Is anyone awake? I’m expecting bad news and I can’t sleep

[MyCake]

My dh is unwell and we have no idea what is wrong. We are getting scan results this morning but they were only to rule things out so probably not conclusive. However, I can’t see how this isn’t going to be something serious as he has declined so rapidly.

I feel sick. We’ve already lost most of his income through him being off work so I’m also worried sick about money. We have enough savings to manage another 2 months at the most.

My dc are already suffering, despite them
mot fully understanding how serious the symptoms are, as dh is pretty much housebound and I can’t physically drive them to all the clubs and places they need to go by myself.
I also work full time although thankfully I’m a teacher and break up this week.

My heart is broken just looking at him disappearing in front of me. The doctors are slow to take his symptoms seriously so sadly by the time he was sent to hospital he was already unable to work and very ill. It could of course be something very treatable but at the moment I feel suffocated with the fear of the worst case scenarios.
I am writing this as I’m lonely and scared and wondered if anyone is awake to say hello.

I have name changed in case anyone recognises me from this post. If you do, please don’t mention this as I am doing a great job of appearing strong on the outside.

Thanks for the update. Take care

Fingers crossed and sending positive thoughts that this is a treatable condition and he gets a speedy recovery. Disgusting he's had this trouble getting help. Hope you're DCs concert goes well

Op, these other issues aren't related to limb pain/cramps, insomnia, and vision problems are they?

If so PM me, my family member has similar.

I wish you and your husband all the luck in the world x

I'm sending you and your family prayers so that you could get through this difficult time in peace. I pray you have strength to cope through the worst news and be able to feel blessed with good news. With every dark gloomy day some rays of sunshine breaks through the cloud.

fingers firmly crossed for you.

Keeping fingers crossed for you

My son was amazing in his concert. He sings beautifully and plays the piano. I got a bit teary but mostly I was bursting with pride and happiness watching him.

My workplace are being great and I could take some compassionate leave but I love my job and the distraction of teenagers is a welcome change from worrying. If/when we know what we are facing I may take some time off but I am hoping the school holidays and the joy of Christmas will help me feel less stressed (I love Christmas!)

@MyCake

what are his symptoms?

my mother had a rapid decline about 10 years ago. The weight loss was staggering and we feared the worst - turned out to be Addisons Disease which is treatable.

hope your husband is ok

I’ve been unhelpfully googling this afternoon which has made me feel worse.

On the positive side, a family member has offered to pay for my car repairs in the new year and I’ve said yes! I hate asking for help but they can afford It and me lying awake panicking about paying bills isn’t doing anyone any good.

Thanks for the offers of private messages. I may well do that later in the week when my term has ended. Tomorrow is a manic day at school but I’ve broken up by Friday thankfully.
Thank you also for the prayers, thoughts, hand holds and general kindness.

Glad to hear the brain scan was clear. I hope something can be done and soon.

You sound like a wonderful family. I’m wishing you all the best. I hope things are not as bad as they seem. I hope your husband gets well again and you can be less fearful. I send you prayers.

@saturnisturning
mostly neurological. Numbness, weakness, headache, constant dizziness, blurred vision, forgetting words, twitching muscles, shooting pains and tingling. Also increased night sweats (he’s always had them to some degree), weight loss, fatigue.
High inflammation markers in blood - they have already ruled out loads of things as he’s had loads of blood tests.
I have been convinced it is MS but the scan didn’t show anything.

I hope you get answers soon OP. Glad you enjoyed the concert. If you do write down your worries try to segregate them into

What I'm worried about and what I can do about it

What I'm worried about and there's nothing I can do about it

I find it easier when it's written down to try and ignore the second list for some reason

Hello, just want to say I hope you get answers soon. I have a rare neurological autoimmune condition (myasthenia gravis) and it's symptoms can be pretty terrifying by the time people are diagnosed but most of us go on to live a really good life.

By the time I was diagnosed I couldn't open my eyes fully, or speak clearly or even swallow water without choking and was 'drowning' in my sleep. Now with medication all of that is resolved and I was even well enough to ice skate this weekend.

So I hope this gives you a bit of hope that it could be a pretty positive outcome ( I realise that won't stop you worrying, i know I was a state while I waited for them to rule out less treatable conditions!)

Also mine didn't show up in blood tests but did when I had a single fibre EMG (electrical current test). Some conditions do just take quite a while to diagnose

Have they checked for lead poisoning? Just a thought, in case it's helpful.

That’s what I’ve got , the irony being that my mum had it as well so we more or less knew that’s what it was but couldn’t get anyone medical interested despite being admitted twice . We went private in the end or I would have died . Good luck with it OP 💐

You need to start your own thread .

@Lilianfab It is possible to have a positive test, even after 3-4 weeks or more after this kind of abortion. Check out these info:

www.womenonwaves.org/en/page/972/i-ve-used-misoprostol-but-the-pregnancy-test-is-still-positive--what-should-i-do

www.aastrawomenscenter.com/womens-health/positive-pregnancy-test-after-abortion

www.privateclinic.com.au/pregnancy-terminations/after-your-procedure/

@Floralnomad that is awful!!! Addisons is so dangerous if left untreated.

i hope you’re well now?

OP all the symptoms you've mentioned are very similar to my family member.

Did the symptoms all come on quite quickly- in the space of a few months? Rather than slowly over several years?

@SweetSakura they do think it may be autoimmune and are looking at lots of possibilities so hopefully will consider the more rare potential causes.
The good thing now is that the consultant is clearly concerned and determined to get to the bottom of it asap.

@curiositydoll slowly over about year and then rapid decline over the last 2 months.