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Join the discussion and chat with other Mumsnetters about everyday life, relationships and parenting.

Autistic women assemble!

978 replies

Nepmarthiturn · 04/04/2023 10:36

...only if and when you're not feeling antisocial and want the entire world to +%$¥ off, or course. 😉😆

A few of us were talking on another thread and thought it would be nice to have a support/ chat thread on here to share interests/ challenges/ parenting issues or whatever we feel like. A little community of autistic women on here that we can dip in and out of but will be supportive and friendly and people who actually get it.

Might also be a nice counterbalance to all of the horrific posts about autism that we find here so regularly!!

P.S. Have deliberately posted this in chat rather than in the ND Mumsnetters topic because it will hopefully reach more people who would like to join in. I didn't even realise that section existed for a long time and often miss threads there as they don't show in active and expect I'm not alone in that. However, in posting this here, we will be relying on the people with obnoxious and ignorant views about autism who so regularly post on Mumsnet, to demonstrate to us their allegedly superior empathy (ha!) and please just leave this thread alone: it's not for you. Many thanks!!

OP posts:
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72
Maybepossibly22 · 04/04/2023 18:08

Perpetual adolescent here too - I’m always looking for the adult in a situation where 9/10 times I am the adult. It’s a weird feeling but mentally I’m still 16 (when I had my first breakdown)

PearlClutzsche · 04/04/2023 18:08

Lovely idea for a thread.
I probably won't be posting much, but will check in and read here and there as my teen DD is autistic.
There may be things I learn here, and things that she may benefit from, too 🙂

JarByTheDoor · 04/04/2023 18:08

TakemedowntoPotatoCity · 04/04/2023 17:54

I've never heard of a steam deck, but now I want one!

OMG it's amazing… they did a brief 10% off sale, to celebrate a year since release, and that pushed over the edge into buying one.

Exibstudent · 04/04/2023 18:09

@JarByTheDoor
I relate. I too was the 3 year old demanding adult conversation. In my private life I am very comfortable with my "weird" interests and habits. I simply mask the difference with colleagues and acquaintances.
In terms of adulting it's tricky, but my love of lists always helps!

JarByTheDoor · 04/04/2023 18:11

Maybepossibly22 · 04/04/2023 18:08

Perpetual adolescent here too - I’m always looking for the adult in a situation where 9/10 times I am the adult. It’s a weird feeling but mentally I’m still 16 (when I had my first breakdown)

Mine was at 15, and I've believed for a long time that the abusive treatment I received in the adolescent unit I was placed in damaged my mind irreparably. Perhaps you're onto something with that… a breakdown stalling development.

JarByTheDoor · 04/04/2023 18:13

Thriwit · 04/04/2023 17:52

I don’t know if this helps, but I’ve always worked (in a professional job, but I haven’t managed the degree yet though!), I’m married and have kids, and I still don’t feel grown up. People still often talk down to me, I can relate to feeling mothered! And people always assume I’m younger than I am, often hilariously when I tell them I have a 13 year-old.

As for interests - I’m not really that interested in anything material, I’m a nightmare to buy presents for, and I’d rather save my money than buy something for myself. I’m clueless about fashion and makeup, have never dyed or styled my hair. The most I do is probably skincare, which has been a special interest for years. But I think that’s because I’ve had various skin issues.

I think what I’m getting at is that I’m not sure some of those things would necessarily change the way people perceive you, if that’s just the way you are?
(I really hope I’m not offending you, I’m truly terrible with understanding phrasing at times).

I think you're right… I listed these things because they exist and it's possible they may contribute to why I feel like and others see me as somehow much younger than I really am, but I think it may actually be mostly something about me, some vibe that I unconsciously emit, somehow.

Nothing you said was remotely offensive BTW Grin I really appreciate you replying!

JarByTheDoor · 04/04/2023 18:17

Exibstudent · 04/04/2023 18:09

@JarByTheDoor
I relate. I too was the 3 year old demanding adult conversation. In my private life I am very comfortable with my "weird" interests and habits. I simply mask the difference with colleagues and acquaintances.
In terms of adulting it's tricky, but my love of lists always helps!

