What are you up to today if you have chronic illness? Thread 3

[MewithME]

Link to last thread.

https://www.mumsnet.com/talk/_chat/5406424-what-are-you-up-to-today-if-you-have-chronic-illness-part-2

Can't believe we filled another one.

Take it slowly is my mantra for today @MewithME 💕

DD2 rang for a chat. Her DDog who has had cancer for a year is fading fast but she doesn't want to have her pts yet. The dog is actually still happy to see them, eating, will go for a gentle walk . She is doped up on steroids and painkillers though. Unfortunately bowel control is going. DD and son in law are cleaning up a lot overnight.

I wonder if love is clouding their judgment. Ddog is 13, a greyhound. They've had her for 7 years, she was older than the other adoptees but they just took to her.
Anyway, not going to advise!

Ahh Sorry things are difficult @MewithME definitely sounds like a slow day is needed. Sometimes we have to just give ourselves permission and allow ourselves to take it very slowly.

@TeaAndStrumpets I’m so sorry to hear about DDs dog. I agree all you can do is listen and support her when the time comes. It’s the hardest decision in the world. My eldest dog was 17.5 and we knew we were on borrowed time for the last year of her life too ( cancer & doggy dementia) but making that final decision really was horrendous even though it was absolutely the right one. I feel for your daughter, it’s just heartbreaking.

Hope everyone can have a relaxing day, tipping it down here so sofa and heated throw it is! ( just for a change!)

Thanks @TodayIsatrickyone exactly, I can just be a sympathetic ear. I think it's unfortunate that the baby is about to start nursery soon, so the house will seem empty on WFH days.

It's just miserable weather here, I'm about to get my heated throw out too!

We are having a second viewing on Tuesday but I'm not getting my hopes up.

I will confess to having stunt pillowcases! I have some pretty white ones with embroidered ends, nicely ironed, which I put on for viewings. Usually they are whipped off after the viewing and saved for next time, but this week we accidentally used them to sleep on! So I found some similar ones and set DH on ironing duties.

I should say I don't have an ironing board because they are an abomination, but a heatproof mat for emergency use. I told DH he could just lay the cases on the bed to iron them, but after a bit of chuntering he found the mat and ironed them on the dining table. To my query "Why?" he informed me that ironing on the bed doesn't make the backs crease free. This is why he takes so much time to do things.....

What a great idea re the pillowcases! A nice touch 👏 I shall remember that if we ever move.

My friends mum once took all the bedding off her bed whilst visiting her daughter and ironed it whilst muttering ‘ Who on earth would let a guest sleep in a crumpled bed?!’ We were both firmly in the ‘Who on earth irons bedding?’ camp.

Haha @TeaAndStrumpets if I ever have to move, then I will probably end up costing myself thousands because I simply do not have the energy to try and present a show home.

Sad but true.

@TodayIsatrickyone lol at your friend's Mum!

It's such a pain being viewer ready, you have to make it look as if nobody lives there! I have the bathroom down to a fine art sweeping all the deodorants and hairbrushes etc into a box and hiding them, and reminding DH to leave the toilet lid down!

I am never never never doing it again.

When we moved house we had a full set of ironed stunt bedding, stunt towels ( brand new), stunt fruit ( "do NOT eat it") and stunt loo rolls ( posher than normal).
The estate agent said he wanted to hire me as a house stager, and we sold within the week, both times.
Smug!

@FuzzyPuffling that is going above and beyond!

Blimey @FuzzyPuffling I’m definitely taking notes! Just the thought of getting ready for viewers is exhausting me!

I think the stunt stuff is easier as its scarcely any effort to exchange it for the crumpled stuff. I'm all in favour of "low effort".

Glad I'm not the only one who hates ironing boards! I never iron anything

I hate moving! Last time I did it I paid extra for the removal firm to do the packing, best thing ever!
dd would like me to move again, a bungalow. Not a chance!

Morning all, do we have any plans for Sunday today? I managed to get the grey hairs dyed yesterday but if I'm honest it took absolutely everything from me after driving for my niece. I had a banging headache all day which painkillers wouldn't touch. Slept not too badly last night (for once) so really hoping for some energy today!

Morning @Realisation14 . Hope your hair looks nice after all that effort.i got mine cut last week for first time in six months. I found a salon next to my work and they do quiet appointments, only v chill quiet music, all organic products., natural light..it's really nice. I stopped using salons years ago because it was too loud and bright for me.

Today DS is home at lunchtime and his friend is coming round but her lovely mum is going to drop her off AND drop us a McDonald's off too so I don't have to worry about making lunch today.

I'm absolutely shattered.

I'm going to lay here for another hour then maybe a bath and then get a wash on.

I need to think about some online Xmas shopping but not sure I can be bothered

I have had a shower! I really couldn’t do another day without. And tomorrow I have wound check so I needed a good clean.

