What are you up to today if you have chronic illness part 2?

[MewithME]

Thread 1 here
https://www.mumsnet.com/talk/_chat/5332156-what-are-you-up-to-today-if-you-have-chronic-illness

Come join us for our ups and down and daily natter.

@Stressybetty yes you must rest! You've done a lot already today.

Yesterday DH drove 30 miles to help a friend clear out masses of brambles from his huge garden so I pottered round doing things. Today I am confined to the sofa again, shattered, and just been lying flat. DH has unpacked the shopping and now has a huge muscle spasm from all his garden work. He's had to lie flat on the other sofa until it eases off. He has a bad hip and he limps, but sees nothing wrong with volunteering 6 hours manual labour because his friend is struggling. Friend also has a limp from a bad car accident! I imagine them winning a 3 legged race😀

@TeaAndStrumpets you got a diamond of a bloke there. Bless him. Hope he is ok!

I have to pay for all help I get. It's really hard. I could do with more friends like that.

I managed a little plod in the forest with DS but he was a moody teen and now I am in pain and have Sunday night blues 😭

Sorry to hear you have the blues @MewithME I remember it very well from before I went on sick leave.

I’ve done too much and am in so much pain I thought I might vomit. All I did was make dinner. DH was on a beaver hike and k had to crack on. He did serve up and take over so I didn’t have to.

@MewithME I honestly think it's this blasted illness. I get so down when I'm at a physical low ebb, and I am normally a very cheerful optimistic person. Hope you feel a bit better soon xx

I spent yesterday on the sofa, felt much better by last night, This morning I had a 6 monthly blood test (kidney function, thyroid) In a joined up system the bloods result from the hospital last week would have saved me the trip to the gp surgery but obviously none of that on our dear NHS. It took me about half an hour to get washed and dressed because I had to go and lie down every few minutes.

Anyway I made it, miraculously! One very good thing happened. I always have terribly high readings when the nurse takes my blood pressure, and I have to take a week's readings at home. This time the nurse got a silly reading from the electronic cuff machine and just whipped out a stethoscope and did it the old fashioned way. It was fine! I am going to request that, next time. I can feel the stress building once the electronic ones start buzzing.

So that was my big adventure!

Wishing you all a great week.

Going for a walk in a bit

Won a free greggs sausage roll on o2 blue Mondays so may pick that up

21 wks preg atm

Amazon ordered some more bits for baby girl today.

Looking forward to traitors final thurs eve

Also my nieces bday lunch @ wkend ..

Feeling a bit lonely atm.. not working as gp signed off..

Oh @FurForksSake that is so awful. Something like cooking it's sort of "I've started so I'll finish" because a half cooked meal is a disaster! Hope today you can take it easy. ☕

@worldwidetravel2017 Sorry your feeling a bit lonely. I know the feeling. I hope you enjoy your walk.

I have been for a short walk with the dog and daughter. Spent 10 minutes gathering some of the leaves on the garden from my massive tree. I have also finally booked in for a introductory counselling session next week.

Feeling extremely low and overwhelmed with life but I'm trying to ride the wave.

@worldwidetravel2017 it can be so boring being pregnant! And lonely if you are stuck at home. How lovely that you are having a little girl. Have you got a short-list of names?

Once your baby is here there will be so much to do. My DD has taken her daughter to baby massage, swimming, singing, baby yoga, even baby cinema! She met other mums through her ante natal group and they have all been very supportive. She is much older than the other mums (had several losses first) so was a bit worried how she'd cope, but it has gone swimmingly.

Lots to look forward to.

@Tiredandwired2 sorry you are down. It's odd weather at the moment, quite dark and dreary, and it doesn't really help! I'm still stopping and mentally thinking what time is it really? So the clocks changing just make things worse for my foggy brain.

Roll on spring!

Sympathies with everyone who's feeling a bit low at the moment. It seems to be that time of the year, doesn't it.

Feeling like a bit of a slug as I've been sitting on the bed for most of today... tbf, though, it's a work day and I've been working (albeit on my laptop) so could be worse. And it's blowing a gale here, so glad to be wfh!

Much sympathies for those feeling down and lonely. I’m taking lions mane and L tyrosine and find they have helped a bit with mood.

I’ve been to hydrotherapy and she said she can see a difference and I’m getting stronger. I then popped into Aldi, I sat in the car first and wrote a list and I know I’d have forgotten stuff if I hadn’t.

im now firmly on the sofa with my heat pad and the tv on. I’ve take some pain killers, collagen, creatine and tart cherry to help with the muscles.

im knackered. We’ve got to go to Oxford tomorrow for pre-op and it means I’ll miss my therapy group again. I can’t help it, but I feel bad. DH is taking me, I wouldn’t cope on my own. I’m hoping I won’t be in too much pain.