I've never been so great at masking. I was that 9/10yo, the one telling the other girls in the playground that I didn't care about Boyzone or Take That and didn't know who any of them were, and anyway they were crap, and even if they weren't, their looks had nothing to do with whether their music was worth listening to, but had they listened to any Dvorak or Beatles recently by any chance?

JarByTheDoor · 04/04/2023 18:21

Nepmarthiturn · 04/04/2023 17:58

Hi @JarByTheDoor !

I can definitely relate to some of that. I remember an NT friend saying to me when we were in our mid-20s that she felt so "comfortable in her skin" now, sure of who she is and settled. I think I am only just getting somewhere close to that now, many years later. I can see how much easier life would have been and what better decisions I might have taken if I'd not been 20 years behind in emotional maturity! My relationships and marriage were all complete disasters so you have done better than me with that. I don't think I would even attempt another one.

I work but I really struggle increasingly to sustain it, I think I'm so burned out now. I am ready to retire but am trapped because bank balance does not agree. Totally inappropriate career also because I didn't know what I was doing.

As for kids. They are the best thing in my life. But also totally overwhelming. The noise, their needs, never being able to have a day off, the responsibility. It is hard. Everything has an extra layer of difficulty on top, doesn't it? And housework, aaargh! I hate mess, but also can't get things done, so am constantly at war with myself. Been trying to do a clearout for over a year and still not finished. I an drowning in a pile of washing. I hate folding washing!!!

Comfortable in her skin by her mid-20s?! I'm very envious 😅

Do you think the enforced responsibility of parenthood gives you any more of a sense that you are the adult in the room, and that you will be seen as having some kind of authority, even if it's difficult?

TheShellBeach · 04/04/2023 18:23

JarByTheDoor · 04/04/2023 18:17

I've never been so great at masking. I was that 9/10yo, the one telling the other girls in the playground that I didn't care about Boyzone or Take That and didn't know who any of them were, and anyway they were crap, and even if they weren't, their looks had nothing to do with whether their music was worth listening to, but had they listened to any Dvorak or Beatles recently by any chance?

That was me exactly!

TheSnowyOwl · 04/04/2023 18:25

Hello 👋🏻

Exibstudent · 04/04/2023 18:32

Really I issue with adulting is that, due to a rubbish childhood, I was the responsible adult from about age 5. I have never had anyone else to do adulting for me, I would love love love to have that but as I can cope it just doesn't happen. My autistic husband in contrast has never developed adulting skills and freely admits that- he does try and has improved but one of our focuses as parents is ensuring our kids can cope so they don't have to rely on others as much as he does.

Exibstudent · 04/04/2023 18:39

@JarByTheDoor
I did say those things to peers as a child, but another "side benefit" of a traumatic childhood is that there is a layer of secrecy masking all your interactions with people outside the home: masking is very natural to me, but as a child I didn't understand that difference was something I should mask. Now that I'm older it's just a layer of privacy; I don't have to let everyone see me when I don't want to and I can choose who does and doesn't!

camelCase · 04/04/2023 18:43

@JarByTheDoor Steam deck is on my birthday list this year! I love video games, DH and I play together a lot and we also play with DD (when she's not on her PS with her boyfriend). My absolute favourite types of games are creative ones where I can build things/design things like house flipper and the sims (love building the homes find playing the actual game boring).

I always hate that awkward conversation that comes up "So what do you do?" I just say I'm re-training at the moment (so technically a student) when in fact I haven't worked for a long time. My last job I ended up signed off for 2 months with "stress & depression" looking back it was actually burnout, I just couldn't cope with being around the other people in the office. One of the most mortifying experiences I've had lately is when taking part in research on autistic mothers, everyone sat around a table and introduced themselves, they all had long lists of achievements (authors, PHD's, amazing careers, etc) and when it was my turn I just shrugged and said I was a mum and that was it, then my situational mutism really kicked in and I couldn't say a word for the rest of the 2 hours.

