Will be Universal Credit go up this much?

[indiepins]

It's currently around £1920 a month. Am I right in thinking it'll be over £2100 now?

DLA is about £600, so will that go up to £660? And CA is £69 a week so will that low be about £305?

Thank you

Yes but if the young person is living at home they can contribute a significant amount towards rent and bills. If they go into supported housing then presumably that leave the person free to get a job as not caring to the extent they were. I do appreciate that for someone with years out of the workforce this is not going to be easy but it is possible reducing the need for benefits. i know basic UC amount is shit. It would be a lot higher for someone paying rent or with younger dependents.

I have 2DC. 1 is disabled and gets HRC and HRM DLA. So there are additional elements to my UC, such as severe disability premium

The other is just a Dc with no health issues etc

The PIP is also intended to cover additional costs associated with being disabled so specialist equipment, therapies, aids or adaptations, etc not covered by the NHS. Additional transport costs. Having to buy specific foods. Extra heating, hot water, lighting, washing, etc. Additional clothing/footwear or specialist clothing/footwear. Costs and needs vary by condition and care needs but these are just some basic examples.

Yes OP has elements for a disabled child and for being a career

You're correct, it isn't.

You really don't need to justify yourself to anyone on here OP.

So much bitterness because people think someone else might be getting a bit more then them, no matter what their circumstances might be. It's pretty sad.

Even someone in supported housing can still need 35+ hours of care from family - medical appointments, therapies outside the setting/not offered by the setting, paperwork for benefits, care plans, etc, food shopping, clothes shopping, enrichment beyond what is offered in the housing setting. Then there's all the work involved with advocating for your loved one, checking on their wellbeing, providing emotional and mental support, monitoring their care, and so on.

You don't just get to drop them off on the doorstep and then skip away so while some people might be able to return to work, not all can.

Nah, it doesn't work like that. If you are responsible for someone's needs, you are responsible for them. You can't just go get a job when you are needed to be available for someone. You can't just go get a job when you need to provide care for someone throughout the day and night. The person is your job. Supported housing gives the person some independence, but it doesn't give you yours back.

UC can be that much.

I can’t believe there people who would genuinely see parents of severely disabled children not only spend every minute of their day caring for their child (likely for the rest of the parents life), worry endlessly about what happens to their child after they die, spend (literally weeks/months) filling out complex forms to dwp where one mistake can mean they’re unable to provide the care their child needs. Or worse have to spend their time planning their child’s funeral and preparing their other child for the death of a sibling. But would also like to add financial stress on to them as well?

What kind of person does that?!

Same as me, OP. You've got your hands full.

@Twinstudy thank you.

I wouldn't give my son up for a thing, but I'm sure they wouldn't want to swap me - A child who will never be independent and spend a lot of your time worrying one day how he will feel when he wakes up, you're dead (because we all die some day), and he thinks you've just left him.

You get up at 3am every day and change an older child's nappy. Function on no sleep.

Or knowing one day someone could physically, emotionally, abuse him and you'd never know as he can't tell you. Or know that if you did pass away, no family would want him and take him on. He'd be left to the care system. It makes me sick.

I'm sure they wouldn't want to swap!

Entitled.to website I think. Punch in some numbers and play.

@guidedbythelightt sorry, it's hard

Benefit renewals come round every 3 years, possibly longer for people whose conditions are not going to improve.

Please just ignore the idiots on this thread who are jealous of the amount you get. It's ridiculous to be jealous of someone who has as difficult a life as you. These threads always bring out the worst in people.

The rest of it comes around a lot more frequently though and that's not even including the 2am phone calls because they've taken ill or the 1pm urgent messages because they're "in a bit of a tizzy" or the emails because they've been sent an appointment for x-time on x-day and a family member will need to take them or the shirt notice meeting with the warden because they've pressed their call button for the third time that week for frivolous reasons and on it goes.

Care continues, even when they're no longer at home.

Fair point well made.
I didn't realize that you could be awarded that much. I expected it to be much lower.

DLA and PIP change the entitlement.

If you like the figure quoted then would you like the disabilities to go with it?

Anyone who thinks they would be personally better off, why not fill this in and see what you'd get.

www.entitledto.co.uk/

Here you go

I have a severely disabled DD. She cannot talk or walk or eat. She is still very active (uses a wheelchair) but cannot do anything for herself.
She is doubly incontinent so will use pads for life.
She cannot raise her arms.
Cannot express when she is in pain.
Barely sleeps.
Will most likely never be able to speak to me.
I don’t get UC because my DH works and we have “savings” - now being spent on adjustments to our home to accommodate her.
I will most likely never work again, if she outlived me.
If she doesn’t, I’m still approaching 50 and have been out of the job market now for five and a half years.
I gave up everything for her. I have no money.
Yes she gets higher rate DLA, I spend the higher rate mobility element on a WAV so I can transport her.
So “my money” is carer’s allowance only - £270 a month. On petrol and phone bills I get close to spending that every month.
My husband’s earnings go on food, bills etc.
Not everyone who has a severely disabled child is lording it up on UC..
And those who do qualify for UC and the various premiums for having a severely disabled child aren’t lording it up either.
We have no holidays or holiday pay.
No sick days (usually my DD is sick and I catch whatever she has).
I have never had a night away from her.
when she gets a chest infection I spend 24 hours in hospital caring for her.
I don’t even get a sandwich from the NHS and have to find and ask a nurse to stay with her to go up the shop to buy their shite.
She sleeps about 6 hours a night.
I have not had any kind of holiday, or date night, or shopping alone even, inn5 and a half years.
Swap you for a badly paid, secure, respected NHS job any fucking day

Don't be surprised, she is definitely in expensive rent area. Simple flat in London is £1500/month +single /couple allowance +kids.

If it helps at all op there are many of us who understand, and few physically sick at the attitudes displayed in this thread by the terminally stupid.

Even more horrific that it is supposedly people with degrees/healthcare professionals who are unable to grasp exactly what life could be like for someone with a severely disabled child. Or even comprehend just how much money carers save the government.

Hint: if they ALL went to work and stopped caring for their loved ones, you’d have a much smaller wage because the cost to the tax payer would be astronomical. And we’d still probably end up with disabled people becoming institutionalised again, with all the horrors that brings. Lucky for you, most would rather weather your scorn then put their loved ones through that.

I have my 🤞that your benefits are increased quickly and by the amount they are supposed to be 💐

My rent is £830 for a 3 bed HA property

Op please ignore all the jealous posts comparing when it isn't even comparable! You deserve all the help you get and then some.