What are you up to today if you have chronic illness? Thread 3

[MewithME]

Link to last thread.

https://www.mumsnet.com/talk/_chat/5406424-what-are-you-up-to-today-if-you-have-chronic-illness-part-2

Can't believe we filled another one.

Morning all, lack of sleep once again. Quieter day today ahead than yesterday though which is great news. Tomorrow (Thurs) and Friday are both hectic though and the weekend is busy as well but can't be helped/avoided, I try to keep 90% of my weekends free but some can't.

Got a smear test and my son's CAHM's appointment on Thurs.

Morning all!

Hope you have a more peaceful week @Realisation14 .

I had a bad night, got off to sleep about 3 am, woke up with pounding heart about 6.30, dozed off until 8. Nice to be up with my cup of tea!.

House viewing at lunch time. DH has tidied and cleaned, sadly not to my standard but I care less and less! I am trying to persuade him to dust the piano though. It's never played but we promised DD2 we'd keep it for her. And her cello, her violin etc. We seem to have a lot of other people's stuff stored here!

Hope you can cope getting out for the viewing @TeaAndStrumpets and it goes well. I’m sure a bit of dust won’t be noticed! Funny we also still have my sons piano still here and plenty of other stuff but he’s in Scotland so a bit far to move it! Plus I do like it when he visits and starts playing it again!
Currently enjoying a cuppa in bed here with a snoozing dog on me and then need to pop out for an hour to sort a birthday cake out so likely back to the sofa after that.
Hope everyone can have okay days.

Morning all. Works beckons. I will start thread 4 soon.... We are a chatty bunch!

Today I've been through a torrential downpour at school run time but came home, did dishwasher and spent a few mins resting before starting work but tons to do so I will get on. I MUST pace today. I'm feeling rough but happier as I've been at home more this week.

Laters!

I’ve managed to get the kids to school, dh hasn’t been to London since my surgery so I haven’t had to do it. But today he’s had to go. To be fair he woke them up when he left and they managed themselves and I just had to supervise teeth and getting bikes out. The boys are 10 and 12 so I don’t have to do a school run, love year 5 and the freedom it has given me 😆

@TodayIsatrickyone I'm longing for the day when DD2 gets a bigger house! She has used a Yamaha Clavinova in her various homes but is very sentimental about this piano. It does have a lovely tone. Hopefully she'll want it for her little girl one day. They've been going to mum and baby choir and the baby is happy to shout to music! No words yet, but a good set of lungs. She recently discovered echoes while being taken round an art gallery so did some very noisy experimenting.

@FurForksSake lovely to be released from the school run!

@MewithME thank you so much for hosting us all, another thread would be great!

Ohhhhhh @FurForksSake I've had to wait until y10 and even so I'm still taking him every day. Autism is hard work but the freedom is wonderful and it's helped him feel more independent. He was badly bullied so I didn't feel he was safe until recently.

I'm having a guilty pleasure of EastEnders Xmas episodes in iPlayer for my lunch break. Love these. They're hilarious. Move on a year and everyone is with someone else 😆

I dread ds2 going to secondary school, my sister is a SENCO and I work with kids with autism (and strongly believe I’m autistic) and we feel ds2 likely is. He manages primary school and we live very close to it in a very good community. He’s a very, very tall 10 but emotionally is much younger. He was brought home by a kind man two days ago as he cycled into a lamppost and basically had a panic attack and was screaming so loudly many people rushed out to him. He’s got a mildly bruised knee and a scuffed hand. It’s very hard as he looks much older and copes very badly. Thankfully he should go to the same school as ds2 who will be in y10 and hopefully can look after him a bit. We have screaming meltdowns from him most days and it’s so wearing. But, he copes well at school and so he’s never going to be assessed.

We have it much easier than others, if he is autistic he copes well and currently it’s all manageable. I fear that secondary will change that. If he doesn’t cope we can afford to stick him in a small Indy and that’s our back up plan.

I managed to get him into a smart adjacent outfit to go to the theatre at the weekend, I’ve given up on the idea of trousers and shirts as he simply can’t do it. But pull on skater chinos from M&S, long sleeved polos in the right material and a soft shacket he will tolerate. And he looked sort of effortlessly cool. He did refuse to even try the elements on for the two hours before we left and tried to wear old faithfuls. But, he accepted the bits and wore them last night for his choir performance (he stood and opened his mouth a cm, which is a brilliant development from where we were! He enjoys it and enjoys the sessions on a Saturday morning, but he hates being observed so performing js a struggle).

It’s strange because he’s not diagnosed with anything and I’ve never had any other experience so you just parent the kid in front of you. My older boy has many, many adhd traits and so he’s not typical either. But then my rigid brain tells me these are just normal experiences with normal kids and we just manage.

@FurForksSake my middle grandson was diagnosed at age 6 or 7. He needed a lot of coaxing to go to school, and had epic meltdowns. Now 16 with no more meltdowns but loads of anxiety, so has been out of school . He has home tutors for GCSEs and will only do three. To be honest, they've worked miracles with him and he is now aiming for BTEC at college, which he sees as a fresh start. He desperately wants to make friends.