DH has taken DS2 to his swimming lesson, ds1 is still in bed.

we are having roast beef for dinner which I’m going to get dh to make as medium as he can. I bought a huge piece for £30 and hoping it’ll do tomorrow and Tuesday dinner.

i need to get dh to feed the Christmas cake.

The ☀️ is out here so I have spent the morning in the garden pottering, surveying the frost's effects and collecting apples. That will probably be the last of them, I'll stew them later and freeze. I've also watered the house plants, a Sunday morning ritual 🪴

Other plans for today are a shower and hair wash, and parceling up DD's pjs for DH to post tomorrow. Then it's baked pots for tea and Strictly from Blackpool 💃

Am resting in bed at the moment and have treated myself to a cup of chocolate digestive tea - caffeinated so only for weekends! ☕

Have a restful day all, hope you too have the ☀️

Morning all, hope you can have peaceful Sundays. I slept well and have realised I feel a little better again for the second day on a row. It’s been exactly 4 weeks today since my last okay day so my post PiP crash certainly took its time. I know I now have the challenge of not overdoing it which could be tricky as there’s a lot to catch up on in the house. I shall maybe aim to just make a difference in one room today starting with the kitchen/ diner that everyone likes to dump their stuff in! Not an exciting use of a better day but DD is at work this afternoon anyway.

Morning all!

Panicking about my gums so flossed very thoroughly last night, now have a tight jaw so trying to relax that. I wonder if tender gums are a general inflammation thing with CFS/ME, my nose has been bleeding when I blow. Also awful IBS. Last hygienist visit was good so I only go once a year, but the last few weeks I've been lax.

I have been so good with resting, but there comes a point when realisation hits that this is my life for evermore and I feel so sad at how limiting this condition is.

Cried at DH and he said soothing things, but I know it just takes time to get on an even keel, hopefully I will cheer up tomorrow!

Totally empathise about the realisation @TeaAndStrumpets as I’ve felt similar recently but have to hang on to the hope for better days. I’m sorry you had tears today and hope tomorrow is easier on the emotions at least.

I also get tender gums, I take good care of my teeth, push myself to visit the hygienist a couple of times a year but still often sore. I’d never considered it part of general inflammation but that does make sense.

Well I’ve overdone it already despite using a timer and trying to pace but I’ve managed to clean and tidy the dining room today which thoroughly needed it so at least Im actually really happy to have achieved that.
Resting on the sofa now listening to a terrible book that was free with audible but I need to know the ending ( who is the murderer?!) so I’m persevering!
Diddy dog is snoozing on my legs so I can’t really move even if want to! I think she’s so used to me resting a lot, I’ve confused her by being up and doing today!

@TeaAndStrumpets acceptance is one of, if not, the hardest part of having a chronic condition. It has taken much talking therapy followed by ACT to get me anywhere near it. And I'm certainly not there yet - I can't even bring myself to think that I'll never stand on top of a hill, let alone a mountain again 😥

Being at peace with your/our new lives will take time, I know. I try to take comfort in the small things I can do (be it differently) and have gratitude for taking life a lot slower. DH and I had a really lovely time earlier doing the online shop together. 3 years ago me would have scoffed at that and gone for a 5k run ...

Be kind to yourselves (me too) 💕

@TodayIsatrickyone @Swanhilde thanks both. Yes it's hope and acceptance both needed equally. I am trying to be more level headed.

Carefully thinking things through it's the tight jaw that really bothers me....it is painful to chew at the moment. I'm going to book in to see the osteopath this week for my very stiff clicky neck, so perhaps he can relax my jaw muscles too. I have spent so long on the sofa the last few weeks, peering at my kindle and tablet, my posture is dreadful.

I am still struggling with IBS, it's not too painful at the moment but inconvenient. I have become underweight in recent years. It would be nice to have a settled gut so as to absorb more calories.

DD2 was on the phone again worrying about her ddog. She is going back to work in a week and worried about transporting the poor dog to the sitter. Ddog, apart from the cancer, is very arthritic and can't climb into their car any more. Dd2 is thinking of buying a cheap van just for 6 months. I think it's madness but cannot say so. Poor dog is not long for this world I fear.

@TeaAndStrumpets absolutely.. acceptance and hope is the balance we have to find or the wave we have to keep riding.

I struggle a lot to keep my spirits up...I do well mostly. I've been through a lot and have little support so I have had to learn to be kind to myself but being alone with this thing is hard. I would love to have someone in the way some of you describe but I have to accept it is highly unlikely I ever will now. I would settle for a dog but not sure that's even possible.

I always felt happiest in a muddy field in my wellies with my old dog. I miss him and I miss being well enough to go for a big walk.

On the jaw and gums....I've had sore gums fairly often actually. I resort to bonjela sometimes. It's like teething. Didn't connect it with inflammation. I take tumeric tablets. I do think that helps in general a bit.

Also I did try the nurosym gadget. Need to get back into a routine with it. It's the vagal nerve thing to try and relax nervous system. Maybe some deep breathing and all that jazz might help?