I am actually re-training (does it count as re-training if you never had a career in the first place?) in coding but I keep having my doubts over whether I can even do it. Sometimes I think I've gotten really far and get it and then other times I can't remember what I learned last week and have to go over it again.

camelCase · 04/04/2023 19:00

JarByTheDoor · 04/04/2023 18:21

Comfortable in her skin by her mid-20s?! I'm very envious 😅

Do you think the enforced responsibility of parenthood gives you any more of a sense that you are the adult in the room, and that you will be seen as having some kind of authority, even if it's difficult?

I think for me it does, I absolutely had to force myself to do things I really didn't want to for DD sake, like when she was little taking her to toddler groups. Nobody spoke to me at all for the entire year we went but DD seemed to enjoy it so I kept making myself go.

As she got older and we had problems with secondary school that well-known "mama-bear" thing really kicked in for me. I think DD has been my special interest for a long time and whenever she became obsessed with something I did as well to support her/engage in her strict conversations (she would get very upset if you didn't remember a fact about her special interest). When it came to school I became THAT parent, the one they dreaded having meetings with. I would take a folder in with all the info I needed to hand them their arses. All the ways they were discriminating against her disability, their legal requirements, and pointing out how they were not following their own policies, I was a total pain for them but it was because they treated DD appallingly.

I have spent so many years fighting for everything for DD (she has some medical issues as well) and so things like making phone calls regarding her are easy for me. Or like when she needed to go to a very specialist school (for mental health) I not only argued the case but I got the deputy head of special needs for our whole county involved and he ensured she got the placement (it's funny how quickly people change their attitude when you copy in their higher-ups).

So yeah when it comes to DD I am the most adulty adulter but for everything else I still feel like I'm 16.

Dobbyatemysocks · 04/04/2023 19:09

Wow!!

I am stunned at the number of others who not only have, but understand the speed reading superpower that we have!! I love that!!

The amount of times I have been called a freak or looked at like I have two heads is unreal!!

Does anyone else see their brain as a big filing cabinet/library? It almost feels like at the end of every day I have to physically file things away before I can goto sleep and I have to have a notebook with me to write things down (can't throw them away - just in case)

Another thing I can do is put a film on (I have to watch films about 5 times to understand it as I'm too busy looking at the backgrounds) and listen to it and it plays in my head. I have been known to read whilst doing this. I see films like most view a cd or album is the only way I can explain it.

Right now I am tackling moving house. I have to list everything in each box. 1 list goes in the box and a 2nd goes in a file ready for when we move. Each box has to have a number/room/load ref on it. So far I've been packing for four weeks and I should be finished and moved in another four weeks. If I didn't use this system I would completely shut down and not cope.

If a shop I regularly use has a changeround I can't use that shop until my mind forgets the previous layout. It is easier for me to process a new shop than deal with change - online shopping is a godsend for dealing with this.

I turned 50 this year and agree with a previous poster about being 15 in an adults body - I have had to set in stone certain routines to help me appear 'normal' to the outside world and have to be quite strict with myself on bad days. Alot of this comes from the abuse I received as a child because "I was bad".

But thank you to everyone on here -

Nepmarthiturn · 04/04/2023 19:10

Comfortable in her skin by her mid-20s?! I'm very envious 😅

I know! I was so shocked when she said it. And she seemed equally shocked that I was so shocked. 🤣 Must be why the conversation stuck in my mind for a couple of decades. Back then it was only just dawning on me that most people didn't find everything this difficult.

Do you think the enforced responsibility of parenthood gives you any more of a sense that you are the adult in the room, and that you will be seen as having some kind of authority, even if it's difficult?

