Is anyone awake? I’m expecting bad news and I can’t sleep

[MyCake]

My dh is unwell and we have no idea what is wrong. We are getting scan results this morning but they were only to rule things out so probably not conclusive. However, I can’t see how this isn’t going to be something serious as he has declined so rapidly.

I feel sick. We’ve already lost most of his income through him being off work so I’m also worried sick about money. We have enough savings to manage another 2 months at the most.

My dc are already suffering, despite them
mot fully understanding how serious the symptoms are, as dh is pretty much housebound and I can’t physically drive them to all the clubs and places they need to go by myself.
I also work full time although thankfully I’m a teacher and break up this week.

My heart is broken just looking at him disappearing in front of me. The doctors are slow to take his symptoms seriously so sadly by the time he was sent to hospital he was already unable to work and very ill. It could of course be something very treatable but at the moment I feel suffocated with the fear of the worst case scenarios.
I am writing this as I’m lonely and scared and wondered if anyone is awake to say hello.

I have name changed in case anyone recognises me from this post. If you do, please don’t mention this as I am doing a great job of appearing strong on the outside.

So sorry to hear its still awful but glad at least something’s working.

Sorry to hear it's been a nightmare, glad there's been a bit of progress. I've been thinking of you and your Dh

So sorry it's been such a nightmare
I'm glad that DH has made progress
I've been thinking of you both

They have found no explanation for lots of the neurological symptoms. The consultant said stress of his mums sudden terminal diagnosis could have been a factor but he wasn’t sure to what degree.

They have however found a nerve problem which accounts for the widespread numbness which was probably an injury.

He is now very frustrated as the dizziness is there and they can’t come up with an explanation.

The consultant said he was safe to drive though as it isn’t vertigo but to ease himself back in. DH is cautious but feels he now has to go to back to work on a phased return as there is nothing ‘really wrong’ (his words). He says that he feels like a failure for having all this time off work for nothing (again his words).

He wants to go back to work but is worried about driving and then dizziness/tiredness, although he has much more energy since being on the stomach medication and gaining wait.

I'm glad some things are going in the direction, but I'm sorry you don't have an explanation for the neuro symptoms, that's so hard.

I’m skeptical his mother’s diagnosis would cause his array of symptoms. It just means that in the absence of a biological explanation the medics are casting about for a psychological one.

They have at least found a physical cause for the numbness. What kind of injury was it?

I'm glad he is feeling somewhat better. How are you?

Tell you DH from me, he is absolutely not pathetic. You as well are such a strong woman. Please both of you be kind to each other, and yourselves. I'm so glad that he's finally managing to put some weight back on. Best wishes to both of you and your children

He's not a failure, and it wasnt nothing. Even the gastritis will have been awful, I have had if for the past couple of weeks as a result of a medication change and I felt horrendously ill until it was sorted.

This also strikes me more as doctors admitting defeat that actually getting to the bottom of something, so please don't give up pushing too readily. I did and regret it now I finally have a diagnosis, I hate that I let doctors convince me for so long that it was psychological/due to stress/lifestyle.

Medics being unable to find the cause of his illness doesn’t mean nothing’s “really wrong”. Unknown cause is no the same as no cause. It’s great news if it turns out out to be not terminal or degenerative.

You're still waiting to hear results from bloods and biopsies though? It's fantastic he's gaining weight again, as well as energy but I hope he doesn't try to do too much too quickly. Did the Dr's say about a phased return, or was that just your DH?

How are you bearing up yourself @MyCake ? You've both been through a massive amount of stress, with money pressure too - are you managing okay?

It’s MIL’s funeral today. She was only 69 😞
Thanks for all of your comments. I’m exhausted as my main colleague has been signed off for a while so I’m busy at work. I’m ok mostly I think.
Poor DH looks dreadful this morning although much better since he has put some weight on.
Not sure how ds1 with asd will cope today. The others have been quite open about their feelings but ds1 struggles.

Thinking of you all today @MyCake xx

Thinking of you all today

Thinking of you all

Sending you, your DH and your children love and strength for today dear @MyCake. 🌹

Thinking of you and your DH and family today.

Thinking of you and your family today MyCake

My thoughts are with you and your family today

Hope today goes as well as it can

Sending love and thoughts to the whole family today 💐

Please don’t let dh do too much, too quickly. You don’t want his progress to be set back. Hope you are feeling a bit better too op.

So sorry for your loss @MyCake .

Glad your DH is a bit better. Hopefully he'll soon get even better. x

Thanks everyone. It was such a sad day and I’ve had a really sad/difficult week with work too. My breathing is terrible since Covid the 3rd and I’m struggling so much. I’m using little scooter and have increased my inhaler to it’s original dose but I’m going to see the doctor.
DH is still dizzy and tingling but getting stronger all the time since his infection and gastritis have been treated. He seems less tired and is only a few kilos off his original weight.

What a sad day, I’m very sorry. I’m sorry too that you’re struggling with Covid.

But I’m delighted to hear DH is getting stronger.