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Autistic women assemble!

978 replies

Nepmarthiturn · 04/04/2023 10:36

...only if and when you're not feeling antisocial and want the entire world to +%$¥ off, or course. 😉😆

A few of us were talking on another thread and thought it would be nice to have a support/ chat thread on here to share interests/ challenges/ parenting issues or whatever we feel like. A little community of autistic women on here that we can dip in and out of but will be supportive and friendly and people who actually get it.

Might also be a nice counterbalance to all of the horrific posts about autism that we find here so regularly!!

P.S. Have deliberately posted this in chat rather than in the ND Mumsnetters topic because it will hopefully reach more people who would like to join in. I didn't even realise that section existed for a long time and often miss threads there as they don't show in active and expect I'm not alone in that. However, in posting this here, we will be relying on the people with obnoxious and ignorant views about autism who so regularly post on Mumsnet, to demonstrate to us their allegedly superior empathy (ha!) and please just leave this thread alone: it's not for you. Many thanks!!

OP posts:
Thread gallery
72
TheShellBeach · 04/04/2023 16:55

Maybepossibly22 · 04/04/2023 16:51

crying to have found this thread. I am incredibly incredibly lonely irl and spend my work days having to mask to keep up with my “grown up” job that I must keep because 4 jobs in 2 years is too many. Eurgh. Sorry, hello. I’ll sit down now ☕️

Hi. I also cried when I found this thread.
Welcome.

lifesabitchandthenyoudie · 04/04/2023 16:55

@Nepmarthiturn yes, maybe people find life harder now. It seems strange that we came through the 60s and 70s, all free and easy etc., yet people are now more stressed out and find it more difficult to be 'different' than ever! I think I was lucky, perhaps, as my parents let me just be who I wanted. Wanted to read up a tree? Fine. Wanted to mess about in the mud? perfectly normal. Desperate for a dog? They got me one, together with the book so I learned how to train him myself. My mum was my best advocate, arguing with the teachers about many things including my left-handedness, my reading level etc. We seem more constrained by 'how things should be' more than ever now. And if you dare talk about ASD it's called 'jumping on the bandwagon' :(

Misspacorabanne · 04/04/2023 16:56

Hope you have a lovely holiday @jellybean007 how are you with planning things?
I’m either very super organised to the very last detail or I’m struggling to make a decision and second guessing myself? It’s one extreme or the other for me!
Although once I’ve got a plan in place and plans change, then that’s it I’m feeling all out of sorts then for the rest of the day!

jellybean007 · 04/04/2023 17:05

Hi @Misspacorabanne thankyou! I'm a bit of an overplanner - normally I'll have quite a detailed plan A AND plan B because I feel so out of sorts if it derails!

This time my DH asked if he could sort out the plan so I loosened my grip but it turns out his plan is 'it'll be fine, we'll find some food somewhere' and I'm not good at being that chilled out about it!

Currently googling our next meal quietly so I have my own back up plan :)

PinkBuffalo · 04/04/2023 17:05

Just joining to say hi 👋
i sometimes post on the ND threads cos I too scared to post some things on the main boards!

i am autism and dyspraxia. My dad looked after me until he died unexpectedly and traumatically 5 years ago and I have been by my own since cos my mum in a nursing home

I am in my late 30s and although I work full time I really struggle with understanding anything I am very lucky my work keeps me on (but also I have high productivity in my good days lol)

I have never been able to have a relationship I would not know where to start I already massively struggle with understanding friendships ☹️ My friends have to be so patient and helps me a lot

I spend the rest of my time in the gym which is where all my friends are 👍

Nepmarthiturn · 04/04/2023 17:06

Needhelp101 · 04/04/2023 16:32

Shyly joining in.

The reading words as blocks has just blown my mind. That's exactly what I do, I am a phenomenally fast reader.

There are a few things mentioned on this thread that have made me go 😳 it's me.

I have a son with ASD, like many on here, realising his diagnosis made me realise my own.

Hello!

That's what I've found from speaking to other autistic women: so many things I thought were just a "me" issue, even after diagnosis, I have discovered are actually common for other autistic women, too.