I'm not sure. I often think god, what am I doing? Am I getting it all wrong and they'll grow up to hate me? Especially with having had a rubbish childhood myself and now being a lone parent, so no idea what I'm doing really and and nobody to share decisions with and I get massive anxiety about it. And huge guilt, about having passed this in to them and knowing their lives wikl be harder, even though I didn't know I was autistic at the time I had them. I think actually that probably tipped the balance of me being able to cope and pass for NT: I could manage a stressful job by doing very little else. But now I'm pretty much always either working or with the children and I get so overwhelmed, I didn't realise how badly I needed the downtime. It would be a LOT easier if there was another parent to share the load with so I could escape and have time alone when I need it.

I guess I don't really feel like I should have authority or responsibility for them because I am so worried about not being a good enough parent. And about burning out completely and no longer being able to work when I need to provide for them. The responsibility of it all weighs very heavily. I don't regret it at all, and would have them again even if I knew then that we'd all be autistic and I'd end up a lone parent. But it certainly isn't easy, and I don't think I feel like a grown up no. Whilst simultaneously desperately wanting to retire! 🤣

OP posts:
Scautish · 04/04/2023 19:18

I am absolutely overwhelmed by any large group - even an online group like this. I don’t need to “find a tribe” but I do like to find a few like minds.

threads like this, even though full of autistic women, are way too much for me. But it’s lovely so many of you find community here.

Nepmarthiturn · 04/04/2023 19:43

TheSnowyOwl · 04/04/2023 18:25

Hello 👋🏻

Hello! 👋

OP posts:
JarByTheDoor · 04/04/2023 19:54

camelCase · 04/04/2023 19:00

I think for me it does, I absolutely had to force myself to do things I really didn't want to for DD sake, like when she was little taking her to toddler groups. Nobody spoke to me at all for the entire year we went but DD seemed to enjoy it so I kept making myself go.

As she got older and we had problems with secondary school that well-known "mama-bear" thing really kicked in for me. I think DD has been my special interest for a long time and whenever she became obsessed with something I did as well to support her/engage in her strict conversations (she would get very upset if you didn't remember a fact about her special interest). When it came to school I became THAT parent, the one they dreaded having meetings with. I would take a folder in with all the info I needed to hand them their arses. All the ways they were discriminating against her disability, their legal requirements, and pointing out how they were not following their own policies, I was a total pain for them but it was because they treated DD appallingly.

I have spent so many years fighting for everything for DD (she has some medical issues as well) and so things like making phone calls regarding her are easy for me. Or like when she needed to go to a very specialist school (for mental health) I not only argued the case but I got the deputy head of special needs for our whole county involved and he ensured she got the placement (it's funny how quickly people change their attitude when you copy in their higher-ups).

So yeah when it comes to DD I am the most adulty adulter but for everything else I still feel like I'm 16.

My mum is undiagnosed but every ASD box I tick, she could tick twice, plus a few others on top. I am very sure she would be diagnosed, were she assessed.

And she said to me that she did try taking me to toddler groups, but since neither I nor she enjoyed it very much, it didn't become a regular thing — she'd go back and try a few sessions every so often, to see if I still hated it 🤣

But the good thing about having a (still undiagnosed) autistic mum as a (then undiagnosed) autistic kid was that, at least within my family, I wasn't weird, and she was on my side and had a good idea what I needed without even having to think about it.

Didn't like toddler group? Okay, neither did she, we'll do something else.

Starting to read at two and an obsessive reader from that point? Aw, just like her mum 😊 isn't it cute? We'd better go to the library so she's got plenty of new stuff to read.

Can't tie her hair back/do up her shoelaces/tell the time/brush her own teeth, despite many attempts to learn, until years after most other kids manage it? She'll get there at some point, no fuss made, keep trying but make adjustments in the meantime.

Can't bear tight shoes on her unusually wide feet? Okay, we'll get her the same shoes as last time, or spend two hours in the shop again finding bearable ones, and school will be informed that she'll be wearing trainers for PE instead of the regulation black plimsolls. (Not asked, informed. With things like that, my quiet, polite, unassuming, gentle mum would simply and confidently inform the school of the exceptions they'd be making for me. Same goes for my -6D prescription goggles for school swimming, when goggles weren't allowed, and my digital watch when only analogue were permitted. And the school just accepted it! I'm not sure how she did it… maybe it's your "mama bear" energy.)

