What are you up to today if you have chronic illness? Thread 4

[MewithME]

Link to last thread 🧵 https://www.mumsnet.com/talk/_chat/5438353-what-are-you-up-to-today-if-you-have-chronic-illness-thread-3

This is the bumper Christmas issue with the added challenge of all the work Xmas brings and feelings it might bring up...but we're here. Highs and lows. 🌲🌲😴🤕🤗

I'm going to have a pj day, wrapping parcels, icing the cake and watching Christmas films. Or that's the plan. Who knows what will happen in reality

Quiet, restful day here as we're out this evening for a Christmas curry with my family 🎅

Must finish sil's present though - shouldn't take long 🤞

Have a relaxing day all 💕

I've slept in. My body is absolutely exhausted. I absolutely crawled to the end of my working year yesterday. My workload is January makes me feel sick to think about but here I am. Two weeks off. Hoorah.

I went in the bath, went to bed and slept at 5pm yesterday. Still absolutely fine in. Muscle twitches, stomach ache, headache...ALL the fun symptoms going on.

Today DS is with his Dad so it is wrapping day. I'm going to take it easy this morning and attempt to get a bit xmassy and watch a film while doing it in stages. The thought feels too much right now.

I also feel sad because while I was dozing I was half dreaming. I was thinking in my half sleep that my Dad hasn't rung me for ages..then as I woke up I remembered he died. I have had a little cry.

So sorry you had an emotional day @MewithME
Christmas is tough when you’ve lost someone close 💙

Aw thanks Willow. Lost Dad a couple years ago now. It was just that funny moment where I was half asleep and forgot then it's like losing them again when I woke up and remembered.

I'm ok though really thanks. Grief is just always there, isn't it?

How is everyone else doing with the Xmas busy busy and all the wrapping?

Morning all (just). Can’t remember if I posted yesterday but it was a complete write off of a day. Felt awful all day, never left the sofa but did manage some life admin.

Couldn’t eat until evening and then managed a bath. Was in bed by 9 and slept 11 hours straight. Slightly better today and have a bit of appetite. Have wrapped a few presents and put a load of laundry on so already a massive improvement on yesterday!

I am trying to not be frustrated today and enjoy my day of peace

@MewithME hope you have a restful day today.
When you mentioned buying a wreath the other day I felt so guilty for not visiting parents grave, it's just too far. Can't arrange for a florist or anyone either as grave unmarked thanks to 'family'. An ongoing legal mess I have to push again after Christmas. Don't want to be outing on here but it's a major stress for me.
A second awful hot flush last night after drinking pepsi max, the first was after tea. Both times dizzy, nauseous, sweating, crampy pains, had to lie down before I fell. Feeling rough today. Am already on HRT and wondering if I'm now becoming intolerant to caffeine, joy!
Love to all x

Had chemo on Thursday for the second time. I found that 48 hours later was the worst time for tiredness and nausea last week. So I'm taking it easy today after a mega 10 hours sleep last night. Ended up in A&E yesterday morning with a temperature and didn't get home until the evening. So I am a bit worn out and wanting to hibernate. DH has the tailend of a cold and the kids are coughing periodically so I am isolating still from them as much as possible. On the plus side between chemo doses I gained a mere 100g but it's not a further loss (lost around 6kg in a couple of months) so I am hoping to continue that vein as I work through a box of quality street and high calorie treats in the fridge. Small linings and all that 😂.

@Oioiqueen You deserve all the quality street you can chomp! (Adding to my shopping list! Allergic to the purple one and the green triangle but they're still the best .. I like the toffee coins which we used to call cowpats...god families are weird 😂)

I didn’t have a great night. I restarted bereavement counselling yesterday afternoon and it really took it out of me. This time of year is really hard, support to anyone else who’s lost someone they love.

Am taking it very easy today. Just having a light lunch then I need to wash up, put a load of washing on and do the litter trays.

I also need to get presents wrapped, but it’s going to be quick and easy this year - I’ve got a pack of the foil giftwrap bags with drawstring closing, I should have them all done in less than 10 minutes so that’s a nice easy win.

Will have a phone catch-up with my sister later, something easy for dinner, a bit of tv and then bed for, hopefully, a better sleep than last night.

I fear for my teeth with toffee coins. I'll post them over to you.....

It's done! 🎅

In bed with a cuppa now and not leaving until it's time to get ready! Looking forward to my curry - Mum's booked the table for 6pm so hopefully it won't be too later night 😴

And don't worry, I have more wrapping paper 🎁 🤣

It really is limiting! I'm glad you can still enjoy the wine 😄

So today I managed a short drive out to pick up an extra gift for my son. I actually felt ok once I got in the car and the freedom felt great! First drive in 3 weeks!