OP posts:
Nepmarthiturn · 04/04/2023 17:07

Maybepossibly22 · 04/04/2023 16:51

crying to have found this thread. I am incredibly incredibly lonely irl and spend my work days having to mask to keep up with my “grown up” job that I must keep because 4 jobs in 2 years is too many. Eurgh. Sorry, hello. I’ll sit down now ☕️

So much pressure and emotionally and physically draining. Glad you found us here. 😊

OP posts:
Nepmarthiturn · 04/04/2023 17:09

PinkBuffalo · 04/04/2023 17:05

Just joining to say hi 👋
i sometimes post on the ND threads cos I too scared to post some things on the main boards!

i am autism and dyspraxia. My dad looked after me until he died unexpectedly and traumatically 5 years ago and I have been by my own since cos my mum in a nursing home

I am in my late 30s and although I work full time I really struggle with understanding anything I am very lucky my work keeps me on (but also I have high productivity in my good days lol)

I have never been able to have a relationship I would not know where to start I already massively struggle with understanding friendships ☹️ My friends have to be so patient and helps me a lot

I spend the rest of my time in the gym which is where all my friends are 👍

Good to have you here!

That sounds like a lot to cope with. But also like you have some really nice friends and that is worth a lot.

OP posts:
TakemedowntoPotatoCity · 04/04/2023 17:09

Can I join too? I'm autistic as is my dd. Nice to feel like we have a space here.

Nepmarthiturn · 04/04/2023 17:09

jellybean007 · 04/04/2023 17:05

Hi @Misspacorabanne thankyou! I'm a bit of an overplanner - normally I'll have quite a detailed plan A AND plan B because I feel so out of sorts if it derails!

This time my DH asked if he could sort out the plan so I loosened my grip but it turns out his plan is 'it'll be fine, we'll find some food somewhere' and I'm not good at being that chilled out about it!

Currently googling our next meal quietly so I have my own back up plan :)

"It'll be fine..."

Aaargh! My head would explode. 🤣🤣

When do you go?

OP posts:
Nepmarthiturn · 04/04/2023 17:10

TakemedowntoPotatoCity · 04/04/2023 17:09

Can I join too? I'm autistic as is my dd. Nice to feel like we have a space here.

Of course! Welcome! 😊

OP posts:
Nepmarthiturn · 04/04/2023 17:12

lifesabitchandthenyoudie · 04/04/2023 16:55

@Nepmarthiturn yes, maybe people find life harder now. It seems strange that we came through the 60s and 70s, all free and easy etc., yet people are now more stressed out and find it more difficult to be 'different' than ever! I think I was lucky, perhaps, as my parents let me just be who I wanted. Wanted to read up a tree? Fine. Wanted to mess about in the mud? perfectly normal. Desperate for a dog? They got me one, together with the book so I learned how to train him myself. My mum was my best advocate, arguing with the teachers about many things including my left-handedness, my reading level etc. We seem more constrained by 'how things should be' more than ever now. And if you dare talk about ASD it's called 'jumping on the bandwagon' :(

Your parents sound brilliant. That must have made so much difference. Mine won't accept my diagnosis, or those of my children. It makes things really hard. They say they don't understand autism, we had the "they aren't autistic because they have friends and make eye contact" stuff. I have offered to send books/ articles for them to read but they don't want to learn about it, but are still convinced they know best and it's all made up and I am "damaging my children by labelling them". Very upsetting.

OP posts:
Nepmarthiturn · 04/04/2023 17:16

Oh sorry @jellybean007 can see you're there already! Have a lovely time. ☀️🌊

OP posts:
jellybean007 · 04/04/2023 17:19

@Nepmarthiturn we're here already! Resting in the accommodation where I am stealth planning...😂

And on your other post, I just won't tell my parents. They struggled a lot with my DDs diagnosis because she can make eye contact and has friends and I don't think they'd know what to do with me. Would probably think I'm blaming them for something. Now I know so much more it's super obvious that me, my sister and one brother are autistic. Would've been helpful to know so many times when younger. It's quite painful peeling off the mask it's been on so long!

JarByTheDoor · 04/04/2023 17:30

👋

Anyone else feel sort of like a perpetual adolescent?