I did also have major behavioural issues that they really tried hard to tackle, without any modern knowledge of ASD (though my mum did have a special interest in child development in general and autism in particular in the 80s Hmm), and primary school did eventually go completely tits-up for me, but for "weird" things that weren't that weird within my family, where adjustments could be made without impacting others, my parents just kinda went with whatever kind of developmental paths I seemed to be trundling along.

If it's at all possible for her (I don't know what her difficulties are), I'm sure your DD either massively appreciates you, or will come to do so.

Misspacorabanne · 04/04/2023 19:56

@JarByTheDoor yes I’m the same!
i have always felt like at some point something will just click and I’ll suddenly feel like an adult and have my life together!
but I’m nearly 40 now, and I still feel like adulting is too much! I’m always switched on, as soon as I’m leaving the house, always trying to fit in with who ever I’m talking too, but struggling massively with it all.
I get you when you say people don’t treat you always as an adult, I don’t know if it’s my awkwardness socially, as it’s worse when im meeting new people! I also look young which probably doesn’t help!
yes reading the thread I see so much of myself in you guys, I hate mess, and I go from being a neat freak, can’t leave the house until I’ve tidied up every single room, to being so messy and slobby and having no motivation to sort things out, and then it will all become too much and I’ll get stressed, because all I can see is muck and mess and I’ll put things in order and I’ll be neat freak again! 😂
Honestly if somebody comes to the house to visit I have to know about it before hand so the house can be immaculate, I think this is part of my masking and trying to show that I’ve got my shit together! Honestly feels like it’s all just an act!
If dh suggests going out for the night and getting a babysitter, I dread it as the stress of getting the house ready for babysitters is too much! I’d rather stay in!!

StopStartStop · 04/04/2023 20:00

BrightWater · 04/04/2023 12:08

@StopStartStop do you have any tips on how to ignore such posters? They really set off my deep, autistic need to hammer my point home due to the need to be understood and put across my version of what's 'right'. But it's exhausting and fruitless.

Not really any tips. Just hardening yourself against them.

Pibolar · 04/04/2023 20:17

Following
I’m late to the party as usual 😆

JarByTheDoor · 04/04/2023 20:20

Whereas if you tell me to come to a party that starts at 8, my default would be to hide round the corner till it's nearly time, and make sure I'm knocking on your door at 8 precisely 😅 Takes a lot of mental strength to force myself to abide by unwritten unspoken convention and do otherwise Grin

MegIsWhite · 04/04/2023 20:28

Scautish · 04/04/2023 19:18

I am absolutely overwhelmed by any large group - even an online group like this. I don’t need to “find a tribe” but I do like to find a few like minds.

threads like this, even though full of autistic women, are way too much for me. But it’s lovely so many of you find community here.

That's me too!

Lovely thread idea still. Just came to show support from the other thread...

Enjoy the chats.

Ichosetheredpill · 04/04/2023 20:31

I’m not sure how to introduce myself as an autistic woman. I can introduce myself as a professional, a mummy, a carefully constructed mask for social occasions but as me - well, this has made me realise how little I really know the wonderful, colourful, different, slightly nuts autistic woman I’ve always tried to shove into the shell of an NT façade. I am on the waiting list for formal diagnosis but was informally diagnosed last year at 42 by two psychologists (after a lifetime of therapy trying to work out how to better at humaning). I am at the gifted end of the spectrum, which is good and bad, as I can earn a good living but everyone has always expected me to find things easy and been angry with me when I burn out. I’m delighted this thread has been started, I’ve been thinking recently that my tribe is without doubt ND women. There’s a lot more I could write, but I need to think about who I really am and how I want to be on this thread, as it’s one of the few places I can be honest.

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