What are you up to today if you have chronic illness part 2?

[MewithME]

Thread 1 here
https://www.mumsnet.com/talk/_chat/5332156-what-are-you-up-to-today-if-you-have-chronic-illness

Come join us for our ups and down and daily natter.

I am ....well, not old, but definitely middie aged. And finding the therapy very revelatory. Unfortunately I had a limited number of sessions and yesterday was the last one. So if I want more I will need to self fund.

I do feel like I am starting to understand a lot more about how my own brain is wired, and how we as people are made up. It's opened up some good conversations with DH that we really should have had years ago but I didn't have the vocabulary.

I honestly don't know if it was the subject matter, simply the level of emotion, or just the drive there and back that was so draining! Probably all three.

You're very welcome to PM me @TeaAndStrumpets if you ever want to talk about it.

Flopped on the sofa, slightly washed but had to rest before hair and teeth.

@VikingNorthUtsire I remember typing an answer to your very kind comment re PM if in need but I must have forgotten to press send because I can't find it! My brain is just not working atm, luckily not driving heavy machinery today (or ever!) Anyway I really appreciate it, thank you.

Yesterday is a blur really, internet and phone going off at times (EE is terrible) so it severely interrupted my plan to buy Christmas gifts online while I was in chokey.

I always buy some trashy Regency bodice rippers for DD2 who is an academic. Bonus points if there is a sultry bare chested aristocrat on the cover. It started as a joke but she seems perfectly happy!

Can't wait for a new Netflix Bridgerton. The books were shockingly badly written (and I read them all just to check) but the TV series is very entertaining.

Have a good day all!

Well I managed a trip to a nearby coffee shop yesterday and we had breakfast out whilst it’s half term. I thought I felt ok enough to have a very quick wander in one shop with DD but I don’t know what I was thinking as payback kicked in pretty much once I got home. It was lovely to get out but be so nice not to have to endure increased fatigue and pain afterwards.
So today have been even more tired and achy so mostly spent the day under my heated blanket that I remembered to dig out for the first time this year. I’d recommend to anyone thinking of getting one! Dippy dog is most impressed with it 😊
DD has a friend over this evening at least to watch a Halloween film so that’s a great excuse for me to stay upstairs out of the way!
Hope those with kids are coping with half term this week and everyone else is doing as okay as can be.
Hope the temporary move out goes smoothly @EducatingArti and today has been calmer for @TeaAndStrumpets

Afternoon!

we went to a castle, I thought it would be flat, it wasn’t. I made it to the castle and back to the car and then ate painkillers and had a cry. I was stood in the gift shop waiting for ds2 and thought I might just throw up from pain and effort.

So now I’m in bed with my inflatable leg wedge, the iPad and the heating on. Tomorrow we are going to the wildlife park, I’m hoping I’ll be able to borrow a mobility scooter, but the CarPark is quite accessible so I’ll do a bit, have a sit and do a bit.

Its so frustrating realising just how limited I am and sometimes I totally forget.

I collected my meds and planted 3 hebes in my window box this afternoon. They had been berating me since I bought them 3 weeks ago in a fit of enthusiasm then ran out of energy. So I'm really glad to have done them.

@FurForksSake well done for surviving. I know what you mean- on a good day i feel like i might be able to do anything (while sitting on sofa) and then ...reality 😪

@FurForksSake I do hope you can borrow a scooter, it will def make it more manageable for you. Hope the pain is easier tomorrow.

Totally understand the frustration, I’m feeling similar today in that I think I’m doing a bit better, then I try and do something fairly ordinary ( like coffee out or go in one shop) and see people going about their day makes me realise that it’s really just a minor part of other peoples day whilst it’s a huge effort/ event for me. Sometimes that realisation it just hits you doesn’t it!

Well done on your planting @BerfyTigot

Morning all!

Felt quite cocky after managing to have a good wash, brush teeth and hair, get dressed. Thought I could set off some rice soup for later, literally put rice, water and salt in the steamer, takes a couple of minutes. That just pushed me over my limit so here am back on the sofa, feeling wobbly. It's frightening the way the energy suddenly just goes.

Back to browsing for Christmas gifts online!

Morning all.

Been a tough few days with pain flares and lots of stress due to DD worsening mental health. I'm often used as a punch bag.

Anyway, last couple of days I have done as little as possible. Watched some Christmas films and buying things online from the sofa.

managed a little small trip to Aldi yesterday for some essentials but need to do a big shop online.

