What are you up to today if you have chronic illness? Thread 4

[MewithME]

Link to last thread 🧵 https://www.mumsnet.com/talk/_chat/5438353-what-are-you-up-to-today-if-you-have-chronic-illness-thread-3

This is the bumper Christmas issue with the added challenge of all the work Xmas brings and feelings it might bring up...but we're here. Highs and lows. 🌲🌲😴🤕🤗

Thank you @MewithME , I hope we all sleep well, it makes so much difference x

Thank you x

Things you’ll never hear in here - get well soon! 😆😆😆

I’ve had this, especially when I’m stressed and overwhelmed. Like you’re plugged into a mains generator and it’s transmitting too much energy, so when you need to shut down and relax it prevents it. Affects my lips, fingers and hearing bizarrely, I can both feel and hear the hum.

Welcome to all the new people to this lovely supportive corner of mumsnet though sorry chronic illness brings you all here!

Middlemarch do you have MS ?

Morning all! Beautiful weather here - always lifts my spirits.

@FuzzyPuffling love Gardeners World too. And find the occasional small gardens featured the most inspiring. I love seeing what people have achieved on a postage stamp.

I'm determined to be less anxious and more focused on problem solving today. Feeling ok at the moment.

Have showered and washed my hair this morning, so already winning at life!

Need to sort out car insurance and want to make some apple puree to have with pork chops tonight 😋

Hello @Middlemarch123 I also have fibro. Nice to have a buddy 😂

No, that’s been ruled out. I was anxious because some of my symptoms fit MS.

Morning all!

I managed a good night's sleep again, so had the illusion of energy when I got up. As usual I rush round doing unnecessary things. This morning I got cross about my moulting hair, I am forever picking it off myself. So I went mad with the sticky roller on my fluffy dressing gown and am now exhausted. I did roll off a lot of loose hair, though, so it was worth it in a depressing way. Every so often I think I should chop it off, but short hair never suits me. At least having it long saves me from having to go to the hairdresser ever again. Tiring and expensive!

Today will be a sofa one (again)

@MewithME i get the internal tremors when I've really, really overdone it.

@BerfyTigot Thank you for the welcome, sorry you have fibromyalgia too.

It’s lovely and sunny here, always helps me. Do any of you use a SAD lamp and find them beneficial? I love being warm and cosy in the winter, it’s the darkness that I find debilitating. Wondering if a lamp might help.

Hope you all have a good day. I feel more energetic but am going to take it easy today, busy day tomorrow with family.

We also love Ash and the little gardens or the narrow boats and odd spaces ones.

Morning all. I was late to bed... unusual for me so had a doze with a podcast when I woke up.

The buzzing thing is most of the time for me but not always as bad. Certainly worse when I've been overdoing it which has been inevitable with work lately.

Just having my second coffee and a hot croissant from the oven then I'm going to have a nice bath.

It's foggy here but imagine it will brighten up later.

I'm getting a new armchair delivered which is exciting. I'm hoping they'll put it where I want it and I won't have to do any moving.

I've trying to get some new things and move forwards a bit. Without boring you about my past trauma, or making it too identifying, I lost my marital home to my abusive ex. I never 'moved out'. He just scared me and changed the locks when I wasn't there so I got some possessions back through various means. I think it's meant I've been overly sentimental about stuff. I've had this same chair for twenty odd years and it was only an IKEA job. Nothing special. But it's where I nursed DS and I've clung on to it. Well, I've bought a comfy new one where I can read if I am up to it. But I think it means the old one has to properly go. I haven't got anywhere to store it. I thought about taking it to my office at work but I think I need to just let it go. I will maybe try Freecycle.

Trauma is a strange beast.

Anyway, food shopping delivery coming later and my gorgeous friend is dropping in too.

@Middlemarch123 yes pacing, boring but necessary. It's difficult in the run up to Christmas.

My endocrinologist (who diagnosed me with CFS/ME) is a great advocate of the SAD lamps, and the benefits of holidays in the sun. Another reason for going away (he says) is it exposes our immune system to a different set of bugs/viruses. I may be misquoting but that was the gist.

Fat chance of me ever going on a plane again or any holiday come to that, but it's an interesting take on things. I suppose if your environment has an effect on your immune system, giving it a break may help.