Firstly, although I did eventually manage to get a degree (in my thirties, with a lot of support), I've never had a job, only a couple of very short, minimal-hours volunteering stints, and have been unsuccessful in finding work since graduating. Even most people who are unemployed or long-term sick or retired usually have something that they used to do — they've at least had a job at some point, and thus experienced that major component of the expected adult life. "What do you do?" is a difficult question for me to answer (after a brief reprieve of being able to say "student")… it's what adults ask to get a quick bead on each other, isn't it?

Secondly, I've sort of drifted into the decision not to have children, partly because I know I'm incapable of looking after and raising them, earning the things they'd need, or creating a healthy and safe home environment for them, and partly because I don't want to inflict my heritable disorders on yet another generation (no insult intended to those of you who do have children; there's more than ASD going on for me). Becoming a parent feels like one of the definitive markers of adulthood in our culture, and I've noticed that parents do often have a different, more adult way about them that I can't quite put my finger on.

Thirdly, I don't even remotely have my shit together. All that stuff the kids call adulting… I barely ever do housework and, combined with DP's difficulties, this means I live somewhere that Kim and Aggie would walk straight back out of in horror. I have some kind of undiagnosed circadian rhythm sleep disorder and cannot predict from day to day when I'm going to be awake and when I'll be sleeping. Even when not at all depressed, I procrastinate like there's no tomorrow (Grin), struggle to motivate myself to do anything I need to do, don't wash for days/weeks, have a terrible diet due to lack of self-control and laziness, don't exercise, don't always take my meds properly, and am just generally exactly like every MNer's worst nightmare of a lazy, unmotivated teen.

Fourthly, my hobbies and preferences don't seem to align at all with how an adult woman apparently "should" be in our society. For example, there was a thread a few days ago asking people what they'd really like for their birthday, which was full of people mentioning sophisticated or mature things like candles, gardening stuff, lovely dressing gowns, handbags, city breaks, and so forth, and I posted quite early on to say that I'd spent my Christmas/birthday money this year on a Steam Deck (a small handheld gaming computer, for those who haven't come across it). I thought there might be at least one or two other women like me! But I'm definitely the outlier there (though there were a couple of people mentioning nice notebooks, and I'm a real sucker for stationery, especially stationery that's too nice to use), and come to think of it, even talking about having Christmas/birthday money to spend makes me sound like a teenager. As that example probably reveals, I love video games and fiddling about with consoles and computers, to modify, jailbreak, customise or otherwise enhance them. I also listen to a lot of music and spent several years enjoying a fairly heavy headphone obsession. When it comes to pets, I like rats and guinea pigs, not more stereotypically grown-up pets like cats or dogs. My favourite TV/film/novel genre tends to be science fiction. My wardrobe only contains jeans, tracky bottoms, t-shirts and hoodies. I don't wear any jewellery or makeup and I don't style my hair. These are just a few off-the-top-of-my-head things that I feel like my culture tells me I should've "grown out of" by adulthood.

Funny thing is, when I was a tiny hyperlexic 3yo (who could read anything in front of her, talked like she'd swallowed a dictionary, and expected to be treated as an equal by all adult conversational partners), or a slightly odd but very academic child in primary school, everyone commented how mature I was (at least, when I wasn't fighting like a Tasmanian devil). But now, adult women — some of my friends and acquaintances, my therapist even — seem to have an urge to mother me, and people seem genuinely surprised I'm as old as I am, even though I genuinely look every year of it. My dad says I've been very clearly the exact same person my entire life, from when I could first interact to the present day Hmm Maybe I was born 15 and stayed that way…

One box I have managed to tick off on the "are you an acceptably adult adult" cultural checklist is the stable long-term relationship, but even that is a bit odd in my case, and reinforces the general feeling I haven't grown up properly — DP is much, much older than me, and we met when I was an adolescent, so the relationship constantly reinforces a "younger-than" feeling in me.

Well… that was long, but I felt the need to explain what I meant by saying I feel almost like a perpetual adolescent, or at least that I'm perceived that way by others.

Can any of you relate at all?

Thriwit · 04/04/2023 17:40

Helllo! I have been sat reading this thread agonising over whether I’m too late to join in or not. Have decided screw it! I will say hello!

I was diagnosed with autism as a child in the early 90s, and often struggle to relate to what a lot of autistic women write online - so I may be more likely to just sit back & watch, and occasionally dip my toe in. Hopefully that’s ok.