Came home and cooked some dinner. Forced down a decent amount of pasta and chicken as my lack of energy must be being contributed to my lack of eating. Then had a hot chocolate with cream and marshmallows and wrapped all my sons presents bar the special one (which I’ll do tomorrow when the last bit arrives from Amazon).

I feel completely exhausted now so think I’ll head up to bed. Tomorrow I want to grab some cards and try and get out for a bit longer. My child free weekend is almost over and I want to be in the best health for when he’s home so we can try and do a bit of something.

I finished the wrapping! Aside from one. And two bits which I will let the elves bring.

we had our special breakfast brought by the elves, they also bought some indoor snowballs and we had a snowball fight which was just five minutes of mad magic.

Tomorrow we are meeting up with my family, which is making me feel equal parts sad and stressed. I’ll be glad when it’s done.

I’ve been managing little runs of 5-10 minutes of bumbling about doing jobs. Which is great, I’ve not been able to do that for ages.

We had a weird no cooking dinner, I’ve trained the kids to not always expect a cooked meal. One had beans on toast, one a bowl of cereal and I had a tub of cottage cheese and a can of pineapple. dh is out with his hobby buddies so he wasn’t eating. I’ll try and get the kids to bed in an hour. Currently they are gaming and I’m watching Sandi in the riviera.

Take care x

So tired...crashing crashing crashing... I wish I could remember what normal feels like. Can't wait for Christmas to be over. Which is bad for a Christian!

Anyone else really struggling to get everything done for Christmas? I just do something then feel so stressed out and tired and have to charge up for ages.

Hands up, I totally over did it yesterday but it was worth it.
Resulting in a sofa day and fewer than 1250 steps. I've just cleaned down the kitchen surfaces so it'll be nice to walk into tomorrow and then it's off to bed. Slept for over 2 hours this afternoon so who knows how well I'll sleep tonight.
Hope everyone isn't too stressed about family, parcel wrapping, shopping and food prep. It'll happen one way or another and by this time next week we'll be deep into eating leftovers.
(I just used Purdy and Figg Fig counter clean for the first time - the kitchen smells gorgeous!)

Morning all, the last few days have been so full on for me but I've been pacing myself in between activities which has helped. Today is another busy and presumably stressy day for me but tomorrow should be less so. Hope everyone is coping okay in the run up to Christmas.

Morning everyone, haven’t checked in for a few days as it’s been very busy with DDs 18th and my DS & GF arriving to stay.

Hope everyone is doing as okay as can be and not too overwhelmed with Xmas prep. So much pressure at this time of year to just push through but remember it’s fine to rest/ pace as much as we need to.

It’s been a lovely few days of family time here, full on and I’m very tired but have so enjoyed having my young adults home and bringing their wonderful energy into the house.
Felt very strange to be going to bed whilst my teen headed off into town to a club yesterday to celebrate with friends but I just need to get used to that I guess!

DS going to stay with GF family for a couple of nights and then will be back before Xmas Eve so I’ll rest today once they’ve gone.
I do need to do a final check of my online xmas food order which is due tomorrow. I’m bound to have forgotten something despite amending it a dozen times!
Take care everyone and hope you can find some rest time today.

Morning all. Slept restlessly again. I think it's my flipping period/menopause...

I need to get back on my vitamin regimen. I've been rubbish lately. Plus I need to give my nurosym a proper go again. My self discipline and consistency is not good sometimes. I think I get stupidly rebellious and it feels quite nice not to bother in some ways. Probably just want to feel normal when I didn't have to do any of it.

My big task for today is to amend the food shop order. It comes tomorrow and God knows what I put on there. If I forget we'll be having wine and toilet rolls for Christmas dinner 🙈

I will probably have to do a small shop dash today for DS coming home. I'm trying to get away with food we have in so I'll rummage in the freezer first.

Ton of laundry to do but doesn't have to be all done today.

I'm going to enjoy some quiet time with my new reading nook before DS gets home.

I'm feeling exhausted so really want to try and unwind and get a bit stronger if I can.

I'm not stressed about Christmas... just a bit melancholy. I don't have the big family issues. I can't see my mum. Will see how I am after Christmas. It's a funny one. Christmas has so much nostalgia it kills me at times. I didn't imagine this is where I'd be at my age. I forsee future Christmases alone which I'm preparing myself for.

Had a lovely evening with my family but didn't get home until 11pm! Feel like I've got the mother of all hangovers even though I didn't touch a drop 😔

Plan for today is to stay in bed and rest. DD and I will catch up with the Strictly final later and it's wholesome soup for tea, lots of tea and no sugar 💃

Solstice blessings to you all ☀️

Quickly popping in via my phone!

some idiot flipped his car over and knocked over a telegraph pole so landline and internet out until 23rd! Nobody hurt luckily.

Oh my god. What a nightmare! No internet....the horror! 😱

Glad nobody hurt though.