Thanks for the dinner sympathy, I was saying to my physio, outwardly I look quite normal and if you see me for five minutes you’d think I’m ok. But if I try and do anything much or even walk more than five minutes I’m doubled up in pain. Making dinner feels like something I should be able to do. Grr and rah.

Tonight’s dinner is soup, toast or eggs and all can fend for themselves 😆

Also sympathies for those suffering.
I feel inexplicably well. After work on Friday I was expecting a crash but still felt ok to go out for dinner and catch up with friends on Saturday, and go to church on Sunday. Still no crash, so now I’m in the danger zone of “maybe I can do more stuff and not crash”.
I’m forcing myself to rest while enjoying the feeling of not having brain fog for a change. It’s a rare feeling for me.

Empathy to all those feeling down, lonely or just plain knackered! It’s a lonely and frustrating illness at times and I find the dark/ damp weather makes everything worse.

@InMySpareTime that must be such a fabulous feeling! I’d say enjoy the feeling but maybe keep up the rests/ pacing to try and maintain it. I had similar for a decent length of time when pregnant with my daughter ( nearly 18 now!!) but I still remember the amazement I felt at suddenly feeling almost well.

PIP assessment this morning has meant all day in bed here. Luckily DH is keeping me supplied with drinks and food as I’d forgotten how utterly exhausting it is concentrating for so long. I haven’t the energy to go to the bathroom right now.
It was about an hour and a half and tbf the assessor was very pleasant and I didn’t feel she was trying to trip me up as I did in my last assessment and let me take a breather now and then. Relieved it’s over and what will be will be but I expect I won’t be managing much at all this week.

One amusing thing though, she asked where we parked the car. My brain was trying to say ‘ the car is parked on the drive’ only I kept repeating ‘the park is cared on the drive’ ….. No, No… the park is on the drive…😂 I think she was trying hard not to chuckle!

NO! Stop while you're ahead....so many times I've thought this and totally overdone things. But maybe all will be OK for you!!

@Hotbeverageplease oh yes I do that when I'm shattered. Take care.

Still stretched on the sofa recovering from the GP visit.

The estate agent rang with an eager viewer, but DH said no way can we do it this week. I am going to be very very good all week and hope I can get out next week. I don't suppose the potential buyers will be put off. Too bad if so.

I am thinking of starting a thread in Style and Beauty asking for tips for improvement, lots of selfies of course. I am wearing a lurid violet fleecy dressing gown, sheepkin mules and a strappy summer nightie ( because all my decent ones are in the wash). I did regret the violet dressing gown the minute it arrived but it is so darn comfy I wear it in secret. I had a nice presentable one but it was the innocent victim of a hot wash.

Straggly unwashed witchy hair adds a touch of Halloween. I know S & B people like fillers and Botox, so I could show them what a real face looks like!

Seriously, I read those threads in amazement, thinking how little they would care about a few wrinkles if they had real problems!

Back from work and boy was it a shock this morning! Still, I'm in bed now with a gingerbread chai tea. I will take some painkillers in a bit as my legs aren't used to walking - was v good though and used the lift 😊

Quiet day here, was going to try going to yoga but was waiting on a call back from the GPs about a prescription so cancelled that, bit of a relief really as well.

Spent much of the day in bed. Have this CFS / ME course starting Friday, feel a bit nervous. It's odd that the NHS app doesn't seem to have my letter from the clinic on there but today the 'named' GP has added the diagnosis as 'major' in my health conditions so guess he must have seen it (?)

At least it is on there for the summary for PIP etc. I suppose.

Listening to the Riot Women soundtrack on Spotify.

Style and Beauty is funny. I mean, sometimes I quite enjoy dipping a toe in..I do like nice makeup and skincare but I like good stuff that I can do it m five mins. If it takes longer, I'm not interested.

I also like my witchy hair. I find hairdresser visits quite amusing. Generally I shrug and say it's fine thanks. I think they like more gushy excitement than I can muster

In one of my online sickness meetings with my supervisor she commented on how long my hair is getting. It’s long and straggly and thinning from Mounjaro. It’s not a good look! I just tie it back.

I often post on what I’m wearing thread, I don’t think I’m quite the target and they ar probably horrified. 😆😆

Yes I see all these young pretty women worried sick about even the possibility of wrinkles! It is so sad. I've never bothered with make up, but I used to love perfume. Just allergic to it nowadays, but I still like reading about it, all the different notes etc. There is a very good website Fragrantica I think? that reviews and compares perfumes, I often browse that if I'm shopping for gifts. Like reading a recipe book in some ways!

@FurForksSake Tell the truth and shame the Devil!

@Swanhilde

@Orangesandlemons77

Hope you are relaxing nicely!

Also got the hair thinning from MJ here, have started on biotin and collagan but unsure if it it helping any.