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What are you up to today if you have chronic illness?

980 replies

MewithME · 10/05/2025 14:02

I do like the What are you doing today thread. But as someone with an energy limiting illness, I find myself marvelling at the level of activity that is beyond me.

Sometimes I feel sad about it even after accepting my illness for a few years now.

My week at work has been brutal and I'm feeling very weak and worn down. I am trying to find some inner peace.

This morning I managed a bath and ds helped when shopping arrived. I sat in the garden for a little while but newish neighbours were playing loud music which I found a bit stressful.

I've managed to put a wash on and made some lunch for us. I'm now in bed listening to some music festival in town floating on the breeze. There's sirens going off, so hope nothing bad has happened to anyone.

I'm going to lie down for a couple of hours. Hoping to watch a film with DS later. Pizza for dinner.

I found a nice new podcast called Shedunnit with lots of Agatha Christie in it which is up my street.

I may just lay here and listen to that for a while.

So if you have ME or LC or fibro or anything else that is a flipping funsucker of a thing to deal with, do share your little things. Our world is smaller but we are here.

I will add I know there are those worse off than I am, but not matter what we deal with, chronic illness is hard and it's hard to feel part of the world.

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Phat2fin · 10/05/2025 14:07

I’ve not actually got out of bed yet. I’m feeling exhausted from a busy week and have a headache. I do need to eat though, so I’m about to have some lunch and sit and watch my aquarium in the kitchen for a bit. While I’m in the kitchen I plan to do some cleaning.

msnotmissm · 10/05/2025 14:10

I've done some laundry, had a short walk and a head massage. Now in bed getting ready to nap until this evening. 😴

romdowa · 10/05/2025 14:11

I'm chronically ill and 32 weeks pregnant. I've gotten out of bed and pottered about my house, sat on the sofa and climbed the stairs a few times. I'll be in bed by 7 pm to binge watch some Netflix.

Interested in this thread?

Then you might like threads about this subject:

K8Davidson · 10/05/2025 14:13

Had some work done in the bathroom and then went to a shop that sells antiques. I didn’t find anything I wanted though, unfortunately.

I’ll probably curl up on the sofa for the rest of the day. Exhausted

Hebrides181 · 10/05/2025 14:14

Today’s been a good day so far. I’ve given the dog a short walk, read my book in the garden, made lunch, done 3 loads of washing and hoovered through. That’s me done for the day so just sitting in the garden scrolling now.

Jabtastic · 10/05/2025 14:15

My family are out without me. It's a beautiful sunny day but I'm in the house watching Netflix and enjoying having the TV to myself after a very busy week!

MewithME · 10/05/2025 14:16

@Phat2fin the aquarium sounds lovely. Made me feel calm thinking of it.

@romdowa that sounds a lot. What are you going to watch? I might try that four seasons thing with Steve carell.

@msnotmissm head massage sounds nice 🙂

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Jabtastic · 10/05/2025 14:17

I had a shower without using my seat so that was good. I also phoned a friend and arranged a meet up next week. I'm going to do some washing too and some admin for work. But first Netflix!

TheTempest · 10/05/2025 14:18

I have a variety of chronic illnesses and had a bad week. I got up at about 10.30 after a bad night, new garden furniture arrived today so set that up and now I’m exhausted and going for a lay down. It always gets to me more when the weather is nice, I feel like I’m missing out. On what I don’t know!

romdowa · 10/05/2025 14:19

MewithME · 10/05/2025 14:16

@Phat2fin the aquarium sounds lovely. Made me feel calm thinking of it.

@romdowa that sounds a lot. What are you going to watch? I might try that four seasons thing with Steve carell.

@msnotmissm head massage sounds nice 🙂

We've been watching the mr mercedes series based on the stephen king books.

ViciousCurrentBun · 10/05/2025 14:23

My chronic conditions are behaving themselves currently. I drove in to town and met a friend for coffee, did a small bit of food shopping. Have folded laundry and put on a wash and just had some late lunch.

MewithME · 10/05/2025 14:24

TheTempest · 10/05/2025 14:18

I have a variety of chronic illnesses and had a bad week. I got up at about 10.30 after a bad night, new garden furniture arrived today so set that up and now I’m exhausted and going for a lay down. It always gets to me more when the weather is nice, I feel like I’m missing out. On what I don’t know!

Exactly! Sometimes I feel calm and can enjoy the garden but I think I'm not well enough today. I know what you mean. I feel restless in my head...the garden is a mess. I need a gardener but haven't even had the mental energy to find one. It'll just have to be a jungle.

Sorry you had a bad night. Hope you enjoy your nice new furniture when you feel a bit better.

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ShinySquirrel · 10/05/2025 14:26

This is a lovely idea for a thread.

I'm having a good day today. The ADHD and physical things are aligned. My brain AND body are letting me do things.

I'm dressed, I've styled my hair, made breakfast for everyone and done some pottering in the kitchen. One dishwasher load has been emptied and put away, and I've put some other bits and pieces in the cupboard and wiped the surfaces down.