Just took cocodomol. My pain has flared up really badly recently. I have managed to reduce the need for them but needs must right now. It's likely the stress,

Planninh a short walk around the block & then more Christmas shopping and ordering online.

have a good day all

I constantly get that feeling of 'Wow, I forgot this thing I am pacing and planning for is something people just do on a whim'. It makes me feel very alien until I read all your posts on here

Last day of holiday today and it's another restful one, preparing for travelling tomorrow.

Went out for lunch yesterday and it was lovely. Even had a glass (or 2) of wine, which I regretted when I couldn't sleep, but was wonderful at the time 🍷🍷

We made it to the zoo, I saw a red squirrel (wild), wolves and a wildcat kitten. I did 4000 steps and then lost it when I got home. I’ve had a hot shower and painkillers. Tomorrow I’m going to try Epsom salts bath to see if it helps me.

hope we’ve all had quiet and restful days.

Hope everyone's doing ok. Just exhausted and hormonal. Been for flu jab tonight, not looking forward to the knock on effect in the next few days. Usually avoid having it but MIL too vulnerable now to risk passing anything on. Can't believe how dark it is outside at 5pm. Got a bit of shopping to activate 10% Lidl voucher including some sweets for any trick or treaters. 2 pups going home at the weekend and another sold leaving us 6 to sell out of 18 originally. On settee with electric throw and making bacon sandwich later. Love to all

@Stressybetty glad you are cosy inside and getting a good rest. Bacon sandwich sounds good!

Hello all. I've been hopeless at keeping up with you all. Work has been intense and I am feeling like I hit a wall today. I'm taking most of tomorrow off and will try and rest as much as I can this weekend.
I'm in a lot of pain and the buzzing feeling is driving me crazy.

I need to book a doctor's appointment to find out about my X rays from months ago and my ECG.

And dentist for Ds.

I'm sure there's another one....oh yeah .... opticians for us both.

Work and life admin is overwhelming.

On the upside...I have the world's best plumber. My outside pipe cracked. I messaged him after realising I couldn't do it myself after a futile trip to b and q. He came and sorted it while I was at work and won't even let me pay him. Good people do exist!

I hope you are all ok. I'm sorry I haven't got the energy to catch up properly tonight.

Hope dippy dog is behaving.

Hope @Stressybetty is getting on ok with the pups finding homes.

Hope the big move to the hotel while the house is fixed is going ok for @EducatingArti

And just hope all of you are as ok as you can be and finding some lightness here and there.

💐

It'll soon be thread 3 time 😮

Happy Halloween all. I'm sick at the moment with a bad throat and suffering with my IBS at the same time 🙄 have to try and make today fun for the kiddos though - have barely slept in 3 days.

I have work later, and trying to shake off the end of a post-viral cough.
I only work very sporadically but it’s full-on when I do.
I’m a children’s storyteller so I have to be all out energetic for 20 minutes at a time across the afternoon.
I usually crash out afterwards while DH drives me home.
I’ve worked there before and they pay well, and I really love my storytelling persona, but it’s exhausting being that person for very long.

Much sympathy on the IBS. Mine is terrible during/after CFS crash, it's all part of the same thing I think. Thank god for my hot water bottle. I bulk buy peppermint tea. I also make rice soup (congee) which is good for soothing the gut. Hope the throat is better soon.

Yes enjoy Halloween everyone! We never seem to get any trick or treaters at our house nowadays, but both DDs dress up and get their neighbours round. I am told 9 month old granddaughter has a pumpkin outfit so looking forward to the photos!

@InMySpareTime what a fantastic job! I can imagine you have to be very animated for that 20 minutes so that is a lot of energy.

Hope you survive the day with voice intact!

Good luck OP. With antihistamines see if there is a dose that helps without the side effects. I take half unless really flared up. At half a dose I just notice a reduction in symptoms.

Just thought I'd share as this might be useful to those of us claiming Pip.

I've read that they are scrapping the proposed changes to Pip in the Times today

On the way home from Wales had quite a good week and ok weather

Hope all doing ok

I have been naughty ish. Skived off work today and took my boy out for lunch and some Halloween messing about... just had a little walk by the river in the rain and enjoyed people's Halloween decorations.

I was owed some time back anyway and just hit an absolute wall with work. I feel so much better just from having some extra sleep this morning. It's my half term and Halloween treat to myself. I'll worry about work again next week.

Feeling grateful to have a teenager who is still lovely company and wants to have lunch out with his mum. Was just lovely and not too loud. I managed well. All easy.

@MewithME that sounds lovely!

Glad you had a nice break @Orangesandlemons77

@MewithME that sounds well deserved and a lovely thing to do.

https://archive.ph/kyVpx

Article about scrapping the PIP changes here, home now

hope all have a good weekend