The clothing thing rang a bell, he has VERY firm ideas. He is on an anti-plastic crusade so his crocs went in the bin in favour of leather mules. Of course as his mum says autism and just being a teenager can combine in odd ways!

Such a lovely boy though.

Sun shining and.dry here for the first time in a week. DH and I walked into town ( the park has areas of flooding) and went to the pottery painting place. I did a mug and he did a plate.

Then we had a fish and chip lunch by the harbour. Shan't need to eat for a good while..and I'm home with my feet up now.

Quite an exciting day!

Hi peeps, sorry I've been quiet- been quite overwhelmed by life recently and haven't even been able to keep up with reading this thread. Which is a shame as it's so good to have people who understand.

Having terrible fatigue at the moment and really weak muscles. I really thought I'd cracked it as I could see some small but significant improvement, so that's a bit depressing.

Ive done quite a lot towards xmas which is a positive, but expectations...😬

Hope everyone is doing ok

@FurForksSake a few pages back you mentioned an ACT book. Would you recommend it, and if so what's the title please?

Anyone got any other recommendations for books (ideally audiobook as I find reading hard).

Did anyone try Miranda Hart's book? Slightly annoying style but I like her ideas about finding joy.

@BerfyTigot it’s called The Happiness Trap and I’d very much recommend it.

@FuzzyPuffling sounds like a great day to me!

@BerfyTigot Hellooo, nice to see you back.

After my big trip out (sat in Lidl car park while DH investigated the Middle Aisle)
we went home after our viewers had gone. Male half of couple is relocating from that London so hope it seems like a bargain! We'll see.

Had a nap while DH defrosted the freezer. We now have room for Christmas food, and the door closes!

Hey @BerfyTigot good to have you back. Sorry things have been tough.

I've been here moaning and groaning so you've not missed much from me 🤪x

@TeaAndStrumpets you've got it sussed there. You get to nap and your husband gets to defrost the freezer 👌🏻😂

Home from work and completely knackered - that was a tough day. Took me ages to get to sleep last night and when I did, I kept waking up again. Doesn't feel like I had a wink, like the bad old days when my thyroid was out of control ... 🥴

Still, I have been 100% sugar-free today so hopefully it will be out of my system soon. Note to self, Xmas pud and working days don't mix 🤣

Home now and in bed with a cuppa. Left over cottage pie for tea and (another) early night. Christmas tree shopping tomorrow 🎄

Yes we're a bit sick of having to lean on the drawers to close them...

Always exciting to get a tree @Swanhilde we aren't this year but promised myself next year we'll get a monster!

Evening all, managed to get myself on an early morning metro to the hospital for my referral appointment.
Mark on my tongue is benign thankfully, I just need to keep an eye on things. Very relieved, tired and calming down. Had to stand on the way in and started to feel sick and dizzy, metro hot, crowded and airless. Hopping into town used to be done without a second thought years ago, it's crazy how much thought I put into planning it!
One of the dogs decided to chuck up several times this afternoon which was great! They all had a treat of chicken drumsticks earlier and they came back virtually whole.
Nice to see @BerfyTigotback and all the Christmas planning and freezer defrosting!

@Stressybetty I can completely relate to excessive planning for trips which once might have been done on a whim.

@FurForksSake I've bought that book now - funnily enough it was in my wishlist already so I went for it.

Thanks peeps, you've managed to make me feel better - had been feeling quite low but things feel tolerable again 😀

Morning all (just!)

I was planning on a quiet morning but just spent 40 minutes sorting out my paypal account which has gone nuts. All fine now but it hurt my brain going through the security stuff yet again.

Hope you are all well today.

Nice to see you back @BerfyTigot I think a flare after a better spell is always so tough emotionally so good to share on here with people who get it.
I read Miranda Harts book. It wasn’t my favourite style of writing either but there are definitely some good reminders in there and overall I liked the positivity of it.

@FuzzyPuffling that sounds like a fabulous day to me!

@TeaAndStrumpets these things really hurt your brain don’t they! And always seem to happen when you need a quiet day. Well done on getting it sorted.

Hope everyone is doing okay. My day didn’t start well as needed to phone DWP over PIP as they haven’t paid me since reducing my award. Good job I did as apparently they suspended payment because they’d overpaid me by £26! Hopefully sorted now as I hate calls like that. Took 30 mins on hold to get through too!

On a more positive note I then managed a short dog walk by the river though with DH ( & my trusty perching stool) and no other dogs around meant we could let dippy dog off lead so she charged around and is nicely knackered now! So thats lifted my spirits this morning.

I've managed to cut down my (large) buddleia bush this morning, and chop up the best pruning for garden sulks ir next year's kindling. Feeling quite proud of myself. (And DH who helped a bit in the latter stages)

I have been to the shops, I’m now sat in the car and eaten a blistering expensive M&S Christmas sandwich (actually two brioche rolls). I am very sore and lumpy and have a 40 minute drive home 😆