Thread 6? Good grief..what are you up to today if you have chronic illness?

[MewithME]

Link to last thread. https://www.mumsnet.com/talk/_chat/5475947-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-5

Hello to my chatty poorly friends and welcome to New ones....

@FuzzyPuffling oh that is very good to hear! My cataracts aren't terrible yet but obviously at some point they will need attention. I am always conscious of lens thickness and the ultra thin ones cost a fortune. It must be quite liberating to be able to choose any frame you like!

Morning! I started taking the high strength b complex. My wee could be used as a highlighter 🤣🤣🤣 Apparently jt will settle.

Must have been a shock!

It's rather grey here, the sunshine was lovely while it lasted.

I slept well but still very twitchy. It always takes so much longer getting over PEM than I think it should ;-(

Feeling optimistic about our house sale, but we've been here before! People are unreliable.

@TeaAndStrumpets like the first time you notice the beetroot 🤣🤣 I couldn’t understand it at all. Thank god for Google.

Beetroot is dramatic!

I remember ringing the health visitor in a panic after noticing black threads in DD1's nappy. I was convinced she'd caught worms at playgroup. It was banana!

Morning, still sunshine here but still feeling rubbish so will admire it through the window from the sofa. Someone mentioned rolling PEM on here and it feels like that’s me just now, one thing sets me back, then just begin to feel slightly less dreadful and another stress pops up and I’m back to square one. I’d just like my baseline back please.
I’ve spent the morning waiting for a follow up phone call from the GP they requested only to check the text to realise it’s tomorrow not today 🤦‍♀️ What a donut!

Lol at highlighter wee and banana bottoms 😂

You've made me laugh with the wee stories - I nearly always forget when I've had beetroot and still get a shock!

Lovely sunny day here though quite cold. Managed to get some washing done and hung out first thing. Work is less intense than yesterday but trying to untangle some data mysteries which is tiring my brain out. I'm really hungry which I suspect is my body trying to make up for yesterday's energy.

@TodayIsatrickyone it's annoying isn't it, two steps forward one step back always. There's always something!

@martha79 yes your body is asking for energy!

Lowering the tone again, I remember one time when DH came out of the bathroom saying the sink must be blocked because it smelled odd in there. I walked in with my bloodhound nose and immediately identified it as asparagus! Poor chap was mortified, he'd never noticed before. His sense of smell is dreadful so he must have eaten a LOT of asparagus that time!

Sorry, should have warned you! It wears off after a couple of hours.

Afternoon all.

I slept!!!! Feel somewhat more human 😊.

Well done @CoffeeBeansGalore you obviously needed it.

Hello 👋🏻

I still get caught out by beetroot and think I'm dying 🙈 Also, if I'm good at remembering my iron tablets.. my poop ends up like hedgehog 💩. Black. Yuck and.

Just thought I'd add some grossness to the lunchtime chat 🤭

I was really struggling yesterday. Had dizzy spells and weird vision at one point. Not good. Slept a bit better last night. Still feeling like my muscles genuinely have no energy. It's hard getting moving and I'm twitching a fair bit.

I've got a very full on day tomorrow so aiming to be in bed by 4pm today if I can. DS is with his Dad for tea at least though there was drama at the weekend with exh being vile. That won't have helped my body. 🙄

Nice seeing the sun today.

@MewithME weird vision? Do you have migraines?

@TeaAndStrumpets I don't though I may have had one or two in my life usually with periods. Could have been a peri wobble on top of PEM. Dunno. I have high BP too but it's managed with meds ok.

Anyway...my clocking off early hasn't happened but having a lie down now. Considering very lazy dinner of some sort. I have an hour and a half until DS gets home.

Lovely sunny day out but watching it from indoors. It's nice it is a bit brighter though.

Have done the Ocado order the boys asked for porridge and cereal, quite easy I suppose (though not highly nutritious the cereal anyway)

I've been waking in the early hours with a racing heart, wonder if that is hormones (I'm 49 so might well be) I'm on HRT but that doesn't seem to help much. Not sure though as not getting hot flushes and the like. A mystery.

