the home help suggestion which I do not need. I'm not that week. I am a week. I can't do things, but I'm not as bad as that.

I have graves disease chances are your also heat exhausted it happens a lot when your overactive thats causing you to be weak

Are you getting palpitations or a high heart rate? Again this will exhaust you and make you weaker i had to go on beta blockers at one point my heart wouldn't calm down

From my families experience reducing thyroxine should happen faster than 6 weeks (they are ALL underactive im the only over) is your dr consulting with a specialist? If your still getting so many symptoms I would ask if they could while many GPs can deal with thyroid maintenance they are "general" practitioners not specialists (not to say they are useless they just cannot know everything about everything) your clearly still struggling

Anyway watch what supplements you take things like ashwaganga can't be taken if your over active dont eat licorice (weird one but it raises your blood pressure) keep hydrated and try to be calm being over raises your anxiety can make you feel aggressive out of control and depressed

Good luck