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STOP LOOKING!! STOP LOOKING!! How can I help my son?

156 replies

NoBlueSkyComing · 16/02/2021 16:12

My DS1 is almost 8 and has always been a very sensitive child. Very easily hurt physically and emotionally. He can react very aggressively, verbally and sometimes physically too. I have seen two family support workers about him. He likes to be by himself when he is upset and they have said this is a fine coping strategy. But it has reached awful levels. it is not that he takes himself off to a room. He screams and shouts and insists others leave the room. He is now ruining play dates. He doesn't have friends his own age but does a few years younger. But today he fell when out with a friend. Just a normal trip on the pavement. No big deal. But for the rest of the 20 minute work home he kept screaming, 'DON'T LOOK AT ME!!' at his friend or his brother or his friend's mum, if they turned around in his direction. I had to walk metres behind the others so he could hide behind me, except to scream aggressively at them occasionally if they turned in his direction. He screams repeatedly at strangers, adults and children if he falls when out, 'STOP LOOKING! DON'T LOOK AT ME.' He ruined another playdate recently, simply would not calm down, he did take himself off to hide but did not calm down, every time his friend came to find him he would scream at him. After 30 mins his friend started crying as my son would not play with him and told his mum he wanted to go home so they did. This behaviour is ruining his, and consequently my, ability to make friends.

I have no idea what to do. I can't talk to him. He just screams at me to shut up. Even if I try later when he is calmer; only very, very occasionally can I manage to very briefly talk about a recent behaviour of his. I have tried talking about that film Outside In and how being sad makes others care for you, and that is what happens when he falls. I've tried being blunt and saying no-one will want to be your friend if you behave like that, so let me help you to find a way to respond differently. But nothing works. He's getting worse.

I am at the end of my tether. He gets a lot of time and attention and love and praise. But I am starting to find him increasingly hard to like when he is like this. I worry desperately about him, but his refusal to even try to help himself is hard to take. He has just told me that he knows himself better than me and he can't change and never will be able to.

OP posts:
NoBlueSkyComing · 16/02/2021 17:19

Thanks @Tallybeebloom

OP posts:
rosiejaune · 16/02/2021 17:20

Read about PDA (a profile on the autistic spectrum).

AIMD · 16/02/2021 17:20

@NoBlueSkyComing

Sounds very similar to my son. He is very sensitive, bright and intune with others. However if he’s hurt or scared his reactions can be a little extreme

@AIMD Is your son autistic?

No he isn’t. It’s never been mentioned by school either. He is very well behaved at school...in fact he’s too compliant really and it’s at home his stressors come out:

When I have read things about children it’s the ‘highly sensitive child’ and ‘dandelion child’ stuff that sits most with me in relation to my son.

I have at times queried a sensory sensitivity/disorder and aspergers as some of his behaviour seems to fit with that. However overall I think he is just a sensitive lad, who is sensitive to some sensory input who manages best one on one or in a small group.

Interested in this thread?

Then you might like threads about this subject:

chocolateisavegetable · 16/02/2021 17:20

I have a DD whose stress hormones like cortisol fluctuate in the opposite way to most people. She has far too much at night when the levels should be low, and not enough during the day when the levels should be higher. She therefore sometimes reacts in "inappropriate" ways. I was also going to ask if this changed quite suddenly? If so, I can suggest something to look into.

TramaDollface · 16/02/2021 17:21

@NoBlueSkyComing

He doesn't strike me as autistic. He can be a very empathetic, caring little, he cries at sad parts in films.

He is very, very anxious and sensitive though. He screams ' stop looking' as he is embarrassed at falling and that overwhelms him. But of course, the falling is trivial. What is embarrassing is his behaviour following the fall!

My son is autistic and is the most empathetic child I’ve ever met

Brilliant with babies and children
Highly attuned to other people
Perceptive
Loyal
Generous

It
Really
Doesn’t
Help
When
People
Behave
As
If
Autistic
Children
Are
Robots

NoBlueSkyComing · 16/02/2021 17:23

@luckiestgirl @UnbeatenMum that's an idea worth considering.

OP posts:
NoBlueSkyComing · 16/02/2021 17:25

To those posters who have said their children behave like this and also have autism, can I ask what other behaviours they have that are linked to autism?

OP posts:
SonjaMorgan · 16/02/2021 17:26

How do you and DH show emotions or react about him showing emotions? It sounds to be like he is embarrassed and doesn't know how to behave in these situations. I was probably a bit like this as a child as my father hated anyone making a scene or crying.

Gilead · 16/02/2021 17:27

Retired, but was part of a diagnostic team. Three things:

  1. Autistic people are extremely empathetic, often to the point of being overwhelmed.

  2. We do not appreciate seeing psychopathy in the same paragraph as Autism.

  3. You need to get a professional assessment for your son, this is not a usual reaction. There are a number of things to which it could be related.