Partly because of the not-so-good sleep the Visible app have me a 3 today and said to try and pace carefully. So I've just done a few house jobs really like the dishwasher and laundry (we have an old fashioned wooden pully, type thing for that.

Hoping for a nice evening for all. Something easy for tea here too. Always is the night before the shopping arrives.

@MewithME You can get visual migraines whose main symptom is shimmery zigzags. When I have one I can look in a mirror and see a bit of face missing, or get gaps in print when I try to read. It usually goes after about 20 mins. If it's a bad one I struggle with words. They are stress related for me.

@Orangesandlemons77 I get the hammering heart, I think it's adrenaline. Horrible when it wakes you up.

I have survived two days of conference! And actually enjoyed quite a bit of it 😊even managed to go out for the evening meals with my team although skipped the drinks before and after. Really helped that our hotel was right next to the conference venue and a great selection of restaurants so there was a lot of listening/talking/thinking but not too much walking.

Monday morning I felt dreadful and sat at the table at the hotel breakfast buffet in tears - a lovely stranger came over to ask me if I was alright. I do love how women you don't know can sometimes just be really kind.

I am finding the sleep score in the free Visible app too limited. I'm scoring almost every night as Fair (not great, not awful) but that hides so much variability. I guess it must be based on science and that data-wise, they think that four categories are enough.

I also get visual migraines, usually related to tiredness or stress. Feel really awful afterwards too, which seems odd when you haven;t had the debilitating headache (I feel very lucky indeed not to get that).

I almost get a sort of ghost headache, when my head just feels rather tender. Always stress. Sometimes I'll have another one the same week, but I can go months without.

I am back from work and in bed with a cuppa ☕

The sun has shone (after it was bitterly cold first thing) and I've had a good day. Randomly stopped in to Tesco's on my way home and bought some new baggy jeans and a white t-shirt. Not a normal thing for me to do at all! And then I bumped into an old colleague and we had a lovely catch up sat in our cars 🚗 🚗

True to form my PEM has gone, ready for me to roll some more clay tomorrow afternoon. Whomever suggested a mangle up thread (sorry I've forgotten who) might be onto something. I will have a search tomorrow ...

So I am done for this week, DH has cooked a massive cottage pie for tea and I'm feeling quite chilled 😊

Have a restful evening all 💕

Don't forget to show us some photos @Swanhilde !

Why is my husband getting on my last nerve? He just makes me really cross all the time. Is this suddenly peri menopause or just a stress response?

He came home from London and asked how work was. I’m on annual leave all week. I’ve told him about 15 times. When I said I was on leave today he asked if I was going tomorrow. All. Week. He asked if I had had a nice day. No. I’ve basically stared at the tv or my phone all bloody day. My shoulder hurts. My sleep is trash. My back hurts. I’ve got nothing to do. I’m bored. He knows my shoulder is knackered so I can’t really drive / do pottery / garden. So I’m frustrated and just cross. I’m cross that he asked, why doesn’t he just realise it will have been another crap day? I managed ten minutes of planting irises earlier. Then my shoulder hurt too much. I drove because I had to. I’ve got hydro tomorrow so I’m being as careful as possible.

ive got ny online metal health session at 8. Which he will have forgotten. I’ve made clear I dont want to talk about therapy with him or in front of the kids. It’s too much and it’s personal.

but I am just this constant ball of rage.

I went in the garage and he’s covered everything in sawdust and piled tool all over my kiln. He came back from karate last night and went out and just started doing woodwork. He came back in and I went to bed and he acted surprised. I have to try and get to sleep before he comes to bed and then his alarm goes off at 5.30. I then only doze until 6.30 when I have to start getting the kids up.

he told me that he thinks the house is a dump. It really isn’t but I can’t do a lot because of my back and shoulder. He moaned we weren’t eating proper dinners for the last two weeks. Didn’t see him making a meal plan or asking for anything in the online shop. He’s bloody good at making a Moan. He doesn’t seem to recognise that getting a crappy diagnosis and going back to work has been really tough.

Gah. I’m going to blame hormones. And stress but he is annoying me soooo much.

Sorry. End of vent.

@Swanhilde does your studio not have a slab roller? If not I think some people have had some success with a pasta machine, but you need quite smooth clay and one with a good mechanism!