I also finished making the no-tato salad I started the other day. It's basically potato salad but with roasted cauliflower instead of potatoes. I'm type 2 diabetic and diet-controlled, so I stick to low carbs. I'm thrilled with it as that's my lunch sorted for the next few days with no effort - energy-saving win!

My plans now are sitting down for a while with my book and then I'm hoping to pot on some plants in my front yard.

If I can later on, I might upload some things to Vinted.

Ihateslugs · 10/05/2025 14:27

I’m taking it easy today, lounging around in my nightie! I did too much work in the garden yesterday, only sitting on a stool sorting out the patio pots but did have to walk a bit getting out tools, compost etc. I am going out for a meal tonight so need to pace myself before I have a shower, I made sure to take my full dose of painkillers early this morning so that I can take my last dose before I go out - can’t take them before bed if I do that but that doesn’t matter too much as I’m not doing anything tomorrow.

OnyourbarksGSG · 10/05/2025 14:27

I’ve got RA and currently unmedicated due to needing surgery this coming week. Had loads to do but just ticking along slowly. My DH and I went to our allotment and he strimmed a load of weeds for me while our two eldest grandkids helped me break up compost to top off our potatoes. I also managed to water some cabbages and cauliflower and plant some leeks and sprouts. Not a huge amount by a long shot but it definitely helps me to do the smaller jobs when I can’t manage the bigger ones. Hopefully doing a bit more tomorrow morning or evening before surgery on Monday. I would have liked to put it off but plot instructions are next week. Then came home, had a shower and now I’m sat at my sisters house enjoying a cider and some sunshine.

I hope you all have a gentle day pottering with what you can manage, don’t feel bad if it’s not much. It does us no favours to dwell on what is impossible today.

Ihateslugs · 10/05/2025 14:28

I have helped my energy levels this year by employing a cleaner and a gardener! Definitely a good idea!

ShinySquirrel · 10/05/2025 14:31

For contrast, with my good day, I've had an awful few weeks where I have managed to work my three days, but barely anything else, including getting dressed and making myself food. DH is fab and does everything else at those times.

We are where we are, and I hope reading about my good day doesn't upset anyone who is having a rougher time. I'll be there again right with you soon, tis the nature of the beast.

mynameiscalypso · 10/05/2025 14:31

This is such a useful thread, thank you for starting it.

I have been struggling to shake off a cold this week (am immunocompromised due to the meds I take) so DH took DS to swimming this morning and I stayed in bed. I got up when they got home and have done two loads of laundry and played board games with DS. I’m taking him to a party in a bit but we’ll get an Uber there and back so it should be okay, although I don’t have much energy for socialising. I was also supposed to see some friends tonight but I will see how I’m doing later. We don't have any plans for tomorrow though so I know I can push it a little bit today if I want.

feelingbleh · 10/05/2025 14:35

I had hospital appointment this morning so that's me done for the day I'm now laying in bed with the curtains closed and fan on as the sun and heat make me feel worse

MewithME · 10/05/2025 14:36

feelingbleh · 10/05/2025 14:35

I had hospital appointment this morning so that's me done for the day I'm now laying in bed with the curtains closed and fan on as the sun and heat make me feel worse

Appointments are so draining. Rest up. X

OP posts:
feelingbleh · 10/05/2025 14:37

MewithME · 10/05/2025 14:36

Appointments are so draining. Rest up. X

Thankyou ❤️

MewithME · 10/05/2025 14:40

ShinySquirrel · 10/05/2025 14:31

For contrast, with my good day, I've had an awful few weeks where I have managed to work my three days, but barely anything else, including getting dressed and making myself food. DH is fab and does everything else at those times.

We are where we are, and I hope reading about my good day doesn't upset anyone who is having a rougher time. I'll be there again right with you soon, tis the nature of the beast.

Ha, I'll have to start another one for sad singletons like me who have nobody to help or I'll get nice husband envy 😉 I'm glad you found a good one. Rarer than hen's teeth when you spend time on MN!

Last night I was so exhausted after work I just lay on the bed for two hours I felt I couldn't move. I so wanted a cup of tea but I needed to lay down more.

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MumChp · 10/05/2025 14:42

We went to visit a family member at her care home before lunch. The weather felt cold. I was put of bed around 10 am. Not good not too bad.

We had homemade tomato soup and bread for lunch.

Supervised child's music preparation. And. Game over.

I am on the couch with the cats. And Disney+. I had a shower yesterday so no need today.

Husband in charge of tea.

Stuckinhospital · 10/05/2025 14:53

Currently looking out of the hospital Windows my only visitor of the day gone home as we have a toddler and no village I'm on my drip later I've potentially got a colonoscopy to look forward to.

usernameeggs · 10/05/2025 15:34

I'm screwed at the moment. Have no idea what's going on health wise, I've got fibromyalgia and autoimmune but am currently being investigated for lung disease and gallstones 🙄

I can't do much but have been washing clothes and bed linen.

I booked a Mani/pedi for Monday which I'm looking forward to but I can't reach my toe nails due to stiffness.

I'm hoping this can be sorted out! And my hayfever in really bad too.

Am watching documentaries at the moment.