I have two children, one diagnosed autistic and one who displays some traits but so far I think that’s all. I work full-time, and am studying too, so I’m permanently knackered. I can’t wait for the long weekend coming up!

Rockbird · 04/04/2023 17:50

not too late to join at all 👋🏻 welcome!

just recovering from my hellish day. Will catch up a bit later.

Thriwit · 04/04/2023 17:52

JarByTheDoor · 04/04/2023 17:30

👋

Anyone else feel sort of like a perpetual adolescent?

Firstly, although I did eventually manage to get a degree (in my thirties, with a lot of support), I've never had a job, only a couple of very short, minimal-hours volunteering stints, and have been unsuccessful in finding work since graduating. Even most people who are unemployed or long-term sick or retired usually have something that they used to do — they've at least had a job at some point, and thus experienced that major component of the expected adult life. "What do you do?" is a difficult question for me to answer (after a brief reprieve of being able to say "student")… it's what adults ask to get a quick bead on each other, isn't it?

Secondly, I've sort of drifted into the decision not to have children, partly because I know I'm incapable of looking after and raising them, earning the things they'd need, or creating a healthy and safe home environment for them, and partly because I don't want to inflict my heritable disorders on yet another generation (no insult intended to those of you who do have children; there's more than ASD going on for me). Becoming a parent feels like one of the definitive markers of adulthood in our culture, and I've noticed that parents do often have a different, more adult way about them that I can't quite put my finger on.

Thirdly, I don't even remotely have my shit together. All that stuff the kids call adulting… I barely ever do housework and, combined with DP's difficulties, this means I live somewhere that Kim and Aggie would walk straight back out of in horror. I have some kind of undiagnosed circadian rhythm sleep disorder and cannot predict from day to day when I'm going to be awake and when I'll be sleeping. Even when not at all depressed, I procrastinate like there's no tomorrow (Grin), struggle to motivate myself to do anything I need to do, don't wash for days/weeks, have a terrible diet due to lack of self-control and laziness, don't exercise, don't always take my meds properly, and am just generally exactly like every MNer's worst nightmare of a lazy, unmotivated teen.

Fourthly, my hobbies and preferences don't seem to align at all with how an adult woman apparently "should" be in our society. For example, there was a thread a few days ago asking people what they'd really like for their birthday, which was full of people mentioning sophisticated or mature things like candles, gardening stuff, lovely dressing gowns, handbags, city breaks, and so forth, and I posted quite early on to say that I'd spent my Christmas/birthday money this year on a Steam Deck (a small handheld gaming computer, for those who haven't come across it). I thought there might be at least one or two other women like me! But I'm definitely the outlier there (though there were a couple of people mentioning nice notebooks, and I'm a real sucker for stationery, especially stationery that's too nice to use), and come to think of it, even talking about having Christmas/birthday money to spend makes me sound like a teenager. As that example probably reveals, I love video games and fiddling about with consoles and computers, to modify, jailbreak, customise or otherwise enhance them. I also listen to a lot of music and spent several years enjoying a fairly heavy headphone obsession. When it comes to pets, I like rats and guinea pigs, not more stereotypically grown-up pets like cats or dogs. My favourite TV/film/novel genre tends to be science fiction. My wardrobe only contains jeans, tracky bottoms, t-shirts and hoodies. I don't wear any jewellery or makeup and I don't style my hair. These are just a few off-the-top-of-my-head things that I feel like my culture tells me I should've "grown out of" by adulthood.

Funny thing is, when I was a tiny hyperlexic 3yo (who could read anything in front of her, talked like she'd swallowed a dictionary, and expected to be treated as an equal by all adult conversational partners), or a slightly odd but very academic child in primary school, everyone commented how mature I was (at least, when I wasn't fighting like a Tasmanian devil). But now, adult women — some of my friends and acquaintances, my therapist even — seem to have an urge to mother me, and people seem genuinely surprised I'm as old as I am, even though I genuinely look every year of it. My dad says I've been very clearly the exact same person my entire life, from when I could first interact to the present day Hmm Maybe I was born 15 and stayed that way…

One box I have managed to tick off on the "are you an acceptably adult adult" cultural checklist is the stable long-term relationship, but even that is a bit odd in my case, and reinforces the general feeling I haven't grown up properly — DP is much, much older than me, and we met when I was an adolescent, so the relationship constantly reinforces a "younger-than" feeling in me.

