Thank you so much; this is incredibly kind. And yes, I know trauma has probably played a direct result in how my diseases have developed (remission is a possibility, like with many neuro/rheum conditions, but my doctors haven’t been able to even stop the progression in a decade, much less get me to remission, sadly).
And yes, I’m quite nervous about the doctor. Because of the illness, I’ve developed an aversion to hospitals, and the worse my illness gets, the worse every visit gets. Last time it took them eight tries to get blood and put in a cannula, and finally an anesthetist had to do it. The bruises had just barely healed from that, and here I am again.
Anyway, WAY TOO MUCH about me. I read your comment and I will keep all my fingers crossed for you for the fatigue support! I don’t know if you’ve already filled out the questionnaire, but my doctor’s recommendation on these is to fill them out with your worst day in mind, not your best day or the norm, because you need the amount of support available that you need in the worst days. (Maybe they advised you differently though). I also understand being reliant on your partner; I can’t live alone, so I was stuck living in a pretty unpleasant situation until I moved in with my best friend, who became my DH. I know there are tons and tons of people without partners, and I feel for them if they don’t have another support system. Sometimes when you’re absolutely on your last legs, you would just give anything to have someone who cares and will make you a cup of tea.