Thread 6? Good grief..what are you up to today if you have chronic illness?

[MewithME]

Link to last thread. https://www.mumsnet.com/talk/_chat/5475947-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-5

Hello to my chatty poorly friends and welcome to New ones....

See also DH's snoring, which has been wonderfully muted for the past few weeks 😬😭

@Swanhilde I am sure I need the same! I had it done a year ago and it made a massive difference, but one ear is quite muffled again. Maybe I'll just try some Earol for a few days.

What a night! 😄

I bought some loops a few weeks ago. I used to use flare audio but found they made my ears uncomfortable but I’m liking the loops at the moment. I use engage plus 2

Throw in a mug of Horlicks and it's all happening 😃

Well I've had a full on day (!) that started with a lovely relaxing massage. She's given my lower back a good pummel along with my legs and they feel much better already 👍

Then it was off to the audiologist. First, not deaf ear she hoovers out a great big chuck of wax - lovely. Second, deaf ear not so good. She's got a lot out but there's a layer covering my eardrum that she didn't want to get too close to incase she hurt me! So STILL DEAF but with another appointment next Thurs when hopefully that lump will have moved and she'll be able to hoover it out too 🤞

And then after lunch to pottery, where I kept the rolling to a minimum. No sign of a slab roller unfortunately @FurForksSake

I attach photos of my ear wax ....

Joking, they're my latest creations 🤣

Fabulous creations, the glaze is beautiful.

Glad phase 1 of operation ear wax has gone OK. You will feel quite blasé next time you go!

@Swanhilde Love those!

They're gorgeous @Swanhilde. Hope your ears are feeling at least a little better.

I'm done with work for the week and currently in the 'tired but wired' stage, hoping that'll calm down over the course of the evening.

Oh huge snap! I'm still overdoing it. Work is just relentless really. But getting through it. Sacked things off early today at least but physically was way too much today

I'm so tired and foggy.... How did we get here from gravy ladles?

Thank you all for lovely messages 💓

I'm at the point of exhaustion where spaced out Ness has kicked in and yet I must keep going for my family. DH has relapsed into an OCD flare up, GP upped the meds and so ensues side effects of very low moods etc trying my hardest to help support him while managing the usual issues with DS11.

Do you ever just think - oh somebody put me down already!?

@Swanhilde have you ever tried Hopi candles? I find they keep my ear wax and fluid build up at bay so I never need to get it 'sucked out'. I also find them that relaxing that I fall asleep whilst having it done haha

Oh you're so busy and chatty - i can't keep up!

Today I will be mostly preparing for DD's wedding tomorrow. This means cutting DH's hair, deciding whether to wear the navy suede boots or the gold trainers and generally faffing about. It's a low key, very personal do, so no stress.

Morning all!

It's so gloomy here but I think the weekend should be better. I am so excited for you and your family @FuzzyPuffling and I'm sure it will be a wonderful day!

I always make sure DH is tamed a bit before any family photos are likely. He has no personal vanity and left to him he would sprout hair and whiskers like Rasputin!

Hope everyone has a good Friday!

Aw @FuzzyPuffling hope you have some sunshine and have a fabulous day. X

Also, for the rest of us limping through to some rest ...

Friday klaxon!!! 📣

Gold trainers @FuzzyPuffling !

And I wanna see them 😍

@FuzzyPuffling I hope you have a lovely day tomorrow and regarding the footwear, whatever will hurt your feet less

Actually this is the best advice!

Love the sound of a wedding where you can wear gold trainers! Hope you have a great day @FuzzyPuffling

I'm staying in bed today. Might get up for online yoga in a bit but otherwise I need a good rest. It's very grey outside so not even tempted to pop out.

Morning all, hugs to @Realisation14 and enjoy the wedding @FuzzyPuffling

Had a horrible day yesterday, havent the energy really to type everything out but just was another stressful day and has left me feeling thoroughly fed up on top of a horrible cold that’s not settling and still ongoing ME flare.

Had GP call adding yet more issues to the list, just BP and cholesterol so not major issues ( so sorry to whinge to those going through so much worse) but just more monitoring, likely resulting in more medication I could really do without.

Then I received my discharge letter from the cardiac clinic with a 3 step plan for follow up tests but casually adding in that I couldn’t drive for 6 months even though they hadn’t mentioned that at my appointment. I actually don’t drive a lot anyway but do like the freedom to do the odd school run or visit to my mum if I’m able. Just felt so off to put it in a letter that way especially when I hadn’t even seen the consultant who made the decision, he’d just read the notes made by the cardiac nurse.
Have asked for a phone call so will have to wait and see.
None of these things are the end of world but I’m feeling really down and teary as it is right now and more things seem to keep being added to the mix.
Sorry I can’t be more cheerful today, I may be quiet for a while, honestly I’m depressing myself!

Ha ha...I'm going for boots because I can wear socks with them and keep my feet warm!

The trainers will get their day(s) in the summer!

@TodayIsatrickyone that really sucks. I would be devastated to have driving removed from me so I completely get that, we already have small worlds and some days it feels like things get even smaller. Hope you can do something for yourself today that sparks a little sliver of joy.

@TodayIsatrickyone big hugs. I hope they are able to explain themselves in the call and I would also find that upsetting and frankly rude!

Thanks for understanding, I just keep crying which seems silly when it’s hopefully not permanent and I don’t drive a lot drive anyway.

But yes @Realisation14 you've hit the nail on the head about my already small world becoming smaller. It’s not like I can walk or use public transport instead. I don’t have that option.

Plus my DH couldnt drive for many years after a head injury though he eventually did get his license back but had to go through an assessment process some distance away that I couldn’t do ME wise so I’m actually panicking a bit already about the whole process and what will be involved.

Anyway, perhaps I’ll feel better after speaking to them if I’m reassured it’s a temporary measure until I see my own cardiologist. I did call yesterday and the receptionist just told me no one likes that decision but it’s a DVLA rule and no I couldn’t discuss it with the dr who made it! Problem being they’ve cancelled that appointment and rescheduled 4 times now so my Feb appointment isn’t til May. Just feels so frustrating.