Well… that was long, but I felt the need to explain what I meant by saying I feel almost like a perpetual adolescent, or at least that I'm perceived that way by others.

Can any of you relate at all?

I don’t know if this helps, but I’ve always worked (in a professional job, but I haven’t managed the degree yet though!), I’m married and have kids, and I still don’t feel grown up. People still often talk down to me, I can relate to feeling mothered! And people always assume I’m younger than I am, often hilariously when I tell them I have a 13 year-old.

As for interests - I’m not really that interested in anything material, I’m a nightmare to buy presents for, and I’d rather save my money than buy something for myself. I’m clueless about fashion and makeup, have never dyed or styled my hair. The most I do is probably skincare, which has been a special interest for years. But I think that’s because I’ve had various skin issues.

I think what I’m getting at is that I’m not sure some of those things would necessarily change the way people perceive you, if that’s just the way you are?
(I really hope I’m not offending you, I’m truly terrible with understanding phrasing at times).

TakemedowntoPotatoCity · 04/04/2023 17:54

I've never heard of a steam deck, but now I want one!

Jules912 · 04/04/2023 17:56

Not followed the whole thread as a bit burnt out by a day of holiday parenting and no downtime but hoping I can join in.

Nepmarthiturn · 04/04/2023 17:58

Hi @JarByTheDoor !

I can definitely relate to some of that. I remember an NT friend saying to me when we were in our mid-20s that she felt so "comfortable in her skin" now, sure of who she is and settled. I think I am only just getting somewhere close to that now, many years later. I can see how much easier life would have been and what better decisions I might have taken if I'd not been 20 years behind in emotional maturity! My relationships and marriage were all complete disasters so you have done better than me with that. I don't think I would even attempt another one.

I work but I really struggle increasingly to sustain it, I think I'm so burned out now. I am ready to retire but am trapped because bank balance does not agree. Totally inappropriate career also because I didn't know what I was doing.

As for kids. They are the best thing in my life. But also totally overwhelming. The noise, their needs, never being able to have a day off, the responsibility. It is hard. Everything has an extra layer of difficulty on top, doesn't it? And housework, aaargh! I hate mess, but also can't get things done, so am constantly at war with myself. Been trying to do a clearout for over a year and still not finished. I an drowning in a pile of washing. I hate folding washing!!!

OP posts:
Itsonlyagame · 04/04/2023 17:58

Needhelp101 · 04/04/2023 16:32

Shyly joining in.

The reading words as blocks has just blown my mind. That's exactly what I do, I am a phenomenally fast reader.

There are a few things mentioned on this thread that have made me go 😳 it's me.

I have a son with ASD, like many on here, realising his diagnosis made me realise my own.

I do that too. My mum used to call me Johnny 5 because I remindered her of the robot in short circuit with my reading speed. I used to have double figures of books out of the library at one time and my English teacher refused to believe how many books I was reading until I started submitting book reviews for them all. I think she wished she hadn't asked me to! Now I do almost all my reading on the Internet, constantly researching one thing or another.

Nepmarthiturn · 04/04/2023 17:58

Thriwit · 04/04/2023 17:40

Helllo! I have been sat reading this thread agonising over whether I’m too late to join in or not. Have decided screw it! I will say hello!

I was diagnosed with autism as a child in the early 90s, and often struggle to relate to what a lot of autistic women write online - so I may be more likely to just sit back & watch, and occasionally dip my toe in. Hopefully that’s ok.

I have two children, one diagnosed autistic and one who displays some traits but so far I think that’s all. I work full-time, and am studying too, so I’m permanently knackered. I can’t wait for the long weekend coming up!

Definitely not too late at all!

OP posts:
Itsonlyagame · 04/04/2023 18:02

Can anyone else hear electricity? I remember being very surprised that not everyone can hear it. I also hear things like ultrasonic animal deterants.

TheShellBeach · 04/04/2023 18:07

Itsonlyagame · 04/04/2023 18:02

Can anyone else hear electricity? I remember being very surprised that not everyone can hear it. I also hear things like ultrasonic animal deterants.

Yes!