What are you up to today if you have a chronic illness? Thread 5

[MewithME]

Here we are again. 😊

Link to last thread 🧵 https://www.mumsnet.com/talk/_chat/5458553-what-are-you-up-to-today-if-you-have-chronic-illness-thread-4

What heart rate monitors are you using? I used to wear a Garmin band back when I was a runner (sob)

@TodayIsatrickyone Happy birthday for tomorrow! I hope you have a lovely time despite being stuck at home. Second the idea of some treats and a film night. I think my birthday is one of the few times I rent a movie from Prime!

My little granddaughter is one today - she is being taken to a city farm then to a cafe for tea and cake (mummy and daddy) and healthy snacks (her).

Not sure of the star sign. Is it the cusp? I'm Nov 19th and only just Scorpio.

Plenty of cheapies on Amazon, I think mine is ZacVrate if I'm reading it right. I don't think there's much to go wrong but mine thinks I'm dead if my fingers are cold!

Oh it says Zacurate!

Thanks @VikingNorthUtsire & @TeaAndStrumpets we’ll definitely find some way to celebrate at home, DH is pretty good at shopping for nice treats and hopefully this sad mood will have lifted by then, it doesn’t usually linger long.
Diddy dog seems to know I’m not right and is very cuddly today bless her. Have just managed an Epsom salt Bath so hopefully that might help pain wise at least.
I just have an ancient Fitbit I use to monitor HR & sleep, & like tea&strumpets, keeping an eye on my HR has been a game changer for pacing. I have to remember to check it though and mine doesn’t alert me if I go high but many more reasonably priced ones around now.

I have spent yesterday and today clearing out old emails. It's amazing how they mount up. I've kept ones from my sister, usually headed "I'm Seething!" 😣 She should be on Mumsnet really, although is happily child-free.

I’ve decided I need to clear out my wardrobe - I’m giving myself this week to do it as I can’t always manage much / and I want to do it properly

@TodayIsatrickyone I'm sorry about your birthday. January birthdays are always a bit shit ( mine is later this week, so i know the dollops of negativity you probably get anyway). Have a half birthday in July, or a Spring celebration or just plan something lovely when its not such a trial.

It will feel fantastic when you've finished! I've been doing that recently and it is very freeing. For me I get tired after 10 minutes standing so just a few things a day has worked.

I've been clearing out my in box and found hundreds of notifications from twitter and pinterest I didn't know were there! I'm not even on Twitter or whatever these days after DD2 got upset about my opinions, years ago!

Hope she's not on Mumsnet!!

Ahh you're so right! Happy birthday for later this week! DH’s birthday is June and I probably manage that better than my own. January has always been my hardest month tbf as DDs birthday followed by Xmas usually causes a flare so expectations of myself are generally low. Not sure why I decided I might manage to go out this year, just put undue pressure on myself really!

DH is out so I'm supposed to be resting but it is rather boring so I've cut up a tatty flannel shirt for garage rags. As usual my neck and shoulders were protesting before I'd finished, despite me using my fancy sprung dressmaking shears.

It would have been so easy just to bin it, but old habits die hard!

I washed the glass doors in the kitchen. Including a good clean of the cat flap.

And managed to get a load of washing done and line dried.

Feeling virtuous!

You ARE virtuous, fuzzy!

I went to get some meat out of the freezer for my tea. To my horror I found some leftover liver that had been impersonating something nicer. If only I had a cat!

@TeaAndStrumpets im always miffed though when you clear years worth and the amount of data you've used isn't any less. Like how I've deleted thousands of emails I must have made some space?

@FuzzyPuffling thats epic! Must treat yourself tonight with your feet up. I'm insanely jealous by how much you've got done

I have a win today. For weeks I've been getting my chest drained, today they turned me away as there wasn't enough for them to get. I went into the chemo ward afterwards happy to receive my chemo and thankful it seems to be working. I go back in another week for them to ultrasound and see if any more has accumulated. However after months of bad news constantly I'll take this little win and announce it to all.

@Oioiqueen gosh that sounds nasty having to have it drained. But good you didn't this time round.

Actually do you have to take pills for chemotherapy? I was surprised when a relative was given tablets for breast cancer, medicine progresses

@Oioiqueen that is fabulous! Glad you are seeing some progress.

I'm hoping to see some space in 30 days when the trash bin empties itself, but that could be wishful thinking! It certainly makes searching by date a lot easier. I am just horrified by all the Amazon and eBay receipts, we must have spent a fortune over the years. Which reminds me - a lot of my purchases from ages ago on Amazon got credit for not using next day Prime delivery. It used to add up to the price of a Kindle book or film rental every so often. I wish they still did that.

Home from work and in bed with peanuts and a cuppa 🥜🍸☕

Will start sewing up my knitting later. Fridge forage for tea, feel in the need of some fresh salad 🥗

Have a peaceful evening all 💕

Not sure how that martini crept in there 🤣🍸🤣🍸

You can but each cancer type has treatment lines that you follow. At some point I'll probably end up having them but I'm on an immunotherapy/iv chemo regime at the moment until there is progression and then I'll go onto whatever the second line is for my type of cancer. It's a PITA going 3 weeks in a row and then a week off but I'll take and be grateful for whatever extra time these drugs give me.

Yes I have had visible for quite a while. Ask me anything...I'm tired right now so not sure I can think of somewhere coherent to say about it. I think it helped me learn about how to pace. It's useful and the team are people who have the condition and really understand it and us!

Oh that's a bit rubbish - I was watching Hijack s1 e1 on prime but it's only the first episode which is free. Gah!