@BerfyTigot so glad you have a bit of sunshine! It's cold and frosty here. Quite nice from my sofa.

@MewithME I get angry when I read about abusive selfish men. Hopefully karma will get him.

Enjoy your chair!

Berfy good luck with the car insurance. I loathe doing it.
However, I just speak to my current insurer and they always manage to give me a decent discount.

Have made it over to the new thread, thanks @MewithME As an introduction I have Post-covid 19 Syndrome (Long Covid) and Graves Disease (currently in remission 🤞)

Feeling better here today , but v aware of overdoing things again.

We went to the garden centre for breakfast this morning and picked up the last Christmas cards needed for immediate family. Also bought a new pot for a plant my mum gave me and a poinsettia. Once I have a poinsettia on the dining room table then the decorations feel complete 🎄

DD will land at some point today and DS and his GF are coming over later. I'm making Hairy Biker's Spanish chicken for tea. I can prepare it slowly, getting DH to do most of the chopping, and then just bung it in the oven later. It will be lovely to have a house full again. They will all play a board game this evening and I'll watch Strictly 💃

Beautiful cold sunny day here too, currently back in bed for a rest ☀️

I've started putting up some Christmas decorations; the two youngest grandchildren are coming over tomorrow morning to help with the tree. Only one set of lights has failed so far!

Quick trip to the supermarket this morning yielded a chilli chicken ready meal in the yellow sticker section, so that's tea sorted!

Hi, may i join in? I have Lupus and Fibro.

I was a Childminder, then a Nanny, but retired when my last Charge started senior school and I turned 60. It was all getting to much.

So now i spend my days reading and knitting. I managed light housework and such, but my very very DH is fantasic and as i cant manage something he just takes it on.
He works full time shifts as a Prison Officer too.

Im going to wrap DGDs presents in a while. Her main one is a Diagon Alley BookNook, she loves fiddly things and is Harry Ptter mad, she read it to herself at 7 and two years on is still as obsessed.

We are doing to DS, DIL, and DGD for Christmas Day as DH actually has it off this year, he often has worked it so really looking forward to it.

Welcome @Megsdaughter

That's a heartwarming post. So lovely to have a good supportive husband and what a delight your DGD sounds. Love her present. I still love Harry Potter. Children's books should not just be for children. I think they remind us we can find some magic in the world too.

I'm reading Moominland midwinter again. It's a beautiful winter book.

Aaaaaaand ....my new chair arrived. It's fab. And I'm sat in it now waiting for lunch to cook. Feels wonderful to have a new bit of furniture before Xmas. House needs so much doing to it but this is a simple thing that has cheered me up.

@Swanhilde I'm hoping to get to the garden centre and farm shop tomorrow for a couple of last gifts and a wreath for the door. I may treat myself to a poinsettia too ❤️

Long Covid woman here. Blasted thing keeps ambushing me at awkward times. I'm fine just beeline around the house or garden, but a few days in London helping with our new grandson gave me a very exhausting few hours with bad fatigue. I think it was travelling on the tube with all the steps etc. It's gone now I'm home, but know that if I was too do a half walk today, I'd be back on the sofa or in bed!

*beeline
*half hour walk

Day started of well and I had a shower now im in bed

Quiet day, fed dogs, did last nights washing up, washing on, dismantled last puppy pen and cleaned their lino ready to roll and store. Emptied a cupboard of tupperware type stuff and threw most of it away. Got MIL up, washed down and changed and stripped her bed. DH cooking tea, chicken curry and poppadoms. Realised I have 9 days off in total over Christmas and only 7 working days left, really surprised it's come so quickly.
Really nice to see more new posters on here, welcome!

I've had a really nice day just pottering about. Getting my new chair... christened it with a bit of reading though not for long. Flaked out on sofa for a bit. My friend popped in and had a nice chat. Home made pizza (cheated with the base) for tea and back in bed.

I'm pretty tired now. I think doing the unpacking and putting legs on the chair and bits and bobs of chores have hit me now. Heart is pounding.

So going to watch Netflix in bed.

Just watched Man v Baby which was quite sweet but also cringy and made no sense at all but the baby is beautiful. Bless him. Why on earth did they call him IT all the way through though? Terrible! (Can't remember who said they watched it...).