AlfonsoTheTerrible · 16/02/2021 17:27

@AdditionalCharacter, thank you!

It is demoralising to have autism and be patronised by people whose attitude is "I'm the parent of a child with autism; therefore I know more about autism and autistic behaviour than you do".

I have to see neurotypical empathy!

Stovetopespresso · 16/02/2021 17:28

just while school and assessments come along (might take a while) how about some role-playing when he's calmed down?
like a teddy falling off the bed and hurting itself, how do the other teddies react etc, or talking it through ...or role modeling next time you bump your hand or whatever ,"see dc name, I dont mind you looking at me, I know you care that mummy hurt her hand"
I dont know, just and idea....

NoBlueSkyComing · 16/02/2021 17:28

I was also going to ask if this changed quite suddenly?

No, he's always been very sensitive and anxious. I think he is getting worse not better though. Especially with the ' Stop looking' thing. Which has got worse and is completely out of control now.

OP posts:
Newnamefor2021 · 16/02/2021 17:28

My eldest is like that. And yes he is autistic, I have two with complex needs. Lack of empathy isn't what ASC is though.

Prufrocks · 16/02/2021 17:29

Autism presents with an extraordinary wide range of behaviours, no one will be able to go any further than describing their own unique experience with their own unique child.

You’d be far better off doing some research of your own online (for example, nhs website) and deciding if you will pursue an assessment based on what you learn.

AlfonsoTheTerrible · 16/02/2021 17:29

@Noblueskycoming - why not ask someone with autism?

This is typical "does she take sugar in her tea?" behaviour.

AlfonsoTheTerrible · 16/02/2021 17:30

Thank you, @Prufrocks. As the saying goes "You've met one person with autism; well, you've met one person with autism".

AlfonsoTheTerrible · 16/02/2021 17:31

That should be "I have yet to see neurotypical empathy".

MoodyMarshall · 16/02/2021 17:31

@NoBlueSkyComing

DS (same age as your son):

Has a short fuse
Finds it almost impossible to stop what he's currently doing
Spins
Talks about his preferred subjects A LOT
Has sophisticated vocabulary
Chews everything
Was an early reader
Has an off-beat sense of humour
Is musical and artistic
Is a perfectionist
Gets angry when he makes a mistake and beats himself up
Is extremely sensitive to noise
Gets upset when his friends are sad
Loves history and museums
Loves running and jumping

That is nowhere near an exhaustive list Grin

NoBlueSkyComing · 16/02/2021 17:32

We do not appreciate seeing psychopathy in the same paragraph as Autism

I am getting a little tired of this scolding now. Clearly I am not in anyway a medical or diagnostic professional, all I know is that his father has something deeply abnormal about him that has been deeply damaging to all of us and I am expressing it in the only way I know how even if that is 'wrong'.

OP posts:
Okokokbear · 16/02/2021 17:33

OP when you mention following up re dyslexia I hope you're not implying his behaviour is related to being dyslexic? Just that's not what dyslexia is.

AdditionalCharacter · 16/02/2021 17:34

@AlfonsoTheTerrible I have a DS with autism and work with adults with autism. Not one of them is like the other.

@NoBlueSkyComing your DS sounds like he has high anxiety with can be part of a social communication disorder, sometimes associated with autism, but not always. The EP he has been referred to may pick up on it, but it is still worth asking the school for a referral to CYPS. The waiting lists are long so the earlier he is referred the better.

NoBlueSkyComing · 16/02/2021 17:34

[quote AlfonsoTheTerrible]@Noblueskycoming - why not ask someone with autism?

This is typical "does she take sugar in her tea?" behaviour.[/quote]
What a horrible thing to say.

OP posts:
Helloandhelloagain · 16/02/2021 17:35

This might sound harsh my son used to do this and in the end unless he’d be majorly hurt and needed attending too I had to learn to leave him and let him scream. Also I do understand saying people want to help when people are sad , however 9 times out of 10 most are fine and actually have to learn to have a appropriate reaction to what’s happened. My son used to get so upset/ angry at other and actually I taught him people are okay to look and ask . The reason he was so getting so flustered is because his reaction was extreme so brought attention. Like I say unless it was major I used to stand back so he could see and let him react and occasionally they have too see that their reactions are ott and that’s when you teach emotions and feelings x

Okokokbear · 16/02/2021 17:36

Honestly the reputation re autism is getting a bit much now. How my posters need to say the same thing? Op has acknowledged this.

NoBlueSkyComing · 16/02/2021 17:36

@Okokokbear

OP when you mention following up re dyslexia I hope you're not implying his behaviour is related to being dyslexic? Just that's not what dyslexia is.
No, I was thinking it may explain his difficulty progressing with his school work.
OP posts:
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